howley

LCB34

How is your nose?

And how did the business trip go?  Did you cover up with make up?  I know you probably updated but with everything we've been dealing with I think I may have missed it.

howleyshell

Dear GOD woman!!

 

Who the HELL cares about my stupid nose while you're still waiting on answers about precious Kate?!?!?!

Thanks for asking.

If you'd like some distraction:

I did go on the trip wearing a cr@p ton of make up.

I'm working away and still have purple lines under my eyes where the bruises have not yet healed.

I'm sure people still think my DH beats me but he assures me that I've gone from a member of "fight club" to an over zealous football player look with simple black lines under my eyes so he thinks it's an improvement.

Sadly it looks like the doc botched the work.  The inside of my nose is asymmetrical and the outside doesn't look to be centered between my eyes. 

So... probably another few months to make sure it's not a trick of swelling and then we'll discuss some kind of solution that will undoubtedly suck.

 Fun, huh?

But again.... very small potatoes compared to what you're juggling right now.

I hope you get GOOD answers soon.

LCB34

While I do care about your nose - I am also trying to keep myself distracted!  So, asking about others, and staying busy keeps my mind off of our issues.

That sucks that the doc may have botched the work.  I know you decided against any cosmetic aspects of the surgery to save some money and now you will have to spend it to fix what a doctor messed up.  How frustrating. 

Will the doc comp the fix since it was his poor work that is the reason you need to have surgery again?

Unless the CF testing comes back positive (which I am praying it doesn't - her test is Thursday - we'll know by Friday) we are several weeks away from answers.

They have moved on to genetic testing and those results take 6-10 weeks to come in.  So, it looks like we are in limbo land for 2ish more months if not longer.

I am ready to be off of this roller coasters for sure.  This momma is beyond exhausted.

howleyshell

Is she at least sleeping a bit better? And what about you? Have you been able to get any "me time" to recharge your batteries? Praying like mad for some simple explanations and answers for you. And it wouldn't hurt if the lab could miraculously rush some of these results for you either.

LCB34

Her sleep is improving a bit.

She will nap during the day some days - but if she naps she won't sleep at night.  Like today ? she took 2 hour long naps but is wide awake right now and will probably not sleep but 3-4 hours total tonight.

If she doesn't nap she will give me at least 4 hours of sleep without being held.  And another 3-5ish being held.  She still is waking up every 2-4 hours to eat at night and every 1-2 hours just because.

One of my best friends from high school was in town this weekend and was at the house all day Saturday.  She played with Kate and took care of her while I cooked, cleaned, etc.  I've never been so happy to scrub a toilet.  Alex's work schedule has been insane so his time home is limited as well.  But, we were able to sit down, talk about life, and enjoy a glass of wine while my friend had Kate.  It was amazing.

I have breakfast with my besties, mani/pedis, and possibly a hair cut scheduled for Saturday.  I am looking forward to it SO much.

Thanks for asking - we are keeping busy and trying to live life a normal as possible (zoo, aquarium, Gymboree, play dates, etc).  It is keeping me sane.

I feel like I am complaining ? that?s why I?m not updating very often.  I just hate people fussing over me and hate that we have others worried.  I know others want to worry, send thoughts and prayers and I need to get over it but it irrationally makes me feel like a burden to others.  I'm working on that one...

 

howleyshell

LCB34:

I feel like I am complaining ? that?s why I?m not updating very often.  I just hate people fussing over me and hate that we have others worried.  I know others want to worry, send thoughts and prayers and I need to get over it but it irrationally makes me feel like a burden to others.  I'm working on that one...

Here's the deal.....  if it's about you I totally understand feeling like a burden.

But when it's your kid?  All bets are off.

I'd beg on a street corner for clothes for my kid where I'd freeze naked if it were just for myself.

I know it's gonna sound lame but I've been around these boards a long time.  My local board in particular is all about the nestie juju.  

DO NOT hesitate to ask for it.

It's for Kate.

There can not be enough positive vibes being sent out into the universe that that little girl sails thru this healthy and happy.  

And that doesn't make you OR her a burden.

It makes you examples of what the love of virtual strangers can do when pooled and focused to do good. 

People WANT to be there for you and Kate how ever they can.

Don't rob them of the chance to love your daughter, K?

After all... they say it takes a village, right?

Modern society is just redefining "village" to include random groups of people who are not even geographically linked but who come together via commonalities via digital media.

And... if everyone else on this board is like me they've all told at least 1 other person about Kate.

The prayers and juju multiply fast.

There are more people keeping you and her in their thoughts than you can probably even imagine.

And it's a GOOD thing. 

 

And I'm super thrilled you've got a girly day planned this weekend.

 

Kinda jealous, actually!