Special Needs

Am I being irrational

So we had such a possitive appointment with the neuro on Tuesday and then starting yesterday I've become really paranoid.  I keep having this horrible fear that he is going to regress.  I feel like I'm looking for things that could be wrong.....last night he slept through the night for the first time.  You would think that I would be happy..... well I'm not.  I keep thinking that there must be something "wrong" that made him sleep.  He is finally putting on some weight and I noticed that his hands are starting to look "chubby"...... of course now I keep thinking, "is there a syndrome that makes babies hands chubby"?  Why am I doing this to myself?  Please tell me that I'm just being irrational.   

Re: Am I being irrational

  • Been there, done (and sometimes still do) that.

    In fact, just yesterday I had read something about how a 16 month old should be able to pull a cloth to reach an object, so I set a toy on a burp cloth, and said, "Come here, Owen, mommy needs to test you."

    I think all parents do this to some degree.  Just try to stop yourself b/c it will rob you of your joy (sorry that sounds like some corny line from a self-help book) in Landon's achievements, and in just being Landon.

     

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  • yep, same here.  been through that many times over.  for a long time i would question if every little movement was a seizure.  our neuro put it best when he said, he has seizures, we know he has seizures, yes we need to control them but it's him.

    it really is almost natural to feel the way you are.  especially when you have a child with special needs.  you want things to get better and there's always this fear that things will get worse and it's like you are just waiting for it to happen.  there's been many times where i've had a thought and then i have to take a moment and really rationalize it out and tell myself why my thinking just isn't right. 

  • It will get a little easier the older he gets, and the more you settle into your relationship with him, and the more you see him succeeding.

    I recently heard that a friend's typically developing son, who is almost the exact same age as DS, isn't waving yet. DS is waving and clapping his tushie off. Seriously I think it made my month.

    You have those little moments of both triumph and sometimes tough realizations, and you start to feel a little more the direction of the boat you are in, and you stop panicking over every little thing.

    Especially once you have the services in place. Even without a DX, I have come to the realization that I have DS in lots of great therapy, a great inclusion SN day care, and seeing good docs. Not too much else I can do but love him up! All of those therapists and teachers and doctors are all working to help him. If something is an issue, we will catch it.

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  • I'm just having a craptastic day.  Thanks for the support ladies.  Hopefully this funk I've been in lifts soon.

  • Hugs momma.  I am doing this mom thing for the 3rd time, and yet I still find myself freaking out over every little thing.  "He's moving a lot today, maybe something is going on".  "He's crying, maybe he's stressed and his sugar is low" (which then leads to me testing his sugar meaning I have to poke the poor kid. 

    And yup, he slept through the night a few weeks ago, and I went into his room fully expecting for him to not wake up because he'd gone so long without eating and I was afraid he couldn't maintain his glucose levels that long.  

    Our Little Fur Family
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    My Three Sons
    #1: 2.06 #2: 1.08 #3: 9.10

    DS #3 diagnosed at birth with panhypopituitarism - lack of pituitary function. He is treated with thyroxine, hydrocortisone, growth hormone and testosterone.

  • I live this constantly, and it has been robbing me of really enjoying my son.  Counseling and medication has made a huge difference, but I relapse sometimes (this week being one of those times since due to being pregnant I've had some changes) when I start to panic about whether the development he is making is typical 

    I would really recommend counseling (and possibly medicaiton for anxiety) if it's intefering with your quality of life.  It has made a world of difference to me, and a lot of other moms on this board.

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