Oh wow, a friend's story

madelyn07 · January 2011

A good friend of mine has been dealing with IF for 4 years now. They recently relocated and started seeing a new RE. They are dealing with pretty severe MFI (the husband is a diabetic and has a few other issues) and she's always been 100% adament that she was totally fine and all of their issues were his.

They did something like 7 IUIs with their old RE and never got pregnant. This new RE recommended a lap to check for endo because apparently they were having trouble finding her left ovary and she had some other symptoms. She didn't want to do it but I talked her into it because I've always had a feeling there were other issues.

She had her lap today...she has no left ovary or tube, her right tube is severely scarred and not connected. Surprise

How on earth was this missed? Did their first RE and their new RE not require an HSG? I'm totally blown away. No wonder their IUIs didn't work..:/

I'm totally shocked. They were already planning on doing IVF w/ICSI soon so obviously that will bypass the tube issues but still, wow...

LCS040209 · January 2011

wow, that is shocking and ridiculous!

abvernon · January 2011

OMG! that really shocks me how something this severe was never caught!! That makes me mad.

Nature Lover · January 2011

does she live in Florida? I am convinced that all of the REs down here are totally incompetent!

The things that happened during my testing blew me away too. But this is just rediculous! She should call them and threaten to go after them for malpractice if they don't return her money for all of those IUIs (were they OOP?).

vanessagorc · January 2011

That's INSANE!!!!!! How did she even ovulate, if the tube wasn't connected????

kthappy76 · January 2011

Wow! Sounds like someone's RE didn't do a very good job. That sucks, but hopefully now they will have success knowing what they are dealing with.

erinandbrockv · January 2011

I am not understanding how that could be missed. Wouldn't that be seen on monitoring for an IUI? At least the ovary. I would DEMAND my $ back from that old RE stat. I would also file some sort of complaint. That has GOT te be a HUGE deal.

jamielynnohio · January 2011

I think my eyes about popped outta my head and my chin hit the floor reading this! How awful. My heart aches for her and her DH. All of that heartache of IUI for what?omg. I don't even know what to say!

My last RE never required an HSG for my IUI's. And now knowing what I know about the test I can't believe everyone struggling doesn't have to have this done before anything. It explains so so much! Huge hugs to your friend!

erinandbrockv · January 2011

vanessagorc:
That's INSANE!!!!!! How did she even ovulate, if the tube wasn't connected????

I had (they are now removed) blocked tubes, and you ovulate the same way if they are blocked. The egg is just absorbed. But I can not wrap my mind around the fact that they never noticed a missing ovary!! WTF!

jjabs18 · January 2011

How does something that serious go unnoticed? Was she monitored at all during any of her IUI's? She needs to demand any money back and report the RE that she worked with. I agree with your question though, didn't either RE require a HSG?

katerena · January 2011

Oh wow!!! That sounds like serious negligence on her old RE's part!!!!

inlovewithB · January 2011

Nature Lover:
does she live in Florida? I am convinced that all of the REs down here are totally incompetent!
The things that happened during my testing blew me away too. But this is just rediculous! She should call them and threaten to go after them for malpractice if they don't return her money for all of those IUIs (were they OOP?).

Where are you in Florida? I am Northeast and I feel pretty good about my doc.

inlovewithB · January 2011

jjabs18:
How does something that serious go unnoticed? Was she monitored at all during any of her IUI's? She needs to demand any money back and report the RE that she worked with. I agree with your question though, didn't either RE require a HSG?

This is what I was thinking!

madelyn07 · January 2011

Yeah, it just all seems so crazy. Something doesn't add up to me, though, because I know of the clinic she used to go to (I have another friend back home that goes there as well) and they are a very reputable clinic..I know she had monitoring during her IUI cycles and I also know this clinic does (and to my knowledge requires) HSGs so it just doesn't add up to me at all.

I can't imagine that they'd let someone talk them out of doing an HSG because all of their presented issues were MFI but, I guess, who knows...

vanessagorc · January 2011

erinandbrockv:

vanessagorc:
That's INSANE!!!!!! How did she even ovulate, if the tube wasn't connected????

I had (they are now removed) blocked tubes, and you ovulate the same way if they are blocked. The egg is just absorbed. But I can not wrap my mind around the fact that they never noticed a missing ovary!! WTF!

But no way for the missing one, right? UGH this poor woman!

NicoleeBonsai · January 2011

holy.mackeral. that is *shocking*. total negligence by, at the very least, her first RE.

how is she taking it? poor thing must be devastated.

SLPMel · January 2011

madelyn07:
Yeah, it just all seems so crazy. Something doesn't add up to me, though, because I know of the clinic she used to go to (I have another friend back home that goes there as well) and they are a very reputable clinic..I know she had monitoring during her IUI cycles and I also know this clinic does (and to my knowledge requires) HSGs so it just doesn't add up to me at all.

I can't imagine that they'd let someone talk them out of doing an HSG because all of their presented issues were MFI but, I guess, who knows...

I had a friend at the clinic I went to that her RE forgot to test her and suggested IVF with ICSI based solely on her DH's MFI. Turns out she was hypothyroid and got pregnant on her first cycle on Synthroid.

Even good ones make mistakes-but this is a HUGE one, and I'd be demanding my money back.

redsoxbono · January 2011

That is absolutely insane. I can't believe an RE would not check something that is so basic. I hope that the IVF works for them!

madelyn07 · January 2011

NicoleeBonsai:

holy.mackeral. that is *shocking*. total negligence by, at the very least, her first RE.

how is she taking it? poor thing must be devastated.

I'm not sure, I haven't talked to her, DH talked to her husband. I'm hoping her husband was mistaken or something, that maybe they said they had to remove the ovary/tube or something. I don't know, it just seems so strange.

scooterq · January 2011

Oh wow!! This is shocking! I really hope her H was confused or mistaken! If not, there is definitely some major negligence there!

Jlynn3 · January 2011

Wow... just wow... That is insane!

butterfly843 · January 2011

That is just crazy that her other dr totally missed that.

inlove731 · January 2011

Oh my gosh! Is she ok?! That is some devastating news, especially after all the treatments they have already been through.

SweetDahlia · January 2011

That is so sad and very crazy. I can't believe the other Dr. never looked into more than just him.

bluebabka · January 2011

This! Holy cow! How does this happen? I hate to push legal claims etc... but filing a complaint and demanding money back sounds like a good idea.

mm29 · January 2011

Wow, unbelievable! I would be requesting my money back from all my IUI's!

ladyprof · January 2011

Nature Lover:
does she live in Florida? I am convinced that all of the REs down here are totally incompetent!

The things that happened during my testing blew me away too. But this is just rediculous! She should call them and threaten to go after them for malpractice if they don't return her money for all of those IUIs (were they OOP?).

On a side note to the sheer ridiculousness of this story - I recently visited my in-laws in Orlando and dealt with a fabulous RE in that area if you're in the same area.