Anyone have endometriosis?

Mommy2Max

I am having a few symptoms that when I google them it brings up endometriosis which of course has be very worried since Tim and I are TTC as of last month (my last cycle was unsuccessful).

What were your symptoms?  What have you done as far as a treatment plan goes?

I am petrified that this could be my diagnoses.  I can't handle anymore on my plate, so this is not what I need right now.

Any advice is appreciated.

Thank you.

stillwaiting12

I don't personally, but I have a few friends who do. I have heard them say they have pretty heavy and pretty painful periods and sometimes painful intercourse. Those are the only symptoms they have talked about.

little-peanut

My sister has it and she sees dr. Sheiber for her treatments.  Although she is not TTC she says it is not terrible and its managable with certain meds.  I hope you find some answers and can move on to being successful with your TTC plans!

AgathiP04

I am undergoing steps to a diagnosis of endo.  My understanding is that you need a laparoscopic surgery to determine if you have endo.  If you do, then it can be cleaned up during the surgery.  You also may have scar tissue damage/adhesions from your two c-sections.  My OB is pretty sure I have adhesions and again is going to do the laparoscopy surgery to find out.  I have the surgery a week from today.  He said he won't be 100% sure if I have endo until after the surgery.  It could all be due to scar tissue from my c-section.  Don't wait to get answers.  Call and schedule an appointment to talk to your OB and find out.  I waited too long and got the run around from several OB's.  Now my son is going to be 5 before I'm able to have another baby.  Good luck!

ETA: I am fairly new to anything Endo related, so any experts, please correct me if I am wrong.  I'll update you on the results of my surgery!

notguilty

I found out I had endo when I had an ovarian cyst removed.  I was 29 at the time.  I suspected I had endo because my mother had it (until she went through menopause) and I had similar symptoms of extremely heavy periods and bad cramps.  I was told after my surgery that I "might" have difficulty conceiving a child, but that there had never been a direct link established between infertility and endometriosis.  I was told, and I read, that some women with endo have difficulty and some do not.  I am lucky that one of my BFFs is an ob/gyn and she was quite frank with regards to the scientific reality of the situation.  Oh, and I was told that my lady parts were basically a tore-up mess. 

 I figured that was it and I wouldn't have kids.  I had many problems on any form of birth control and decided to stop BCP because I was having three week periods on hormones.  It was awful.  I stopped BCP and had regular, albeit horrible, periods.  I just happen to have a high tolerance for pain. 

Long story short and without TMI (I hope!), I conceived my DD after one night of "relations" without protection. 

 I wouldn't freak out after one cycle of trying.  There are tons of drugs, including Lupron that can help with conceiving.  Lupron sends your body into a psuedo menopause, but it helps many women with endo conceive. 

I wish you the best of luck with this situation.  I wouldn't wish what I have on anyone.  It's a very painful and difficult condition to have.  At the same time, there are many treatment options available.  If you are having horrible periods with mind-numbing cramps and the most ridiculous amount of blood flow than you may want to jump the gun and have someone take a look.

ahnichols

Definitely don't freak out yet.  Personally, my insides are a mess from it.  I don't know that I had a lot of "symptoms" because I just thought what I was experiencing was normal for me.  As it progressed, I began having such bad periods that I had to stay in bed for 1-2 days of my period.  It was debilitating.  There is no way for them to know for sure that you have it or not without laproscopy.  I could go on and on about how it caused a lot of fertility issues, but I don't want to freak you out.  Bottom line is I have one more month of pregnancy left before I get to see my precious little girl.  My suggestion for you is to talk with your doctor about it and explain why you think it's a possibility.  There are many ways that they can handle it and keep it from getting out of control.  Lots of luck!

buckeyethor

i don't have it nor do i know your symptoms but i will say that stress can do awful things to your body. and you definitely don't need anything else on your plate right now!