This past week and a half have been the worst of my life.
Friday morning I went in for my big u/s. DH had to work because we were supposed to be on vacation this week, so we agreed that I'd get a ton of pictures and we'd look at them later. I was in the u/s room for all of two minutes when they told me I had to go directly to the hospital and that I should call DH and have him meet me there immediately.
When we got to the hospital we met with a MFM who did a three hour u/s and diagnosed Baby B with hydrocephalus with aqueductal stenosis and hypoplastic cerebelum. In other words...Baby B's brain stopped developing at about 16-17 weeks. The ventricles that release fluid from the brain to the spine are sealed so the fluid put pressure on the brain and has caused his head to measure about 2-3 weeks ahead.
The MFM that we spoke to said that Baby B isn't going to make it and that unfortunately, there isn't anything that he can do for him at this point.
Since Friday we've spoken to numerous specialist who have all taken a look the u/s and the report and they all seem to agree.
We went ahead and did an amnio on both babies. Baby A looks healthy by the u/s, but there is no way to be completely sure without the amnio results. We won't have the results until Thursday/Friday of next week.
They also did a L1Cam test to see if this is a random chromosomal issue or if it is genetic. It will take 7 weeks for that test to come back. If it does come back as genetic, this could be a condition that all of our children could eventually develop.
So now, we wait. We see a genetic counselor on Friday and then we have another specialist take MRI's of both of the babies to get a better view of what we are dealing with.
Unfortunately, it seem unanimous that Baby B is not going to make it. It seems like it is just a matter of time. The MFMs are now concerned with keeping Baby A inside and as healthy as possible.
We are devastated and don't know what to do at this point. I want both of my babies. I want them to live happy and healthy lives. I wasn't prepared to get this type of news. I'm trying to stay strong for the health of Baby A, but its hard.
If you pray, please keep both of my babies in your prayers. We can use all of the strength that we can get right now.
- Olivia
Re: We are losing one of our babies...
Oh no, I am so sorry to hear this terrible news. Wishing you an ultimate peace at the end of this difficult road.
LO #1 - 1 unmedicated/self-monitored IUI w/ donor sperm.
LO #2 - 1 m/c, 2 BFNs, 4th IUI worked (unmedicated/self-monitored with new donor sperm).
Life is beautiful!
There are no words....
I'm so incredibly sorry for your loss.
I hope that you receive some good news from your testing and will pray for the continued health of baby A.
May baby B rest in peace.
Total score: 6 pregnancies, 5 losses, 2 amazing blessings that I'm thankful for every single day.
oh honey, my heart is just smashed for you guys. WTF??????????!!!!!!!!!!!! this chit is SOOOO unfair.
I don't what I could possibly do to help, but if you ever need anything, or just wanna talk and scream, please contact me. I owe ya ;-)
I am so very sorry.
oh my gosh. i am so sorry to hear this.
what a horrible shock, i wish there were words that could even begin to lessen the enormity of this....
huge ((((hugs))))) and you will all be in my thoughts.
I am heartbroken for you and your family. I will definitely say lots of prayers for you guys.
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