Yet another post asking for WTF appt questions (paif/saifw)

theworms

Ok, I'm finally ready to email RE a bunch of questions I want to go over during our WTF. 

I got some great suggestions from the other posts I've seen but wanted to make sure I'm covering everything.  

Thanks

I want the following testing done

Karyotyping

Immune Testing (I've done intralipids last 2 cycles (FET & IVF), so if testing doesn't show any issues, should we remove it from protocol?)

other

I'm going to meet with a hematologist that works with IVF patients and clotting issues, going to see if protrombin (sp) is cause of m/c and if it is, what dose of lovenox should I be on and when in my cycle should we start it

Does he think m/c are from gene mutation?

Do I need a repeat hysteroscopy?

Are my perfect expanded blasts just genetically not viable?  Should we consider CGH testing?

Should we do FET with last 2 frosties or another fresh cycle?  Why?

Has he spoken to other RE's about my issues and do they have any insight (Dr. Sher and Dr. Braverman specifically)?

Would it be helpful to get a 2nd opinion from CCRM? (we can set up phone consult and it's free

any other testing he thinks might help that I haven't mentio

 

 

Edwina.McDunnough

Have you performed RPL tests?

TSH levels? I hear even high-normal levels can be bad. What about SCSA for DH?

theworms

Edwina.McDunnough:

Have you performed RPL tests?

TSH levels? I hear even high-normal levels can be bad. What about SCSA for DH?

I have done RPl and clotting disorder testing

I will ask about TSH levels and we're using DS (he's a proven donor) but want to ask if I should try another donor.

thanks cutie

SweetDahlia

Those look like great questions. I wouldn't know what else to add. It is an interesting thought about getting a new donor.

 

Edwina.McDunnough

I really hope that you get some answers and a plan.

LaneCA

OK - this may be random...but regarding your donor....could you have a DQ-Alpha match w/ him?

Other than that -- everything else looks great. Best of luck at your WTF ?

patchen30

I can't think of anything else. 

Does SIRM do CGH though or PGD?  I heard that in NY state there are strict laws governing chromosome testing and there's red tape preventing the testing of all 23 chromosomes. 

07may07

That seems like a good list of questions worms!  I may borrow one or two for my WTF!

Good luck at your appointment.  I hope you come out with some good information and a great plan to move forward.

theworms

patchen30:

I can't think of anything else. 

Does SIRM do CGH though or PGD?  I heard that in NY state there are strict laws governing chromosome testing and there's red tape preventing the testing of all 23 chromosomes. 

they do CGH

they have clinics all over US so they send the embryos to another state for testing, I want to say NJ, I think they use same lab as CCRM

ginger67

I am so frustrated for you! When I was seeing the hematologist he told me they dont do any testing to make sure your on the right dose of Lovenox. Your either on a preventative dose of 40 a day or a treatment dose, mine  I believe was 90 2X a day when I was stimming and on estrogen patches.

However, when I saw the MFM one of the first things they did was do BW to see if I was on the right dose of Lovenox. They put me on 40 2X a day.  

Im impatient for you. If you could do a FET sooner then you could do a fresh cycle I personally would do that.  

Ginger71

I 2nd the RPL testing  Maybe it is the donor....it's so hard becasue the clinics expect you to do all the work and they won't even comment on the donor. What if you miss something? I will always wonder if I did something wrong in picking our donor.

Good luck, Worms. I really hope you get some info. that will help you and more than the "wrong side of the odds" answer. I hate that.

etoyama

Those seem like great questions, Worms. I hope your WTF brings peace to your heart. Big (((HUGS)))

steveandkim2

I can't think of anything else to add---just wanted to wish you all the best sweetie!

grazy

When I had the chemical pregnancy, my RE did chromosomal testing on DH and me.

He also tested my vitamin D. Some studies show that very low vitamin D can cause miscarriages. Turns out mine was extremely low. I was put on a once-a-week prescription of it, and now it is back to a normal range. Just something else to think about I guess.?

Sending you lots of hugs!?

PoeticJustice

((HUGS)) Wormsie these are good points. I never thought about changing donors that is good food for thought as well...

Jenny952

Worms, I don't have any more advice for you but wanted to wish you well at your WTF appointment.  I hope you get all of your questions answered... my heart aches for you and DH, and I pray for a baby for you.  (((hugs)))