About the replies to my endo post earlier...

jesh1111

I went ahead and posted some info about it on the post when I had a break at work but I never expected to be flamed for that post but wanted you guys to know that it is an acutal thing that happens to less than 1% of c-section patients. I was looking for a little support and not "that's the stupidest thing I have ever heard"

Abdominal wall endometrioma is a clinical entity characterized by presence of a tumor located somewhere inside a surgical scar, most frequently after cesarean section, although it has been described after hysterectomy or laparotomy. It is associated with episodes of periodic pain confirmed by histopathologic examination. Our objective was to describe a characteristic triad of periodic pain, tumor, and history of cesarean section in a group of patients.

Sorry to be a PW and bring it up again but I was really hurt by some of the replies.

amandaloren

Where is this post at?? Did you dd?

jesh1111

next page, a few posts down.

LindsayM

I think it's ridiculous what some people will flame others for around the knot, nest, & bump boards. Obviously, we're not medical dictionaries with the knowledge of what issues do & do not exist. 

My sister had a c-section in 2002 and actually had to undergo lap before they were able to successfully conceive due to endo. Oddly enough, she also developed this type of endometira in her scar tissue several months after delivery. Luckily, she's had no problems with it since removal.

Good luck & hope you feel better soon!!  

NikkiBenzo

I don't blame you for being annoyed at the response you got. I love when people here think they are doctors.

SaucyRedhead

You were not flamed.

Only one person responded harshly. That does not equal flamed.

jesh1111

LindsayM:

I think it's ridiculous what some people will flame others for around the knot, nest, & bump boards. Obviously, we're not medical dictionaries with the knowledge of what issues do & do not exist.?

My sister had a c-section in 2002 and actually had to undergo lap before they were able to successfully conceive due to endo. Oddly enough, she also developed this type of endometira in her scar tissue several months after delivery. Luckily, she's had no problems with it since removal.

Good luck & hope you feel better soon!! ?

Great to hear she had no problems. My dr told me he had to remove a very large mass years back from a woman with the same issue. Also that he does not see this happen very often so it is rare.

thanks for the reply.

LnR70707

Maybe you should have posted that in your OP instead of being all alarmist on a board where some might actually think you can "catch" endometriosis.  There is nothing medically proven that your endometrioma was solely caused by your c-section.  Yes, soft tissue endometrioma's are very rare, but it certianly doesn't indicate full blown endo (which is good, be happy about that).  That was my point.  

SmlTownGirl87

SaucyRedhead:

You were not flamed.

Only one person responded harshly. That does not equal flamed.

*Butting in*

Saucy, just stalked your chart (saw the 7dpo and got curious). Your temps look great! Good luck!

SaucyRedhead

SmlTownGirl87:

*Butting in*

Saucy, just stalked your chart (saw the 7dpo and got curious). Your temps look great! Good luck!

Thank you!

My charts are usually pretty deceiving though...we shall see what happens! Thanks for the luck!

kscarlett5683

I thought the reply was a bit mean...and ignorant sounding actually. Unless you are an OB/GYN, one couldn't possibly be able to comment.

Good for you for your reply!

LJR 84

kscarlett5683:

I thought the reply was a bit mean...and ignorant sounding actually. Unless you are an OB/GYN, one couldn't possibly be able to comment.

Good for you for your reply!

I agree.

OP- Just ignore the ignorant ones.

cantalopes24

L&R70707:

Maybe you should have posted that in your OP instead of being all alarmist on a board where some might actually think you can "catch" endometriosis.  There is nothing medically proven that your endometrioma was solely caused by your c-section.  Yes, soft tissue endometrioma's are very rare, but it certianly doesn't indicate full blown endo (which is good, be happy about that).  That was my point.  

