joining national bone marrow registry

perry7285

i just joined, it takes ten minutes. if anyone else wants to join, here is the link:

https://www.marrow.org/JOIN/index.html

(sorry, can't make it clicky on my mac.)

i know it's a long shot, but maybe one of us could be a match for kate! 

Temp893722312503334

Too funny!  I was just about to post the same exact message!  

We are a strong group of women - lets put this sisterhood of IF to good use and help Kate and many others who need a transplant!  

 

SeaSoul

I'm already on the registry but I had to do a swab (the inside of my cheek, I think) when I signed up - how do you do it online?  Do you have to go somewhere to have it done?

LVBlvd

So glad you posted this! DH and I are going to join.

KYRN

SeaSoul:

I'm already on the registry but I had to do a swab (the inside of my cheek, I think) when I signed up - how do you do it online?  Do you have to go somewhere to have it done?

When I joined about 8 years ago it was a blood draw but just now I looked at its a cheek swab.  I think they will mail you a kit and you swab and send it back.

BRSaugust20

SeaSoul:

I'm already on the registry but I had to do a swab (the inside of my cheek, I think) when I signed up - how do you do it online?  Do you have to go somewhere to have it done?

I am already on it as well.  I think they might send a swab in the mail you can mail back.

DavezWife

and I do believe it's $50 one time to join/do the swab. I tried to get my entire family to do this as "our gift to eachother" a few xmas's ago. (shot down, boo)

 

AlissaCell701

I just asked this question in LCB's post. I don't know how to do it. Also, if you are pg can you donate?

SeaSoul

DavezWife:

and I do believe it's $50 one time to join/do the swab. I tried to get my entire family to do this as "our gift to eachother" a few xmas's ago. (shot down, boo)

 

Really?  I was solicited at an event (Tri for a Cure) and it was free...

SeaSoul

AlissaCell701:

I just asked this question in LCB's post. I don't know how to do it. Also, if you are pg can you donate?

No.    I looked it up when I read LCB's post.

hannah&ben

AlissaCell701:

I just asked this question in LCB's post. I don't know how to do it. Also, if you are pg can you donate?

No, you can't donate if you're pregnant.  You also can't donate if you've had surgery in the past 12 months (like a c-section).  

I joined about a year ago, after I passed the 1 year mark post c-section with Henry.

 

desabean

DavezWife:

and I do believe it's $50 one time to join/do the swab. I tried to get my entire family to do this as "our gift to eachother" a few xmas's ago. (shot down, boo)

 

My husband has donated bone marrow and never paid a penny.  In fact, they paid him for travel expenses.

 

I will sign up tonight for sure.

PhillySue

I am on it too.  I think I had a blood draw about 10 years ago. 

firsttogo

I joined just now. They send you a kit in the mail, and that is it. You can make a donation to offset their costs, but you do not have to. Pretty easy to fill out online, and the kit comes in a week or so. 

LIAngel

hannah&ben:

AlissaCell701:

I just asked this question in LCB's post. I don't know how to do it. Also, if you are pg can you donate?

No, you can't donate if you're pregnant.  You also can't donate if you've had surgery in the past 12 months (like a c-section).  

I joined about a year ago, after I passed the 1 year mark post c-section with Henry.

 

Guess I can't join til next March after my 1 year mark post c-section with Ava.  That stinks.

sommerrayne

I'm already a member - I wonder if they just go through the data base constantly or if you can ask if you are a match to someone specific.

ladychicago

hannah&ben:

AlissaCell701:

I just asked this question in LCB's post. I don't know how to do it. Also, if you are pg can you donate?

No, you can't donate if you're pregnant.  You also can't donate if you've had surgery in the past 12 months (like a c-section).  

I joined about a year ago, after I passed the 1 year mark post c-section with Henry.

 

Yeah, I knew we couldn't donate blood, so I figured marrow was out. I would do this in a heartbeat if I could!

sommerrayne

DavezWife:

and I do believe it's $50 one time to join/do the swab. I tried to get my entire family to do this as "our gift to eachother" a few xmas's ago. (shot down, boo)

 

It was free for me. I joined about 1 year ago.

GenRN45

hannah&ben:

AlissaCell701:

I just asked this question in LCB's post. I don't know how to do it. Also, if you are pg can you donate?

No, you can't donate if you're pregnant.  You also can't donate if you've had surgery in the past 12 months (like a c-section).  

I joined about a year ago, after I passed the 1 year mark post c-section with Henry.

 

Damn. I'm Only 6 mos out from the c-section.

hannah&ben

LIAngel:

hannah&ben:

AlissaCell701:

I just asked this question in LCB's post. I don't know how to do it. Also, if you are pg can you donate?

