TTC After a Loss 6 Months+

RE Appointment Update (really long)

After waiting for 30 minutes for my appointment....GRRRR normally they got us back before our appointment time. 

I found out that my AMH level was .5 so this is also an indicator that I have low ovarian reserve.  We will be doing another IUI and then looking to move on to IVF.

The doctor wants me to have some more blood tests done.  I am looking into seeing if they would be covered or not.  The RE thinks that I might have an antibody that is attacking my eggs which might be one of the resasons that I have a low reserve.  The other thing that he is wanting to test for is Fragile X syndrome (FXS).  This is the test that I am worried about because my DH really wants to know the answer to this test and I am doubting that it will be covered.  I really hope and pray that it will be covered.

We were supposed to meet with the IVF coordinator, but after waiting 30 minutes we finally had to leave so that we could get to work.  I called and set up an appointment with her before my appointment on the 12th so hopefully we can figure out everything then. 

I also called another RE in Pittsburgh to see about transfering there.  They are open over the weekend and also offer financing options.  I am going to wait and see what the IVF coordinator has to say on the 12th, but then we might be moving practices.  I do not look forward to a 3 hour drive, but we are already driving an hour and at this point we have to do where we can afford to have the proceedure done.

Possibly the worst news of all is th fact that none of my medications will be covered.  I signed up for the insurance through my work because I knew even though they did not offer IUI or IVF coverage that the pharamacy coverage looked good.  I called back during my open enrollment to see about what they covered....Oh we cannot talk about coverage until you are a member, but you can look at the formulary and speciality drug list and see what is covered.  Well, low and behold the only drugs that are not covered are fertility drugs.  I called yesterday to confirm my co-pay and when the woman said $595.  My mouth just dropped, I was expecting her to say $125.  Come to find out that my plan does not cover any fertility meds.....GRRRRRRR  I only got this insurance to cover these meds because the rest of it is crap.

Thanks for reading if you made it this far.  I just hope that today is a better day than yesterday.

Lilypie Premature Baby tickers IVF #1 BFP Beta #1 528 & Beta #2 1514

Re: RE Appointment Update (really long)

  • I hope that your day is truly better than yesterday...Sounds like you're finding the right fit in terms of a medical practice, but what a bummer about the co-pay. I Grrrrred right along with you as I read that! Ridiculous.
    Lilypie First Birthday tickers
    BFP #1: 07/10/2009, Missed m/c, D&C 08/12/2009
    BFP #2: 01/31/2010, Identical Twins died in utero due to TTTS, D&E 05/19/2010
    BFP #3: 09/16/2010, natural m/c 9/21/2010
    PCOS & Bocornuate Uterus Dx 1.4.2011
    BFP #4: 01/11/2011
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  • That just sucks that they wouldn't give you the specifics about the plan until you were signed up! I would be pissed and complainer to HR that you didn't get adequate info about the coverage to make an educated decision.  I hope that you have some good options for financing at which ever office you choose.  Here's hoping for a better day!
    Brenna Married 4.30.05

    Mom to Teagan 4.11.07 and Cora 9.30.11

    imageLilypie Fifth Birthday tickers

    Lilypie First Birthday tickers

    D&E @ 22w 9.30.09 CMV infection BFP 10.15.10 C/P 4w4d

  • I am sorry about your day yesterday; the wait of the appointment and the news about the medications! My fingers are crossed that the last IUI works for you so you don't need to move on to IVF. I hope today is better for you! :::hugs:::
    Started TTC in 2/09. Dx with PCOS in 09/09. BFP on 11/7/09.
    Dx with Ectopic on 12/7/09. Laparoscopy, D&C, and lost my left tube on 12/08/09.
    01/11 = BFP!
    Finnegan Alexander born 9/25/11 via emergency c-section
  • Oh hun. I really hope that your day is better than yesterday! Money issues aside, it looks like you guys have a great game plan going which is so good. Best of luck to you. FX that the IUI sticks!


    BFP#1 {Cashew} - 9.19.09 EDD 5.26.10
    The day you first lay in my arms, you made my life complete.
    Aurora Rose born sleeping at 35w on 4-21-10
    BFP#2 {Almond} - 2.1.11 EDD 10.12.11 C/P 2.11.11

  • I hope your insurance covers some of the tests. Its really stupid when they won't cover tests that help you figure out why you can't get or stay pregnant.  Ugh, I hate insurance.  Also the meds situation suck.  I can't believe they wouldn't tell you before you signed up what was covered.  That's awful.

