Preemies

First Bad Day

Today was the first bad day that Cooper has had since right after he was born, and I feel totally broken and guilty again.  He was put back on CPAP last night, and today they ran a ton of blood tests- twice, since they didn't get enough blood the first time. They can't figure out why he was desatting, and are worried he has an infection. Everything so far has come back okay, but they are still waiting for the rest of the results. 

I knew he was going to have ups and downs, but he went from doing great on Monday and Tuesday- to the point that both of his nurses said they thought he would be able to come home by Thanksgiving, to this, and I feel like he is never going to learn to breathe normally! I know he is only 32 weeks gestationally, and that he shouldn't even be breathing yet- but still. UGHHH! 

Hopefully he will be a little better when we go back tonight- I didn't even touch him today, and his nurse had everything dark and quiet so he could sleep. I'm just praying he doesn't have an infection and that he gets better and off the CPAP quickly.

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Re: First Bad Day

  • I know it sucks now, but I'm sure its nothing.  He prob. just got tired.  Sophie had a day like that, and I just sat quietly next to her bed and watched her :)
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  • I'm so sorry your LO is having a bad day!  Hopefully tomorrow improves.
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  • (((hugs))) and I hope he graduates from CPAP soon (and for good this time!)

     

  • im sorry you have to go through this! it is quite a rollercoaster. the one good thing i have to say is that they are on top of it. did they start antibiotics right away? i know it seemed that every other week james was getting blood work and antibiotics because something like that happened. atleast they are over-cautious because you wouldnt want it getting past them! i promise it gets better!
  • sometimes the babies just need to sleep alot.  my lo is home and sometimes she'll just have a very sleepy day.  my daughter came home on O2--the breathing stuff is so so hard but he will learn.  At 32 weeks gestation, my LO was still on the vent so Cooper is doing better!  Hang in there!
  • imageNew Wife:
    im sorry you have to go through this! it is quite a rollercoaster. the one good thing i have to say is that they are on top of it. did they start antibiotics right away? i know it seemed that every other week james was getting blood work and antibiotics because something like that happened. atleast they are over-cautious because you wouldnt want it getting past them! i promise it gets better!

    No antibiotics. They ran his bloodwork and he doesn't have an infection (thank goodness!). I honestly think he just got really over stimulated- they have had new babies in and out of his room every day, and last night when things got bad it was really loud in there. He seemed to be more comfortable tonight, and his sats were pretty stable in the high 80s and low 90s, so hopefully he will stay that way tonight.

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  • Oh Im so sorry. Maybe he was just tired and/or over-stimulated. My DS was destating and ended up on the vent a couple days after birth just from being over-stimulated. It is heart breaking, I know. But he will get better and be home soon. Just sit quietly next to him, he still knows you are there. I put a cloth next to my twins that I had stuffed down my shirt so they could smell me. Sometimes I put a couple drops of breastmilk on it since I know babies can recognize the smell of their mother's milk.
    Abigail Noelle, 8.29.09
    Brady Phoenix, 8.29.09
    Claire Zoe, 10.26.10

  • Oh I just saw where you said you think he was over stimulated. My NICU had an isolation room that they would sometimes use for the really sensitive babies. Maybe you could request that your DS be moved to a quieter, more private area, if possible?
    Abigail Noelle, 8.29.09
    Brady Phoenix, 8.29.09
    Claire Zoe, 10.26.10

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