No, you can't donate if you're pregnant.  You also can't donate if you've had surgery in the past 12 months (like a c-section).  

I joined about a year ago, after I passed the 1 year mark post c-section with Henry.

 

It does   I was upset when I first tried to join when Henry was only about 6 months old... a dear friend of ours needed a bone marrow transplant and all of our group of friends were joining in support.  But, I understand why you can't, you have to give your body enough time to really heal all the way.  

Guess I can't join til next March after my 1 year mark post c-section with Ava.  That stinks.

yankee42

Done...very happy to do it..

Temp893722312503334

You can still join if you are pregnant or just a few months out from surgery - you just can't donate the marrow until after.  It doesn't hurt to join b/c maybe you can help someone else out years from now.  You never know.  I know some people who joined and then got calls 10+ years later.

AtlJuneBride

Done and done.

beebe929

hannah&ben:

AlissaCell701:

I just asked this question in LCB's post. I don't know how to do it. Also, if you are pg can you donate?

No, you can't donate if you're pregnant.  You also can't donate if you've had surgery in the past 12 months (like a c-section).  

I joined about a year ago, after I passed the 1 year mark post c-section with Henry.

 

booo!!! I only have 2 more weeks!

preheatedoven

I tried to join, but I am ineligible b/c I have rheumatoid arthritis.  

perry7285

SeaSoul:

I'm already on the registry but I had to do a swab (the inside of my cheek, I think) when I signed up - how do you do it online?  Do you have to go somewhere to have it done?

they send you a package to do the swab after you sign up. 

Mouseygail

chaucer:

You can still join if you are pregnant or just a few months out from surgery - you just can't donate the marrow until after.  It doesn't hurt to join b/c maybe you can help someone else out years from now.  You never know.  I know some people who joined and then got calls 10+ years later.

  nope...it rejected me...I'll have to fill out the application in a couple of months when I'm past the one year mark from my c-section.  I didn't know that donation could be so easy now!  thanks for sharing this info!!

fallbride110406

preheatedoven:

I tried to join, but I am ineligible b/c I have rheumatoid arthritis.  

Yup, this part of the reason I can't donate too. There's a list of medical conditions that exclude you as well as BMI requirements.

hannah&ben

Mouseygail:

chaucer:

You can still join if you are pregnant or just a few months out from surgery - you just can't donate the marrow until after.  It doesn't hurt to join b/c maybe you can help someone else out years from now.  You never know.  I know some people who joined and then got calls 10+ years later.

  nope...it rejected me...I'll have to fill out the application in a couple of months when I'm past the one year mark from my c-section.  I didn't know that donation could be so easy now!  thanks for sharing this info!!

This - it rejects you if you tell it you've had surgery within the past year.

Magoy

They rejected me, too, since I had to have all those transfusions after my delivery.  Boo.  

But, I called my sister to see if she'd do it.  She's on it! And she has a pretty rare blood type so hopefully she'll be able to helps someone someday.   

brideinOC

I just joined, too!  I plan to post the link on Facebook when I get home so that others will consider joining, too. 

ejgballerina

hannah&ben:

AlissaCell701:

I just asked this question in LCB's post. I don't know how to do it. Also, if you are pg can you donate?

No, you can't donate if you're pregnant.  You also can't donate if you've had surgery in the past 12 months (like a c-section).  

I joined about a year ago, after I passed the 1 year mark post c-section with Henry.

 

I looked on the FAQs and it looks like you can still join if you're pregnant, just not donate.

happytracy

such a great idea!

alchris

It sounds like things have changed!  I joined 14-15 years ago -- it was a blood draw and there was a charge (for people of European descent).  I was contacted about a match about 3 years ago but they ended up going with somebody else.

cookie_queen

I just joined. We are a strong IF community. The support that everyone has shown me has been tremendous. I know we can continue to support L and sweet Kate.

charmcitygirl

I just joined! 

nicolita14w

I joined at a mall booth a few months ago. I think everyone should do this.

nicolita14w

SeaSoul:

DavezWife:

and I do believe it's $50 one time to join/do the swab. I tried to get my entire family to do this as "our gift to eachother" a few xmas's ago. (shot down, boo)

 

Really?  I was solicited at an event (Tri for a Cure) and it was free...

In some states insurance is required to pay for the donor's registration costs (I guess it involves the marrow typing). MA  is one of those states, so I didn't have to pay anything to register. It's ludicrous that anyone should have to pay to do something that can save someone's life. 

vandelay

Done!  Perry, thanks so much for posting this information; it was very thoughtful of you, and very helpful.

Cajunladybug22

Rejected....I'll try again in August (one year mark).

LisaMarisa

Thanks for posting.  I've been thinking about this recently and I'm glad that I'm signing up.