48 hour eeg?

Lil Kate

Anyone have to do a 48 hour eeg with their LO?  Not sure how I am going to handle 48 hours in the hospital with my VERY active 1 year old.  ANy suggestions on what to bring...what they did and if you actually got any good feedback from the eeg.

TIA

Florak8

Ours was unplanned, so we did not have much. Luckily the child life person on staff directed us to a toy room we could borrow items from.

DS wore a turban of gauze over all the leads and that attached to small box attached to a long cord. So we could move him around the room. But there is a video camera on him, so you have to consider that when you change spots in the room.

I would say bring a magnadoodle, books, blocks, and DVDs. I am sure other can think of more good entertainment options.

Good luck!

Oh, and DS was on a seizing roll so they got lots of info about where in the brain the seizures were coming from, etc. They did say that some kids will come in and have no seizure activity whatsoever, which is of course frustrating to the family and doctors.

trophywife

We did a 24hr VEEG when DD was just over 2 yrs. As pp said DVD's, fave books & toys.  Also we got a few new things to keep her occupied, new things are always better right?  We did Play Doh, markers, coloring books, stickers too.  Also pack your own snacks, much better & cheaper than the vending machines. 

DD has no seizures recorded, but  we were told that normal was a step in the right direction. (All of her tests EEG's MRI & Ct have been normal, the PET showed several areas of  hypomatabolism in the temporal lobes & cortex.)  It's frustrating  to get normal results, when they are clearly having seizures at other times, but for us reassuring since along w/ the other normal tests it helped to rule out some of the more severe epilepsy syndromes.

Good luck!

Mbitner

Bring lots of toys and books.  Aiden had two 48 hr ones where he was confined to crib.  It was awful.  His 72 hr one we did in a different facility- he was able to wear a backpack that connected to all of the electrodes- much easier.  It was still a video EEG so he couldnt leave the room...but it def made things easier on us both. GL! 

DougsBrideOct04

My daughter had one in the hospital and one at home.  There was so much commotion in the hospital that it wasn't too hard keeping her busy.  Just lots of toys in the crib.  the hardest thing is keeping them from getting too tangled up in the cords and making sure the video camera is on them at all times.  I was a nervous wreck when she was sleeping because she moves so much she was all tangled.  If he likes movies I'm sure they will have a DVD player.  Good luck!

BUmama

Lydia was around 8-9 months old when she had a 24 hour VEEG (we were slated for longer, but they had enough material and let us go after 1 day). We took toys, books, and her blankie. They also let her wear her own pjs as long as they snapped up to allow for the heart electrodes, etc. If you can arrange for someone to come in and spell you so you can eat, that would be wonderful. Try to pack some snacks for everyone because, in my experience, the nurses in the emu tend to be pretty sparse so you really have to do more for yourself, and you can't ever leave the kiddo alone.

They provided no baby food or formula for DD and no diapers as well. All we were given was the standard meal tray, so keep that in mind while packing.

DH reiterates that a 3rd person is needed to spell parents and to let you have a break.

Hope all goes well. EEGs are never fun but you can make it more bearable with a lot of preplanning. Also, see if you can call the hospital and see what is available beforehand.