first off i want to thank everyone for their kind replies to my post about our phone call! i never thought i'd find so much comfort on the internet! thank you thank you thank you!!!!
we had one of our routine ultrasounds today and there was nothing but good news. baby girl is practice breathing and is swallowing and has normal muscle tone at this point! these three things are the major issues that babies with congenital myotonic dystrophy have so she's looking good! this doesn't mean that we're in the clear or that things will be fine by any means but it was so nice to hear!! also, my amniotic fluid has gone down (it was high enough for my fundal height to be at 41 when i was only 31 weeks). and... it's my birthday!!! what better gift could i have gotten??