This. Causation and correlation are not the same thing. You can get endo on a cesection scar but it is not caused by the cesection itself.

jesh1111

cantalopes24:

L&R70707:

Maybe you should have posted that in your OP instead of being all alarmist on a board where some might actually think you can "catch" endometriosis.  There is nothing medically proven that your endometrioma was solely caused by your c-section.  Yes, soft tissue endometrioma's are very rare, but it certianly doesn't indicate full blown endo (which is good, be happy about that).  That was my point.  

This. Causation and correlation are not the same thing. You can get endo on a cesection scar but it is not caused by the cesection itself.

yes, it is the cause, "It is also likely that direct transfer of endometrial tissues during surgery may be responsible for the endometriosis implants sometimes seen in surgical scars (for example, episiotomy or Cesarean section scars" https://www.medicinenet.com/endometriosis/article.htm

You get endo on a c-section scar from transfer of tissue during surgery. It is not the same as having traditional endometriosis where the cells are deposited to other areas during AF.

cantalopes24

jesh1111:

cantalopes24:

L&R70707:

Maybe you should have posted that in your OP instead of being all alarmist on a board where some might actually think you can "catch" endometriosis.  There is nothing medically proven that your endometrioma was solely caused by your c-section.  Yes, soft tissue endometrioma's are very rare, but it certianly doesn't indicate full blown endo (which is good, be happy about that).  That was my point.  

This. Causation and correlation are not the same thing. You can get endo on a cesection scar but it is not caused by the cesection itself.

yes, it is the cause, "It is also likely that direct transfer of endometrial tissues during surgery may be responsible for the endometriosis implants sometimes seen in surgical scars (for example, episiotomy or Cesarean section scars" https://www.medicinenet.com/endometriosis/article.htm

You get endo on a c-section scar from transfer of tissue during surgery. It is not the same as having traditional endometriosis where the cells are deposited to other areas during AF.

This is a direct quote from an actual medical journal

Endometriosis is defined as the presence of functional endometrial tissue outside the uterine cavity.^[1],[2] The most common sites of involvement, in decreasing order of frequency, are the ovaries, pelvic peritoneum, deep pelvic subperitoneal spaces, the intestinal system, and the urinary system.^[1] Scar endometriosis is a rare disease which is difficult to diagnose.^[3],[4] The diagnosis is frequently made only after excision and histopathology of the lesion. Cases of scar endometriosis of the abdominal wall following various obstetrical and gynecological procedures have been reported.^[2],[3],[4] However, endometriosis of a uterine scar is extremely rare.

Here is the link https://www.ijri.org/article.asp?issn=0971-3026;year=2008;volume=18;issue=1;spage=66;epage=68;aulast=Lahiri

I doubt that just by describing symptoms to your doctor they correctly diagnosed you with endo.

Mrs.Umm

jesh1111:

cantalopes24:

L&R70707:

Maybe you should have posted that in your OP instead of being all alarmist on a board where some might actually think you can "catch" endometriosis.  There is nothing medically proven that your endometrioma was solely caused by your c-section.  Yes, soft tissue endometrioma's are very rare, but it certianly doesn't indicate full blown endo (which is good, be happy about that).  That was my point.  

This. Causation and correlation are not the same thing. You can get endo on a cesection scar but it is not caused by the cesection itself.

yes, it is the cause, "It is also likely that direct transfer of endometrial tissues during surgery may be responsible for the endometriosis implants sometimes seen in surgical scars (for example, episiotomy or Cesarean section scars" https://www.medicinenet.com/endometriosis/article.htm

You get endo on a c-section scar from transfer of tissue during surgery. It is not the same as having traditional endometriosis where the cells are deposited to other areas during AF.

Or...it's scar tissue. Which you get on a...wait for it...scar. Any scar, any place. It's also lumpy, painful and can be irritated by muscle movement.

How exactly did your doc confirm this without any further testing? Why jump to a rare and complicated issue over the obvious?

When you hear hoof-beats, think horses, not zebras.

 

jesh1111

I went in had an exam etc. Dr told me it is not 100% until the tissue is removed and tested.

