Success after IF

We are losing one of our babies...

This past week and a half have been the worst of my life.  

Friday morning I went in for my big u/s.  DH had to work because we were supposed to be on vacation this week, so we agreed that I'd get a ton of pictures and we'd look at them later.  I was in the u/s room for all of two minutes when they told me I had to go directly to the hospital and that I should call DH and have him meet me there immediately.

When we got to the hospital we met with a MFM who did a three hour u/s and diagnosed Baby B with hydrocephalus with aqueductal stenosis and hypoplastic cerebelum.  In other words...Baby B's brain stopped developing at about 16-17 weeks.  The ventricles that release fluid from the brain to the spine are sealed so the fluid put pressure on the brain and has caused his head to measure about 2-3 weeks ahead.  

The MFM that we spoke to said that Baby B isn't going to make it and that unfortunately, there isn't anything that he can do for him at this point. 

Since Friday we've spoken to numerous specialist who have all taken a look the u/s and the report and they all seem to agree. 

We went ahead and did an amnio on both babies.  Baby A looks healthy by the u/s, but there is no way to be completely sure without the amnio results.  We won't have the results until Thursday/Friday of next week.  

They also did a L1Cam test to see if this is a random chromosomal issue or if it is genetic.  It will take 7 weeks for that test to come back.  If it does come back as genetic, this could be a condition that all of our children could eventually develop. 

So now, we wait.  We see a genetic counselor on Friday and then we have another specialist take MRI's of both of the babies to get a better view of what we are dealing with.

Unfortunately, it seem unanimous that Baby B is not going to make it.  It seems like it is just a matter of time. The MFMs are now concerned with keeping Baby A inside and as healthy as possible.

We are devastated and don't know what to do at this point.  I want both of my babies.  I want them to live happy and healthy lives.  I wasn't prepared to get this type of news.  I'm trying to stay strong for the health of Baby A, but its hard. 

If you pray, please keep both of my babies in your prayers.  We can use all of the strength that we can get right now.  

- Olivia 

~Olivia~
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Re: We are losing one of our babies...

  • Oh my, I am so incredibly sorry.  I will pray for both babies and send you lots of strength to get through the coming weeks. 
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  • I am so very sorry to hear this.    I will be thinking of you, your DH and little ones.    
  • I am so so sorry you are going through this. Keeping you, your babies and family in my thoughts and prayers.
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  • I don't even know what to say...I'm sorry just doesn't cut it. ((HUGS)) I'll be thinking about your and your babies.
  • HUGS Im sorry sorry you have to go through this.  keep us posted.
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  • I'm so sorry.  Thoughts and prayers are with you and your family.
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  • I am so sorry.  You and your family are in my thoughts and prayers. 
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  • I am so very sorry for what you're going through.
  • I'm so very sorry, sweetie. Keeping you all in my thoughts. I can't imagine the pain and fear you are feeling right now.
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  • Oh no!!  I am so, so sorry.  I'm praying hard for a miracle.  (((HUGS)))
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  • Oh no, I am so sorry to hear this terrible news.  Wishing you an ultimate peace at the end of this difficult road.  :(

    Childhood cancer (DH) + chemo + radiation = 0 sperm.
    LO #1 - 1 unmedicated/self-monitored IUI w/ donor sperm.
    LO #2 - 1 m/c, 2 BFNs, 4th IUI worked (unmedicated/self-monitored with new donor sperm).
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  • I am so sorry. Keeping your babies and you in my thoughts.
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  • I am so sorry.  I have tears in my eyes as I read this.  You and your family are in my thoughts and prayers.
  • There are no words....

    I'm so incredibly sorry for your loss.

    I hope that you receive some good news from your testing and will pray for the continued health of baby A.

    May baby B rest in peace.

     

    Our IF journey: 1 m/c, 1 IVF with only 3 eggs retrieved yielding Dylan and a lost twin, 1 shocker unmedicated BFP resulting in Jace, 3 more unmedicated pregnancies ending in more losses.
    Total score: 6 pregnancies, 5 losses, 2 amazing blessings that I'm thankful for every single day.
  • oh honey, my heart is just smashed for you guys. WTF??????????!!!!!!!!!!!! this chit is SOOOO unfair.

    I don't what I could possibly do to help, but if you ever need anything, or just wanna talk and scream, please contact me. I owe ya ;-)

     I am so very sorry.

