Infertility

Not sure where I belong with this? (hysterectomy needed)

I was recently diagnosed with a very rare type of gestational tumor in my uterus. This tumor does not respond to chemo and the only way to treat and cure this is to have a hysterectomy. I am only 28 and we were planning to try for baby #2 very soon. I'm absolutely heartbroken, but the Dr. assures us my ovaries can be saved and I can have my eggs frozen. I'm not even sure how we would feel about surrogacy, and financially I don't think that's an option for us. Same thing goes for adoption. Is anyone else here going through something similar? I wasn't sure which board this really belonged on.
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Re: Not sure where I belong with this? (hysterectomy needed)

  • I am so sorry that you are going through this. No advice to give, but lots of (((HUGS)))
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  • Welcome.  I'm sorry you have to be here (and I do think you belong).  I haven't been through this so I don't have any advice, but I'm sorry that you have to go through this. 

    Hopefully after you recover from the surgery you'll be able to do some more research and find a way to build your family that works for you.  I hope that recovery is speedy. 

    image 30 y/o with PCOS HSG normal, SA essentially normal (slightly low morph but good # and motility) 50 mg Clomid...zip; 100 mg Clomid...nada; 150 mg Clomid...zilch 1/10 Injectable cycle with Gonal-F, Ovidrel, and TI.....Beta 2/22...BFN 2/10 Injectable cycle with Gonal-F and Follistim (long story), Ovidrel..BFN 4/10 Injectable cycle (see above). BFP but early m/c 5w5d. 5/10 Break cycle due to BFC (Big Fat Cyst)...darn it all 6/10 Injectable cycle +IUI...BFN 7/10 Injectable cycle + IUI.....BFP!!! Baby Birthday Ticker Ticker
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  • OMG, I'm so sorry to hear this, I can't imagine how devastating that would be... You poor thing!! It sounds like surrogacy would be your only option to have another bio child.  I think you need to take care of yourself and get that nasty tumor out ASAP so you can be around for a long time with your beautiful daughter, hang in there hun!! 
  • I am so sorry you are going through this. How devastating.

    I believe there was a woman on here a year or two ago that had to have a hystorectomy. I believe she posts at times on the Success after IF board. I believe she chose to adopt - but she may be able to help answer some of your questions. I would post on that board and see if the ladies can lead you to her.

    Again - I am so sorry you are going through this.

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  • I am very sorry for your diagnosis.  I run the DE/GC check in (donor egg/embryo / gestational carrier check in).  We post on Tuesdays and there is the link to the latest check-in.

    https://community.thenest.com/cs/ks/forums/thread/34933459.aspx

    Once you have had time to heal, page KoCoLoCo either here or on the Multples Board.  She has twins through a gc and is always happy to talk to people considering that path.

    Also, there are a couple of ladies on the check-in that are using known carriers (or at least planning to).  They check-in more sporadically but I am sure they are willing to help as well.

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  • Hi,

    I am sorry to hear about your illness and your upcoming surgery.  Like BRS said, I have twins thanks to a gestational surrogacy.  If you ever get to the point where you might want to consider that route, I would be happy to share my experiences with you. 

  • I am so sorry!  Hopefully there are girls on this board who can help you with questions about surrogacy etc.  Best of luck with your own health and with future little ones.
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