Sweets11

jesh1111:

cantalopes24:

L&R70707:

Maybe you should have posted that in your OP instead of being all alarmist on a board where some might actually think you can "catch" endometriosis.  There is nothing medically proven that your endometrioma was solely caused by your c-section.  Yes, soft tissue endometrioma's are very rare, but it certianly doesn't indicate full blown endo (which is good, be happy about that).  That was my point.  

This. Causation and correlation are not the same thing. You can get endo on a cesection scar but it is not caused by the cesection itself.

yes, it is the cause, "It is also likely that direct transfer of endometrial tissues during surgery may be responsible for the endometriosis implants sometimes seen in surgical scars (for example, episiotomy or Cesarean section scars" https://www.medicinenet.com/endometriosis/article.htm

You get endo on a c-section scar from transfer of tissue during surgery. It is not the same as having traditional endometriosis where the cells are deposited to other areas during AF.

I've heard of endo forming in c-section scars before, but again, it's incredibly rare.  Also, it still requires a laparoscopy to diagnose.

cantalopes24

jesh1111:

I went in had an exam etc. Dr told me it is not 100% until the tissue is removed and tested.

Then why in your OP did you say you were diagnosed with it?

jesh1111

Seriously, I have to describe my entire ob visit?

The area was examaned along with an internal exam. He had me lift my legs while lying on my back as he pushed to see if it was muscle related, or a hernia, he gave me a shot in the area to see what happened when the tissue was numbed, he did an internal to make sure it wasnt something on the pelvic wall hurting. He is an older man and has seen cases before and told me that it can be removed and tested during me next c-section unless the pain gets worse. The fact that the pain is during AF points to endo as opposed to the wait for it...scar hurting.

Mrs.Umm

jesh1111:

Seriously, I have to describe my entire ob visit?

The area was examaned along with an internal exam. He had me lift my legs while lying on my back as he pushed to see if it was muscle related, or a hernia, he gave me a shot in the area to see what happened when the tissue was numbed, he did an internal to make sure it wasnt something on the pelvic wall hurting. He is an older man and has seen cases before and told me that it can be removed and tested during me next c-section unless the pain gets worse. The fact that the pain is during AF points to endo as opposed to the wait for it...scar hurting.

Nope. But, thanks for playing.

My scar on my ankle hurts when I move or bump it, does that mean I have endo on my ankle, or that certain things bother it more than others. Like, inflamation (aka bloating), muscle tension (aka cramps), and position. Horses, not zebras.

jesh1111

cantalopes24:

jesh1111:

I went in had an exam etc. Dr told me it is not 100% until the tissue is removed and tested.

Then why in your OP did you say you were diagnosed with it?

Because that is what he told me it was. But yeah, I guess I could wait to post after the biopsy.

What is wrong with you guys that you are grilling me on what happened exactly in my exam? It was a scary day I wanted to vent about and instead I am getting all of this crap about not knowing 100%

 

karaknr

I'm sorry about the Dr's visit Jesh. I hope you feel better and find out some definite answers soon.

cantalopes24

jesh1111:

cantalopes24:

jesh1111:

I went in had an exam etc. Dr told me it is not 100% until the tissue is removed and tested.

Then why in your OP did you say you were diagnosed with it?

Because that is what he told me it was. But yeah, I guess I could wait to post after the biopsy.

What is wrong with you guys that you are grilling me on what happened exactly in my exam? It was a scary day I wanted to vent about and instead I am getting all of this crap about not knowing 100%

 

I get pain off and on in my cesction scar, it is not endo. Most people get pain in their scar. And yes it does get worse near AF. No one flamed you in your OP but you came back on here complaining so you opened yourself up to people critizing you, and in your OP you didn't just say you thought you had it, you were very specific about your diagnosis, etc which is what people are criticizing.

