Introducing myself.
erbarmywife
member
Hi. My name is Emily. Last night, I delivered identical twin girls at 26wks 2ds. Baby A (Cynthia Paige) is doing well in the NICU. Right now, she is recieving 35bpm while breathing on her own around her vent. She is also recieving 45% O2 saturation. She weighs 1lb 7oz and is 13in long. She is beautiful. I am praying for her to grow big and strong.
Baby B (Gabriella Catherine) only lived for 15 minutes, and her daddy was with her when she took her last breath. She weighed 2lbs 3.5oz and was 13.5in long. She was also beautiful. So tiny and perfect. She will live on in our hearts, but we are now missing a part of us.
So far, we know the girls had TTTS. We think that it was moving slowly, until Ella got a "true knot" in her cord about 2 inches from the placenta. Things went downhill fast. Tuesday, they were great, moving around, measuring pretty good, and by Friday, I realized I wasnt feeling them move. Sat, we discovered fluid in Ella's belly around her liver, causing it to be swollen. She also had some bright spots on her brain, which the drs think was blood.
Any words of wisdom will be appreciated. I know the NICU is a rollercoaster ride, and I just pray that the rollercoaster goes easy on us. Thank you.
Mother to Gavin, born September 11, 2007, and Magdalena, born March 21, 2009, Angel Baby MC February 13, 2010, Cynthia, born August 28, 2010 and gone September 17, 2010, Gabriella, born and gone August 28, 2010, and Abigayle, born March 12, 2012
Re: Introducing myself.
I'm so so sorry for your loss. Many T&P to your family as you miss your little angel and that you also have the strength to take care of your other baby girl during this difficult time.
FWIW Andrew was born at 26w2d as well - he had a bit of a rough time at first, but, after 117 days was home. He is doing amazing now and no lasting troubles.
Many prayers to you!
big hugs. congrats on your birth and i am so sorry for your loss. we're here for you!
Welcome to the board. There are a lot of great people on here. Feel free to ask us anything and to vent.
I am so sorry to hear of your loss, but I also want to congratulate you on your daughter's birth.
A book that I found pretty informative and helpful was:
https://www.amazon.com/Preemies-Essential-Parents-Premature-Babies/dp/067103491X/ref=sr_1_1?ie=UTF8&s=books&qid=1283132958&sr=8-1
*hugs*
Congratulations on your girls!
Welcome to the club you never wanted to join. I delivered my twins at 24w6d in July and lost my daughter when she was 3 days old. My son is doing fairly well in the NICU.
I am not sure I how any advice as the past 6 weeks are still such a blur. It is a bizarre position as you are torn between grieving and being there for your LO in the NICU. All I can tell you is to take one day at a time sometimes one hour at a time. Ask lots of questions of the docs and nurses and know that it is ok to not be in the NICU every second if you need to be with your other children.
I'm so sorry for your loss. I can only imagine the crazy mix of emotions you've been through in such a short time. Congratulations on sweet Cynthia. It will be a long road, but hopefully that road will contain more ups than downs.
My little guy was born in January at 1lb9oz (26w3d) and is now at home (after a 155 day NICU stay) and thriving.
Please feel free to ask questions as they come up...all of the ladies here are a great support.
Also, I'd recommend that you keep a journal of sorts once you feel ready. With all that was going on, it really helped me to keep track of all of my son's progress and all of the procedures he underwent. Sometimes I felt like I was more prepared than his medical team because I could page back and give them information that they weren't too clear on. It was truly a help when my mind wasn't clear to be able to be the best advocate for him that I could be.
Lots of love to you all!