    GL with the IUI and i hope you get to do the IVF consult soon.  Hopefully they will have some ways for you to be able to do it (semi)locally.  Of course, I'm just hoping the IUI works for you!

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  • How frustrating! I'm sorry your meds aren't covered. I hope today is better for you.

    BFP 12/18/2009. HB 1/4/2010. NO HB 1/18/2010. D&C 1/19/2010
    April 2011 IUI #1 BFN. High FSH and other issues.
    May 2011 Chose to build our family through adoption
    September 2011 Actively waiting for a match
    11/26/11 Surprise BFP * DD born 7/23/12 Baby Birthday Ticker Ticker
  • I'm sorry about the insurance, that really sucks.  I have low ovairian reserve and we are talking about the Fragil X test as well, or some other kind of anti-body.  If you want someone to talk to about it, I'm available, but know very very little.
    imageimage
    Be kinder than necessary, for everyone you meet is fighting some kind of battle!
    April 2011 CP @ 5 weeks
  • Kristy we can definitely talk.  Are you getting the test done?  My RE has three tests that he wants me to have done.  I will look up their names and let you know what they are.
    Lilypie Premature Baby tickers IVF #1 BFP Beta #1 528 & Beta #2 1514
  • I'm sorry you had a bad day yesterday and about the stupid insurance!  That's so frustrating!  I don't know much about any of the tests, but I wanted to say good luck.
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  • imageDoingItRight:
    Kristy we can definitely talk.  Are you getting the test done?  My RE has three tests that he wants me to have done.  I will look up their names and let you know what they are.

    I'm not sure.  I'm leaning towards no.  Dh would like me too, but I don't think it will change anything for us, it will just be more information.

    imageimage
    Be kinder than necessary, for everyone you meet is fighting some kind of battle!
    April 2011 CP @ 5 weeks
  • i'm sorry about your AMH level.  (i'm still waiting on my results but i have a feeling mine won't be good either.) 

    Insurance just sucks.  i'm really afraid of the cost of everything.  i'm going to make a call soon to ask some questions myself.   hopefully some more testing is covered.  maybe the other RE has a better payment plan.  GL! 

    Image and video hosting by TinyPic 8.15.07 NATHAN 6.13.09 - 6.14.09 WYATT born 32w3d Gone too soon, RIP. 4.21.10 BFP - missed m/c - D&C on 5.27.10. 1.31.11 BFP - 1st cycle IUI + Follistim + Trigger (2 mature follies)Beta 1 @ 13dpiui: 199 Beta 2 @ 15dpiui: 527 10.7.11 ELIANA(Ellie)ROSE (39w3d)Team Green turned Team Pink - VBAC & ALL NATURAL 6lbs 11oz 19 &1/2in
  • imageKristysRedBarn:

    imageDoingItRight:
    Kristy we can definitely talk.  Are you getting the test done?  My RE has three tests that he wants me to have done.  I will look up their names and let you know what they are.

    I'm not sure.  I'm leaning towards no.  Dh would like me too, but I don't think it will change anything for us, it will just be more information.

    DH wants me to have the fragile X test because it can mean a lot of bad things if I were to have a son.

    Lilypie Premature Baby tickers IVF #1 BFP Beta #1 528 & Beta #2 1514
  • I'm really sorry. 
    m/c 7/17/10
    Dx: MFI- 3% morph
    IUIs: Gonal-F + Ovidrel + b2b IUI= BFNs
    IVF with ICSI= BFP! EDD 11/25/11
    3/18- Beta #1 452! 3/20- Beta #2 1,026!! 3/27- First u/s- TWINS!
    Our twin boys arrived at 36w5d due to IUGR and a growth discordance

    FET: Medicated FET moved up to 5/23 due to ovulation
    Transferred a 6BB hatched blastocyst- genetically normal female embryo
    BFP! 5/28- 5dp6dt      
    6/1 Beta #1- 223! 6/3 Beta #2- 567!

    image

    Be kinder than necessary, for everyone you meet is fighting some kind of battle.
  • And yet some 80 year old dude's Viagra is covered, no doubt.

