What is TTTS?

ougrad1

I know I'll kick myself once someone tells me but, I can't figure it out.  While I'm at it, I'll ask what is it?  TIA.

jacobandcrystal

Twin-to-twin transfusion syndrome... when twins who share a placenta have unequal nourishment.

Here's the TTTS Foundation's website if you'd like to know more:

https://www.tttsfoundation.org/

MrsAmyB

jacobandcrystal:

Twin-to-twin transfusion syndrome... when twins who share a placenta have unequal nourishment.

Here's the TTTS Foundation's website if you'd like to know more:

https://www.tttsfoundation.org/

This.  I am getting monitored for it every 2 weeks.  My Dr. says there is a 15% chance of us getting it (with our twin type).  One of my twins has cord insertion at the edge of the placenta, which worries me too.

kimarino13

MrsAmyB:

jacobandcrystal:

Twin-to-twin transfusion syndrome... when twins who share a placenta have unequal nourishment.

Here's the TTTS Foundation's website if you'd like to know more:

https://www.tttsfoundation.org/

This.  I am getting monitored for it every 2 weeks.  My Dr. says there is a 15% chance of us getting it (with our twin type).  One of my twins has cord insertion at the edge of the placenta, which worries me too.

Same here.  My Baby B has a marginal cor insertion, but she is actually the bigger twin now. 

joliemariée

Our friends are going through it right now. It can only happen with identicals who are sharing the placenta - one baby basically receives too much of everything while the other is basically not receiving any nutrients etc....

She & her baby girls had to go through "in utero" surgery at 22weeks to separate their blood vessels - baby A has an enlarged heart from excess blood and B was so tiny with a large head from lack of blood, nourishment etc... it is so heartbreaking.  Now her water broke at 25weeks so it is a waiting game to see if the babies can make it to at least 28weeks. 

 

I hope no one on this board has to go through TTTS

mmbench

There's a few of us on here who have TTTS survivors.  We were diagnosed with it at 24 weeks, and I was put on complete bedrest.  I delivered at 34w, and my girls were 2lb 13oz and 4 lbs 9 oz.

littlewonders also has TTTS survivors, and they flew to Texas to have the laser surgery.

beachinjune

We are TTTS survivors also! Well I haven't delivered yet but I'm almost 32 weeks and the boys look fantastic- as if they'd never had it. We also flew to Texas for the surgery. Its scary but there are treatment options out there if caught early.

pekabluhm

My boys are survivors as well. They didn't have TTTS until 27 weeks. So we were to far along for the surgery or to even fly anywhere for it. So they did an amniotic reduction and watched me very close. We made it to 33 weeks. The boys were 4lbs 6oz and 2lbs 14oz. However looking at them today you wouldn't even know that they dealt with this. They are now 20lbs and 17lbs.