Special Needs

Suggestions to help a friend?

My best friend has an 8 month old son who hasn't been meeting milestones, and they just did an early steps screening.  He needs an MRI, hearing and vision test...and they think there is something wrong with his brain.  She is devastated, and I am heartbroken for her that she is going through this.  I'm trying to stay up beat and take her mind off things when it's of course the only thing that's been on her mind.  Then, when she brings up her son I listen and try and help her the best I can...but I just wish there was more I could do.  What did you all find was the most helpful from your friends when you began your rollercoaster into special needs?

Re: Suggestions to help a friend?

  • You know her best. Make sure you remember that your sincere concern is important. I personally feel that through questions. If someone is willing to ask me questions instead of avoid 'it' I know they genuinely care and want to know. It makes me feel better about talking to them. 

    But, don't ask SO many questions that her life reduces to ONLY that. Tough balance, but that's why i said you know her best.

    If she ends up dealing with hospital stays, etc... or long days with appointments it is easy to forget to eat. Taking a meal or giving a gift card for a close place to eat i've heard is good.

    You could tell her about us too. Its SO important to know you can ask someone else questions who might have actually have been through it. 

    I have no idea what they're thinking it is, but I will pray for all of them and you as her friend! Thanks for posting. 

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  • As breezy said...ask questions, and more importantly, remember the answers!

    My son was diagnosed with Tuberous Sclerosis at 2 months old.  Recently my DH was talking to my MIL about getting genetic testing for Tuberous Sclerosis for our baby on the way.  My MIL responded by asking, "What is that?"  We are both completely flabbergasted that my son's grandmother doesn't even recognize the name of the genetic condition that he has (and that we have known about for almost a year now).

    imageimageimageimageimage 9/07 m/c baby boy @ 18wks, 4/09 m/c @ 4.5wks
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