mtnrider

rsd12

I probably should have posted this on special needs.. but I am on here more ; ) But I saw your post on Special Needs about Simon's Branchial Cleft.  I know there is atleast 1 mom on a Craniofacial facebook (private) I frequent that has a child with this.  There are parents with kids with all different types of Cleft (most usual is Cleft lip & palate). That is if you are looking for another resource ; )

https://www.facebook.com/#!/home.php?sk=group_141409942572798&ap=1

mtnrider

Thanks I will check it out!  It's such a rare birth defect it would be good to talk to someone else who's dealt with this!  I guess I never associated Branchial Cleft Fistula/Cyst with cleft lip and palate because they seem like very different conditions but I guess they're all related...