Both babies are still doing well...as well as can be expected, but we did have a set back or two today. I am still very greatful that they both are stable and making steps forward, but watching our son have his first Brady...and then his second where he actually needed stimulation was difficult.
In good news Blake has a PICC line and seems to be tolerating it.
Addison is still on the vent but is successfully breathing room air, and we can see her making attempts to breath on her own.
It was just a really rough day emotionally, I think reality is really starting to hit home.
Re: Honeymoon is over...
*hugs*
I know it's hard, but try and stay positive for those precious babies. Thinking about you guys. Let us know if you need anything.
Samuel was having 5-6 Bradys an hour after that 'honeymoon' stage. They discovered that he has a sensitive Vagul nerve. They do grow out of the As and Bs. Sam hasn't had one in four days, but now he has desats all the time. We're here for you. Focus on the good.. the bad will pass, but the good should always be remembered.
I'm keeping a journal of all of his medical treatments and milestones. I find it therapeutic to write about him journey every day. He'll never remember what he is going through, but he'll always have a way to read about it. Our resilient little miracles will never believe what they had been through!
Sorry it was a tough day. On our bad days we tried to hold onto what ever good things we could. Some days it was "he peed." Other times it was "he gained 10 grams." Whatever we could grab onto - no matter how small - to remind us that he was still there, still fighting, even when it seemed like an uphill battle.
Hang in there mom! (and btw - I love their names!)