2 month appt: heart murmur

longhorngal

anyone have experience with heart murmurs and having a hole in the heart...what procedure was done....etc.....i am just researching..we will get an echo done soon tia

chrisbride04

DS was born with a ventricular septal defect, or a hole in the ventricular area of his heart. It was diagnosed at a few days old. Surgery was recommended if the hole did not close on it's own by age 12 months. DS had open heart surgery to repair the hole at 11 months old. He has no health issues or physical restrictions and we now see the cardiologist for annual checkups only. We were fortunate that DS was always asymptomatic except for being on the low end for his weight. The way it was explained to us was that a large number of holes either close up on their own or remain small enough to not cause any issues.

LisaK2b

my co worker's son had/has a heart murmur and they said that he'll eventually grow out of it.  There are different kinds of heart murmur and one is "normal" where the kid grows out of it without any issues.  He's 3 now and seems perfectly fine. 

PAGAS

F has a murmur, the pedi doesn't always detect it, it comes and goes.  We are monitoring it, but not doing any testing until she is older.

I was born with a hole in my heart, my tricuspid valve is abnormal, from what I understand, I am missing one of the three flaps.  I also have Mitral Valve Prolapse.  The only issues I ever had was that I had to take antibiotics before I went to the dentist and I couldn't have anything pierced.  The antibiotics are no longer necessary (not sure if this is the case across the board or just for me) and I still have nothing pierced.

I underwent lots of testing as a child at National Children's Hospital and I continued to have Echos done until I was in my 20s. 

 

lilycat

A murmur is generic for an off-sounding heart. Both of my boys had murmurs. One is something (but not too concerning); the second has one that is a ghost.

The first had a couple of defects (found through the echo) that are the type that should heal themselves. He'll have to go back to check when he's older. 

The second had one that kept him in the NICU the first couple of days of life (that and rapid breathing). They did an echo then and found nothing. TCH cardiology visited Woman's and could not hear it.

They repeated tests at 6 mos. and found nothing, but heard it. His problem is something that is like a ghost -- doctors will hear it whenever he is in distress (high fever, just been born, etc.), but it is nothing of concern. According to the TCH cardiologist, we can tell any doctor that, because he guarantees they'll hear it again when he's in an ER situation at some point.

I forget all the scientific names for these issues.

I hope you have an equal amount of much ado about very little. Good luck. The testing isn't concerning; these guys are very good with running echos on babies and knowing what to do. 

Temp38995750004016

My younger sister had a hole in her heart, I think it was detected around 6 weeks. She never had surgery, but went for regular check ups on it all throughout childhood. She also cannot have certain dental procedures done because of it, but it has never caused her any real issues. She was athletic as a pre-teen and all through high school with no issues.

JW88

My baby was born with 2 holes in her heart.  We have had numerous echo cardiograms and EKGs done.  We meet with her cardiologist every two months to monitor it.  One of the holes as already closed on its own and the other has a 50/50 shot of closing.  She also has a defect with her pulmonary valve, it just doesn't open and close properly.  The doctors can hear the heart murmur, but are not worried.  Her cardiologist recommended that we wait till she is about 5 to see if it closes, if it hasn't closed by then, she will have surgery.  Hope this helps!