Need prayers still!

brittneycc1982

This is NOT getting any easier.  Everyone keeps saying, the hardest part is over with, and maybe that's right but seeing how I didn't even have time to prepare myself for her brain surgery it feels like it's getting harder. 

This morning they clamped off the drain that is coming out of her head.  The Neuro Dr. said that she may feel a little worse because now her body is working harder to obsorb that fluid.  If she does OK with it closed, then tomorrow they are taking it out.  This is good, but makes me nervous.  How do they know for SURE that her body is obsorbing the fluid?  They said they might have to do another CT scan to see if it's buiding up.  If it is, she will have to have a permanet drain placed, that will drain into her stomach. Great. Hopefully we can get out of the PICU after that's removed.

Tomorrow is also when we find out the pathology results.  I would say there's a 50/50+ chance of chemo/radiation, whether it's benign or not.

THEN we have to start her on physical therapy so she can walk around again. 

The place is DEPRESSING beyond words. We can only stay there for 24 hours at a time before you seriously start to lose it. I was just about to have a break down right before I saw Tony and Syd walk in today.  I had to force myself to stop glancing into the other patients rooms because it is SOOO sad.  Had a little girl who drown come in last night. Already witnessed parents holding their child for the last time. Some of the kids look like they have been there for months, can't breath on their own or anything.  Guess I should consider myself lucky.  Sorry for sharing.

Anyhow, PLEASE continue to pray for my baby! I need her to get well soon because she doesn't deserve to be there, and we want her home!  And also for benign results, and NO further treatment!  So far we have had nothing but good reports from the surgeon (well, other than the initial news) and I would like it to stay that way!

THANKS!!!! 

 

 

james_lover

You are a strong and amazing mother and your little girl is so brave.  I am sending thoughts and prayers that you get good news tomorrow and little Madi doesn't need any further treatment.

~snoopylove~

We are praying for your little girl. I can't imagine how hard this is for your family.

ali2005jason

Though I've never been in the position you are in, my child has been in a children's hospital. It is so hard to see them so defenseless and it makes it even harder when there's not much we can do to help. I've said it before and I'll say it again: Try to keep your head up Brit It is a slow road I'm sure, but from the updates you've posted here (and on Facebook) she sounds like she is moving in the right direction. She is still so little and little bodies bounce back so much easier than big ones. I'm sorry you are having to go through this...You have been so strong! If you need to talk to anyone, let me know Children's hospitals are scary places...I feel for you!!

Thoughts and prayers still coming your way!!! Heal Madi heal!!!!!

blueshirt2003

Sending many thoughts and prayers to your family right now.

abpdjs

oh Britt - you know my prayers are with you!  she WILL get to where she needs to be.  stay strong, you are an amazing mother.  she had a major surgery and it takes time.  she is making big and small strides to coming home and healing.  Everyday is another day towards getting back to her playful sweet self.  (((big hus)))) mama, you can do it - i know you can and you will.

PaigeC1981

Oh Britt, please know that we are praying for you and thinking of you all the time!  I can't even begin to imagine what you are going through-it breaks my heart just to read your words.

I have "known" madi since she was just a baby and "watched" her grow, so I feel like she is family.  She is never far from my thoughts and I find myself constantly wondering how she is, what she is doing, etc.

I hope for benign results tomorrow and no further treatment for sweet Madi.  I pray also that she makes great progress with her physical therapy.  Stay strong, girl!  You are doing a great job and Madi is so lucky to have you for her mother!   

bridesrighthand

I can't begin to imagine what you're going through.  I know this is the hardest thing you've ever done, but I also know you can do this!  I'm continuing to ;pray for all ofyou...big hugs!

Amy720

You seem like such a strong and amazing mom.  Madi is so lucky to have you.  I know she gets her strength from you.  I'm praying for her and your family!  

Kelleygirl18

I haven't been on in awhile. I just came on and saw everyone's siggy, so I read back at all the posts.

 I am SO sorry that you, M, and your family are having to go through this. I couldn't even imagine the stress, saddness, and fear you are experiencing. Please know that my thoughts and prayers are with you at this time.

 Stay strong.

momofolivia

you all are never far from my thoughts and I am hoping only good things for Madi right now.

roseroseroseroserose

Britt, you may not be feeling strong, but I am amazed by your strength! You are such a loving mama. You are doing the best thing you can do for her- praying. I'm praying for you and Tony and Madi and many of my friends and family are too.

Mrs.Hubbard

Everyone has said it but I think of you guys many times a day, and say a little prayer each time.  You are amazing for being so strong, I don't know if I could do what you are.  She is getting a little stronger each day!

Read2Me

You and Madi are never far from my thoughts.  Caring for a sick child, especially in that environment, is intensely draining.  Rotating who is with her is so smart- you definitely need the break.  Continue to think positive but know that is it okay to break down.  The day we brought Eva home after her hospital stay I completely lost it- I had bottled all the emotions up while we were there and I was a mess.  Let it out!  Vent here, cry in your pillow, howl at the moon- whatever works for you.  We are all thinking of you and praying for you and your family.

acppa

I pray for your family multiple times I day (whenever I think about you guys).  I hope that today you get good results and that things go well with her recovery.  

You're a great mom.  Your giving Madi the strength and support she needs.  I know that you and your family will find the strength to make it through this.   

metisca

Your family is definitely still in my prayers every day!  Take it day by day; God will give you the strength you need.

ps - I sent you a pm last week when I couldn't post. 

j_hope

I'm definitely praying that you receive nothing but positive news from the lab results today!  May God continue to give you the strength you need to get through this.

marriedchick06

You and Madi have been on our minds constantly. We will continue to keep you there as well as in our prayers.

moroccojade

Praying for only good news today.  Hang in there. xoxo

meglew

Many prayers for your family!  I hope that you get nothing but great results today!

gisellems

lots of T&P for you guys.. we love you! stay strong and positive.. i'm sure everything will be better!!

neverblushed

I've been thinking about you guys all weekend, hoping everything was okay.

Hang in there and take it moment by moment, day by day.

April37

I've been out of town and just got the chance to read up on what you are going through.  I'm so sorry.  Positive thoughts and prayers and being sent your way.