September 2011 Moms

Do you know someone with SMA?

I have Spinal Muscular Atrophy and I was wondering if any of you knew someone who has SMA that is pregnant or has been pregnant before.

Re: Do you know someone with SMA?

  • I know lots of people with SMA 2, but I don't think that children are in their future. However, I also know a woman with Osteogenesis inperfecta who carried twins (both have OI) and everyone is doing fantastic!  You can do anything you desire with the right support.  This woman had to find a OB that was willing to treat her during pregnancy and most suggested termination.  I will tell you I am VERY glad these kids are in the world, and they are a truly amazing family. 

    Believe in yourself and your body and miracles happen!  You just need the right people to believe in you. Good luck!

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