Cystic Fibrosis

bmstee03

This is a repost from special needs...Does anyone have a child diagnosed with CF?

sara785

I don't, but I'm an RN and took care of adults with CF for 3 years, so I know quite a bit about it.  Does your LO have that diagnosis?

shihtzumomma

Our 12 and 13 yr old nieces both have it.

bmstee03

Yes. We are going to a specialist this week. I was just wondering if there was anyone else out there. Apparently only 850-1000 babies are born with it each year. I was looking for a good parents of kids with cf website. Everything on the internet seems scary and overwhelming. There has to be something better.

naflmj

We do not but I have a friend who was faced with all the scary facts who is 30 years old and living an amazing life (and raising awareness and $$$ for the cause). Wait to go to the dr. to get your facts and ask him/her for resources.

sara785

I would imagine that it's incredibly overwhelming.  Each person with CF is different, though.  So like a PP said, wait to see what the MD says before you worry yourself sick.  Best of luck to you.  If worse comes to worse, you can alway PM me with worries/concerns.  I will try to help you as best as I can.