Multiples

MRI for Logan need advise

Well, I guess more support and experience sharing than anything.

Logan has three fibromas underneath his skin already, so he has been confirmed with neurofibromatosis. The neurologist ordered an MRI which will be this thursday.  They will be looking for fibromas in his brain especially in his optic nerves because he said if he gets them he could go blind by age 4...which scared the piss outta me.

Anyways, anyone has a young LO go under sedation for MRI? 

TIA for anything you can share!

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Re: MRI for Logan need advise

  • I have not had to have either of my boys undergo sedation. But I can tell you that these days they have great drugs and sedation is pretty darn safe. Yes, there are always risks, but the anesthesiologist will be prepared for just about everything. Do your best not to worry (easier said than done). I know it has got to be so hard to watch your baby go through this, but he'll do fine and the test will be over before you know it. 
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  • J had amn MRI with sedation at 6 months old. It was scary for us but not bad for him at all.  He was kida of sleppy that day but that was all.  J had the MRI in order to determine if he had hydrocephalous.  I know it is so scary, but i am sure it will be fine. Good luck with your son, I hope things go well.
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  • Yes!  My oldest has had many MRI's with sedation.  Many of them were in his first year.  He has a lesion on his brain which causes seizures but we had lots of MRI's to figure out exactly what the spot on his brain was, and to moniter to make sure it wasnt going to grow or change.

    I can tell you the stress of thinking about the process is much worse then the actual process itself.  We have an amazing childrens hospital that we take him to and I think that makes all the difference.

    The IV is definately the hardest part, but if I remember right it was easiest when he was still an infant. (it got harder when he was a toddler and could fight back) I think the whole thing was harder on me as a mom then it was on him.

    We arrived early, having been NPO(no food or drink) for 12 hours. They started his IV and we waited while child life specialists entertained him.  When it was time for the test, they gave him his sedative and he went in for the MRI.  It didnt take a terribly long time and when it was over we went back to recovery and waited until he woke up.  When he woke up, he had to eat and drink something, and they had to make sure he wouldnt throw up and all his stats returned to normal,(this took a little over an hour) then we were sent home.

    Good luck!
    Let us know how it goes!
    Prayers and Positive thoughts for you!

    Sabrina

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  • my daugther had mri when she was younger and they allowed me to go back to the room with her until she was put under and than when she woke up I was allowed to go back by her!
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