My world was rocked today.....We got the results form Nate's last MRI.
From his first MRI right after birth we were told he had Partial Agenesis of the Corpus Callosum and he was missing the rostrum, splenium and posterior portion of the body (all parts of the corpus callosum).
The MRI report from June 8 states: "small corpus callosum with focal decrease in thickness involving the posterior aspect of the body. This may be secondary to to a dysgenic corpus callosum" So he has the entire CC??? It is just small?
This doesn't really change anything. He is still delayed and still had low tone, hearing loss and eye issues. I am now part of the Dysgenesis of the Corpus Callosum crowd, I guess. I really hope we can get some answers from our next neurologist appointment.
This is crazy.....My mom was praying for a miracle and miraculously the last quarter of our baby'e CC "appeared". Hmmm.....Here's a pic of our miracle for those in the DACC crowd...