Update on my baby

REOM

We took her to the pediatrician this morning, who sent us to a neurologist this afternoon. We were there all afternoon, and basically just talked about what it could be, why seizures happen and what to do if it happens again.

There are a couple of things about her that concerned him. She has these spots (that we thought were just birthmarks) that apparently are often indicitive of a neurological disorder, plus her head is huge for her body, and her soft spot hasn't closed yet. SOOOO since she has all these concerns, they are going to move forward. If she had one seizure and no other issues, the protocol is to wait until the second time. Probably next week, she will have an MRI, which she has to be sedated for, and an ambulatory EEG which is the electodes on her head for 24 hours. They are going to try to allow us to take it home, and if that doesn't work then she will have to be hospitalized.

Until then, life goes on as normal. School/work/daycare for the rest of the week. He said there is no point in sitting at home, waiting for something that may or may not happen. I spoke wiht the director at the daycare, who is also a friend of ours, and everyone there is CPR certified and trained what to do if it does happen again.

Yes, I feel sick about it. But then I realize that she is happy, developing normal, (almost) walks, talks and I'm not as concerned. Hopefully this is all precautionary.

Thanks again for all of your prayers and good thoughts!

Amanda&Chris

It sounds like they are doing everything they can and it will likely all turn out fine.  I"ll keep you guys in my prayers!  Keep us posted!

goodheartedmommy

I'm keeping her in my prayers. I hope you get answers!

stillhoping

I will continue to pray for you and yours. I am sorry you are having to go through this. If her soft spot is not closed can they not start with an ultrasound. That is what they did with my little ones and that way they do not have to be put to sleep.

minnasmommy

I was thinking of you all day! Glad you got in to see the neuro today and didn't have to wait. hopefully your week will be uneventful and they will get some good answers from the tests.

please don't hesitate to call if you need anything.

 

stay strong, mommy. you're doing a great job!

hugs and kisses to you, F and your beauties! 

co18co

You guys remain in my thoughts and prayers.  I was thinking about you all afternoon. 

eclaires

You guys will continue to be in my thoughts and prayers!  With everything you said, it sounds like you will get some answers which is good, even though it's hard to deal with the tests with a baby.  I hope it turns out to be nothing!

REOM

Belle4KP:

I will continue to pray for you and yours. I am sorry you are having to go through this. If her soft spot is not closed can they not start with an ultrasound. That is what they did with my little ones and that way they do not have to be put to sleep.

The head growth thing is not new. She actually had a head U/S around 9  months b/c she jumped off the chart. The U/S was clear! Really, what they are looking for is to see if she has any of those spots on her brain, which causes seizures. That requires an MRI, unfortunately. It's not anesthesia, which makes me feel a little better.

How is your little guy doing from last night, Belle?

REOM

minnasmommy:

I was thinking of you all day! Glad you got in to see the neuro today and didn't have to wait. hopefully your week will be uneventful and they will get some good answers from the tests.

please don't hesitate to call if you need anything.

 

stay strong, mommy. you're doing a great job!

hugs and kisses to you, F and your beauties! 

It's amazing that a few tears in the pedi's office in the morning can lead you to an appt at an overbooked neuro in the afternoon! Seriously though, I love our pedi

And thank you, thank you, thank you!

Kapalua

Sounds like they're taking good care of her. Hope you get some answers soon! Thinking good thoughts for you!!

Halo79RN

t&p for you and your peanut. 

springmom

Yikes!  So sorry you are going through all of this, but glad to hear that so far, so good.  ((((((hugs))))))) and prayers for your family! 

meghans30

I'll continue to keep you in my thoughts.

DandelionMom

(((hugs)))  I'll keep praying but that sounds pretty encouraging.  They wouldn't send her back to school if it was something too scary. 

MelandJeff

Well, the good news is that they are working on getting to the bottom of it and getting you some answers.

I think going on with life as usual is a good idea, as hard as it might feel to actually do.

 

Zenya

you're all in my thoughts!

Yodajo

I'll continue to keep you all in my T&P. It sounds like she is in very capable hands and that they are just taking the necessary precautions with your sweet baby girl.

debs1018

T & P for you! I know how scary it is to go through something like this, there are no words to describe it really. My son has had an MRI with sedation, so if you have any questions ask away.

BubblyToes

*continued prayers sent your way*

 

Mrs.Tony

I am so sorry you are going thru this but it sounds like they are moving quickly to determine what if anything is wrong. Good luck and please keep us posted.

amy05-04

Thoughts and prayers for everything to turn out ok!

am073104

more thoughts and prayers headed your way!

EMT

It sounds like she is under the care of great doctors. I will be praying for her and your family!!

femmegem

(((hugs))) Keeping you all in my thoughts.

Kersbear

*hugs*  I'm sure this is incredibly hard on you right now.  I hope everything turns out well and I'll keep you all in my thoughts and prayers.

cooker71

*HUGS*

How scary for all of you, but it does sound like you've got the best medical care going and they'll find some answers for you. Hang in there, love. 

Marchmamma

Glad you got some answers today.  Prayers and good thoughts headed your way .

Did they give you a name of the  neurological disorder they think it might be?  The birthmarks (cafe au lait spots) and big head grow sound very familiar to me.

soontobemomma

Glad you updated, was thinking about you today.  I'll continue to think good thoughts for you!!

Angela814

I had to go back and find your other post. What a scary night! The MRI and EEG should both help figure things out. Hopefully it was just a fluke. I will keep her in my prayers.

sweetie1528

best of luck to you guys!  you are all in my thoughts and prayers.

SumnerBride

I think you did all the right things.  You've done all you can do.  Hopefully the MRI will give you some more info, and hopefully it's not a big deal.  I'm sick for you!  I can't even imagine.

HUGS to you and the girls!

Temp108743750006959

your family is in my thoughts and I'm sending positive vibes your way -- I really hope she's ok and everything is clear

melmax

I'm thinking of you all.  Many, many HUGS!!!!!

babykin18

I am glad to see they were able to get the ball rolling for you and you didn't have to wait to see the neurologist.  You are one strong momma!  Everyone will continue to be in our prayers!

mamarazzi

Glad you were able to get in today.  Hopefully the rests of the tests are just precautionary.

Hang in there!

CTFandme

oh my goodness!  prayers to you and your family.  I'm sorry you have to go through. 

winery

Oh my, I am so so sorry you're dealing with this.

Thoughts to you for E. 

amiamish

I'm not sure what's going on, I've missed the OP on this. Just wanted to say I'm sending T&P's your way and I hope everything gets worked out.

(((HUGS)))

LeisureSuitLauren

I didn't see your original post until just now.  It sounded so scary!!  I'm glad she's doing okay at the moment. Hoping nothing comes of it.  I'll keep her in my prayers.((HUGS))