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  • Oh my gosh -- I'm so terribly sorry.  What unexpected and devastating news -- I just can't imagine.  You and your babies are in my thoughts and prayers.
                                  

      
                                   
  • oh my gosh.  i am so sorry to hear this.

    what a horrible shock, i wish there were words that could even begin to lessen the enormity of this....

    huge ((((hugs))))) and you will all be in my thoughts. 

  • I am heartbroken for you and your family.  I will definitely say lots of prayers for you guys.

  • I am so, so sorry.  My heart goes out to you.  I am sorry again.  Please be strong for Baby A.
  • I'm so very sorry!!  What a horrible situation!!  I'm sending you tons of thoughts for both of your babies!  and hugs and strength for you!
  • Oh no, I'm so sorry. I will be praying for both of your babies.
    TTC#1=Feb 2009: 50 mg Clomid+Ovidrel shot+Metformin+Dexamethasone+TI=BFP!
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  • Oh, how awful. I'm so sorry!
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  • I am absolutely heartbroken for you and your DH:( Your post brought tears to my eyes reading your post. I will keep you and your famiy in my prayers. I pray that the genetic results reveal that this won't happen to our two other babies. I am just very, very sorry :(
    It took over four years to be diagnosed with PCOS. We TTC #1 for 18 months, did 5 rounds of Clomid and finally moved onto IVF...which worked! Throughout our IF journey, we suffered 3 miscarriages. We conceived both DD and DS without treatment.
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  • kegkeg member
    I'm so sorry...I can't even imagine what you're going through right now.  You'll be in my thoughts and prayers.
    2004-Started TTC; Nov 2007-Lap with endo removed; Jan 2008-Ectopic (mtx); April 2008-IVF #1 (bfp, twin girls); March 2011-FET (cp); June 2012-IVF #2 (bfp, singleton, EDD 3-19-12)

    ***Twin fraternal girls born at 35w6d in 12/2008***

  • oh olivia, i am crying for you.  i am so so sorry.  this has to be so devestating and so scary.  i don't even know what to say.  i am just so terribly sorry.
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  • I'm so, so sorry. That is just devastating. Your family will be in my prayers.
  • Oh, this is terribly heartbreaking news. I am so very sorry. You and your babies will be in my thoughts and prayers...
    Baby Birthday Ticker Ticker Baby Birthday Ticker Ticker TTC since Dec '04 Severe MFI-diagnosed 12/06 3 failed Fresh IVFs FET #1 - BFP!! 2 blasts tx on day 6. Beta #1 8dp6dt = 56, Beta #2 = 600, Beta #3 = 5600 My Blog Image and video hosting by TinyPic Image and video hosting by TinyPic
  • oh no - there are no words.  I am very sorry you have to go through this.  You are in my thoughts and prayers
  • smileesmilee member
    I a just so, so very sorry.
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  • smeyersmeyer member
    Oh, sweetie, I'm so sorry.  I can't imagine how difficult the last week or so has been for all of you.  I'll be sending tons of thoughts and prayers of strength to you and your family.  ((hugs))

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  • I'll be thinking of your family!
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  • Oh my goodness, I am so sorry.  I will be praying for your entire family.
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  • i'm so sorry.
    Dx: MFI, DOR, 9 Fibroids and homozygous MTHFR

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  • I am so very sorry. I cannot even imagine how much strength you have to even have gotten through the last days. You and your family will be in my thoughts.
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  • Oh, I'm so sorry you're going through this...your family is in my thoughts.
    PCOS, lupus anticoagulant, MTHFR (A1298C, one copy) 2 IUIs & 1 IVF = BFN FET#1 = It's a girl! Born 7.1.10 FET#2 = c/p FET#3 = Twin girls! Born on 3.16.12 at 33w2d due to severe pre-E. After 4 weeks in the NICU they are home! Lilypie Third Birthday tickers
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  • Oh dear. I don't know what else to say other than I'm so incredibly sorry for you and your DH. I will keep your entire family in my prayers. ((HUGS))
  • I am so incredibly sorrry.  I will say many prayers for you, your family and your babies. 
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  • Oh my gosh! I'm so sorry.
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  • i am so sorry.  i can't imagine what you must be going through *hugs* i will keep them in my prayers
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