Mrs.Umm

If your doctor diagnosed something incredibly rare with no diagnostic testing, and scared the crap out of you in the process, maybe you need to find a new doctor. I wouldn't trust someone who just threw something like that out there with no back-up.

I'm sorry you had a stressful appointment, but making a new post to whine about how mean everyone was, really wasn't the best way to get your point across.

liz_t

My goodness.

Jesh, I am sorry to hear about your stressful appointment. I hope that everything works out for you. Best of luck.

 

 

katie328

Jesh, so sorry to hear you had a crappy day, and that it has been compounded here.

I can understand some of the girls concerns over the definitiveness of the term "diagnosis". However, if they were concerned with your doctors handling of the situation, perhaps a better way to say it is, "I am sorry to hear that you have been given such crappy news, but I am concerned that without diagnostic testing your doctor maybe giving you cause to worry about something that may not be an issue. You may wish to get a second opinion, or if the pain begins to go away it may not be necessary."

I hope the best for you and good luck!

paulsgirl86

I'm sorry people were hard on you, and I'm really sorry you're having this scary experience.  All growths - malignant or benign - are frightening, and I'm sure it's doubly-hard to think it might be impacting your fertility.  I hope you get good news and feel better (both physically and in terms of your anxiety) soon.

MrsHteaching4life

SaucyRedhead:

You were not flamed.

Only one person responded harshly. That does not equal flamed.

  Plus you could have just responded in your old post.  However that would have prohibited you from being the PW that you love to be.

MrsHteaching4life

So wait, I have a scar on my hand from punching through a window.  10ish years later and it still hurts and is sensitive.  zOMG I have endo in my hand then??? Shiit.

 

ETA:  I totes called my OB/GYN just now about my wrist and she confirmed it's endo.

cantalopes24

katie328:

Jesh, so sorry to hear you had a crappy day, and that it has been compounded here.

I can understand some of the girls concerns over the definitiveness of the term "diagnosis". However, if they were concerned with your doctors handling of the situation, perhaps a better way to say it is, "I am sorry to hear that you have been given such crappy news, but I am concerned that without diagnostic testing your doctor maybe giving you cause to worry about something that may not be an issue. You may wish to get a second opinion, or if the pain begins to go away it may not be necessary."

I hope the best for you and good luck!

No, I pretty much responsded the way I thought was appropriate.

soontobemrsdavis

katie328:

Jesh, so sorry to hear you had a crappy day, and that it has been compounded here.

I can understand some of the girls concerns over the definitiveness of the term "diagnosis". However, if they were concerned with your doctors handling of the situation, perhaps a better way to say it is, "I am sorry to hear that you have been given such crappy news, but I am concerned that without diagnostic testing your doctor maybe giving you cause to worry about something that may not be an issue. You may wish to get a second opinion, or if the pain begins to go away it may not be necessary."

I hope the best for you and good luck!

This exactly.  I hope you start feeling better soon!

katie328

cantalopes24:

katie328:

Jesh, so sorry to hear you had a crappy day, and that it has been compounded here.

I can understand some of the girls concerns over the definitiveness of the term "diagnosis". However, if they were concerned with your doctors handling of the situation, perhaps a better way to say it is, "I am sorry to hear that you have been given such crappy news, but I am concerned that without diagnostic testing your doctor maybe giving you cause to worry about something that may not be an issue. You may wish to get a second opinion, or if the pain begins to go away it may not be necessary."

I hope the best for you and good luck!

No, I pretty much responsded the way I thought was appropriate.

I was just trying to show her a little support and was giving my interpretation of what I was reading. I just think it would be nice if we could word our thoughts a little more politely. If you dont agree, so be it.

cheekymaree

Hey Jesh... 

I hope you feel better soon, and that your doctor gives you some more definite answers soon... I would be scared out of mind if anything half as bad as this happened to me... 

It's never a good day when you get news like this and sometimes problems can take a while to be diagnosed properly... 

Thinking of you.