    I'm sorry to hear about your medications not being covered.  That sucks.  I'm astounded at the cost of those.

  • imageDoingItRight:
    imageKristysRedBarn:

    imageDoingItRight:
    Kristy we can definitely talk.  Are you getting the test done?  My RE has three tests that he wants me to have done.  I will look up their names and let you know what they are.

    I'm not sure.  I'm leaning towards no.  Dh would like me too, but I don't think it will change anything for us, it will just be more information.

    DH wants me to have the fragile X test because it can mean a lot of bad things if I were to have a son.

    I get that, and that's one reason we're considering it, but for us I'm not sure it will matter because we won't be doing IVF, so it wouldn't change how we do anything, except it might make us stop ttc altogether. 

    imageimage
    Be kinder than necessary, for everyone you meet is fighting some kind of battle!
    April 2011 CP @ 5 weeks
  • I'm sorry.Insurance is a pain in the butt!
  • I?m sorry about your insurance not covering your meds, that sucks! I hope the rest of your plan goes smoothly and more stuff is covered. Good luck!

    BFP #1 4/22/10 MC 5/5/10 (6w4d) EDD 12/25/10
    BFP #2 10/19/10 CP 10/27/10 (4w6d) EDD 6/30/11
    BFP #3 5/10/11 Lucas Abelardo born 12/29/11 at 37w3d
    BFP #4 12/10/12 MMC 1/14/13 (9w3d) D&C 1/15/13 EDD 8/16/13 

    BFP #5 8/22/13 Lucia Elizabeth born 4/17/14 at 38w
     
    Lilypie Third Birthday tickers



    Lilypie First Birthday tickers

  • I'm so sorry about the insurance crap.  I had the Fragile X test and a bunch of others and my insurance did cover everything.  I hope the IUI works for you and you can skip the whole IVF process.

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  • Insurance sucks donkey balls.  Why should we have to pay through the nose for the priviledge of having children?   Isn't that the God-given right of humans?

     ::Stepping off soapbox::  I hope that the finale of all of this is a beautiful baby (or two) in your arms.

  • I'm sorry about the long wait and insurance issues.  It's so frustrating.

    I did the fragile x testing and the result was a moderate repeat - we met with the genetic counselor extensively to learn what that meant (for us, nothing, but our child might have implications).  I hope your result is normal and that insurance covers the testing.

    Good luck with the consult and I hope you don't need to go to the RE further away.   

  • Insurance companies are such assholes. Big, hairy, stinky assholes. I hate them.

    I hope the RE visits are helpful. 

  • Insurance companies are such pains, I can't believe they wouldn't help you out figuring if your meds were covered on it till you became a member. Hope the coordinator has some good financing options for you. If you have any ivf questions let me know, I have done 3. Hopefully the IUI will work for you guys and you won't have to move on to ivf.

    Jenn

    image 3 IUI's all BFN

    IVF#1 BFN IVF#2 BFP, loss at 19 weeks FET#1 BFN IVF#3 BFP, m/c FET#2 BFN

    Missing our twins Zachary and Madison, lost at 19 weeks on 11/13/09, edd 4/9/10

    BFP 7/17/10, m/c 7/25/10, edd 3/25/11

    Ectopic, lost left tube 4/20/11, edd 12/6/11

    my blog

  • I really hope that you are able to have the b/w covered - at least that will be one less worry.  I am sorry about the insurance coverage - that really sucks.  I have coverage, so I don't know a lot about OOP meds, but maybe the girls on TTTC or IF would be able to give you some suggestions. 

    If you don't mind my asking, which RE are you looking at in Pittsburgh?  Since I live there my RE is there and there are several, but I just wondered who you called.  You can PM me if you want.   I really like mine and they are open almost every day of the year except 2 I think - Christmas and maybe Thanksgiving.  I really like them.

    I hope this next IUI works and you don't have to worry about IVF and all the meds.  Good luck!!

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  • imagegrr_aargh:

    And yet some 80 year old dude's Viagra is covered, no doubt.

    I'm sorry to hear about your medications not being covered.  That sucks.  I'm astounded at the cost of those.

    Ugh, ain't that the truth?  

     I'm so sorry about the insurance situation.  That's ridiculous. I would also be complaining to HR. 

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