Bit of a downer 1-year appointment today

cooker71

I know this is to be expected as Miles gets older and there are more and bigger milestones for him to reach, but it was still hard today to hear he's developmentally at the level of an 8- to 10-month-old baby. And he's a year old.

Our pedi is very pleased, his therapists say he's doing great and for the most part I stay very positive about everything. It's just hard to stare at the cold, hard facts on a development chart and hear how delayed he is.

He's still not crawling, though he can get up on his hands and knees and moves his butt back and forth. Not standing...can't get up from laying to sitting, but he feeds himself really well and is doing good at learning to drink from a sippy. 

He's fallen behind on typical child growth charts, but is still at 50 percent for height among babies with Down syndrome and in the 90th percentile weight-wise with his big ol' gut. 

All in all, he's doing great. Just a bit of a hard morning for mom I guess.

Kapalua

(((hugs)))

xbrooklyngrl

It sounds to me like he is doing fabulous and making his own "typical chart". I'm sure the information is still hard to swallow but he is absolutely perfect.

DandelionMom

(((hugs)))  I'm glad to hear he's doing so well!  And I'm sorry it was hard to hear. 

meghans30

hugs

j-w

Keep your chin up!  You guys are doing a great job!

Jen2124

I hate "charts" for this reason. I'm sorry, but totally understand.

femmegem

(((hugs)))

Marce921

Aww, I'm sure it was hard to hear, but he's doing fabulous! A lot of kids are "behind" on developmental milestones and he's not that far behind. He'll do it all soon enough, don't worry! (((HUGS)))

MelandJeff

Coke sniffer,

He is doing GREAT. How many babies on this board are behind? Tons. And lots of them catch up. He is not even that behind. A couple of months? Phhhhht.

He is happy, cute as sh!t, and healthy. Be happy mama.

Mrs.Tony

Sounds like he is doing great!

Hooray2005

(((((((hugs))))))

Milestone moments are hard ... and giving yourself permission to grieve the loss of a child who will meet each and every milestone at the typical time is so important - both for him and for you.  It's easy for everyone to focus on the positive (boy, I know I'm guilty of that as a clinician!) - but giving you the right to express the full range of emotions that come with these moments is so, so critical.

The chart comparisons to any group other than other children with Down syndrome are never truly fair because the groups aren't balanced (we'd never think to compare boys and girls heights and then say the girls are "behind").  But yeah, you're so right - these moments are hard and filled with bittersweet emotions - you're clearly thrilled with how well he's doing (and go Miles - what great accomplishments he's made this past year!!!! What amazing accomplishments!), but I can only imagine that thoughts of where N was at this point have to sneak in, at some point, too. ((hugs))

Thinking of you as you navigate through this - and thank you so much for sharing with (and teaching) all of us - hopefully it helps everyone here be more sensitive

AngelaSue

(((HUGS))) to you Cooker.

AnneUCSB

Sending big hugs your way!!!!

cbidt*sgirl

Hooray2005:

(((((((hugs))))))

Milestone moments are hard ... and giving yourself permission to grieve the loss of a child who will meet each and every milestone at the typical time is so important - both for him and for you.  It's easy for everyone to focus on the positive (boy, I know I'm guilty of that as a clinician!) - but giving you the right to express the full range of emotions that come with these moments is so, so critical.

The chart comparisons to any group other than other children with Down syndrome are never truly fair because the groups aren't balanced (we'd never think to compare boys and girls heights and then say the girls are "behind").  But yeah, you're so right - these moments are hard and filled with bittersweet emotions - you're clearly thrilled with how well he's doing (and go Miles - what great accomplishments he's made this past year!!!! What amazing accomplishments!), but I can only imagine that thoughts of where N was at this point have to sneak in, at some point, too. ((hugs))

Thinking of you as you navigate through this - and thank you so much for sharing with (and teaching) all of us - hopefully it helps everyone here be more sensitive

so well said

winomom22

It sounds like he is doing great! He is farther along than my dd was at that age. Hugs.

*Amy*

Hugs to you.

TheQuietThings

(((hugs))) Miles couldn't have better parents (and big sister!)

lazysusan

I work in EI and he is doing awesome things!