Preemies

Feeling overwhelmed

Liberty is REALLY colicky, gassy, won't poop unless she has a suppository, still brady-ing during feedings (which honestly just puts me over the edge because I just don't understand why she is STILL having them), screams after feedings, and I have had maybe 6hrs of sleep in the last 36hrs which the lack of sleep/and stress from all of that is not helping me with my milk supply that I am loosing as well. Ugh.. just Ugh.. She has an appt. next week which I'm hoping we can switch her from the NeoSure because I'm pretty sure that's whats causing a lot of her discomfort. That & we are pretty sure she has Silent Reflux. I need some reassurance that it's going to not always be like this, because right now I feel like she is going to be screaming/crying/not pooping on her own FOREVER. If anyone has any advice, I'd love to hear it. I'd love to hear similar stories on if you switched from NeoSure to something else. I tried Similac Sensitive but that did NOT work at all, Did so so with GentleEase but was still having pooping problems... so any formula advice would be super nice.

Re: Feeling overwhelmed

  • Ugh! I'm sorry you are going through this. I don't think it will always be like this. Maybe you should call the pedi now and get a formula switch. We were fortifying with Neosure and stopped because it didn't agree with DD. We made the decision on our own. I'm now mostly breastfeeding, so that is not an issue, but I remember being really frustrated at first because I was afrain I was going to dry up due to stress from trying to breastfeed unsuccessfully, digestive issues with the fortifier, and not-so-silent reflux.

  • We didn't have the pooping problems you describe... well maybe kind of.  The boys would go 7-10 days without pooping, but the pedi checked them and they still had soft abdomens so we really only used Miralax as directed ... a tsp. every few days.  But on the Neosure... Joey did awful on it once home.  I was mixing it with breastmilk, but had to supplement (we didn't need formula while they were in the NICU).  He was so gassy, uncomfy, irritable.  I switched him to Gentlease at 4 months against the pedi's recommendation and it helped SO much.  I hope you find something that helps.

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  • I completely understand where you are coming form. My DS has silent reflux and we are trying to figure out what will work for him. We started Alimentum today and upped the zantac dose. I'm praying that this works because I'm about to lose my marbles! He was on neosure and the pedi is wondering if he is lactose intolerant. I dread when it's time to feed him. He screams through the whole feeding and I don't think he is taking enough now. I hope you figure out what works for your LO because I definitely know the frustration!
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  • THANK YOU SOOO much to everyone's kind words and helpful advice! I don't post much on this board, but I do lurk and read a lot of the posts & it is just soo helpful! So thanks again to everyone!

    *Update*

    So after lots of researching on the web, I decided to try Alimentum.. Let me just say that OMG it's been amazing. She has only had it 4 feeds now & I hope I'm not going to jinx it, BUT wow, she hasn't done ANY of the things I posted earlier. She is happy, smiley, not crying, and sleeping! She even slept for 4 1/2 hrs straight, woke up for her feeding, smiled during the whole feeding and then went back to sleep an hour later and has been sleeping for 3 hrs. It started working immediatly too, because after the first time I fed her she was sooo smiley and stayed awake for 4 hrs or so just smiling, she was content for a while in her swing, fussed a tiny bit when she was obviously getting tired but NOTHING like her colicky screaming nonstop for hours. Then she went right down when I rocked her to sleep, and honestly, it's been amazing. She hasn't been waking up screaming in pain either, which is a new start!  I have gotten more sleep today than I have in Weeks, and it's all thanks to Alimentum. She hasn't had one brady episode, or choked during any of her feedings either, which is a HUGE improvement as she was choking at least once during every feed. It's like she did a whole 180 and is a completely different baby :)

  • geez, seems like you are describing my baby-minus the episodes, that is the ONLY thing that stopped once we left the NICU.

     Did you do the formula switch against dr advice? Mine are 1000000000% against it, had me talk to nutritionist from the NICU who was just as against it, and wouldn't recommend anything other than the neosure, saying it is IMPOSSIBLE for the baby to change once out of the NICU...hmm, i should have them read these boards, and tell all of us that the babies do not change once home.

     

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