Anyone have experience with NEC?

BitterOldHag

My boys were born on 6/9 at 36w4d and on 6/12 one was diagnosed with necrotizing enterocolitis.  He's currently on day 9 of 14 days of IV antibiotics in the NICU while our other son is at home.

At the end of the 14 days the doctors will start reintroducing food but I don't yet have a timeline on when he'll be home.

 

If anyone has been through this, can you please relay your experience?  We've been arranging care everyday for one baby so we can visit the other and will have to intregrate their schedules once he comes home.

 TIA

leahm78

I don't have any experience with this....but I wanted you to know that I will be praying for your son. I just read up on it and it seems it will work itself out....I hope it has already started. I know how hard it is to have one home and one in the NICU. It WILL get better and will be a distant memory once they are both home together. Keep us posted on his progress.

jlc071903

did you ask this on the preemie board?

 They thought one of my DD's had this, but she ended up NOT having it, so I'm not sure what happens after the 2 weeks of Antibiotic. 

Mrs.Mezzy

One of our girls had NEC but she needed surgery to remove the dead part of her small intestines.  She had surgery, underwent two weeks of TPN and antibiotics and then they SLOWLY introduced food. She is 6 weeks out from surgery and still not up to full feeds.  She has a iliostomy bag and will need a second surgery in August to put her intestines back together.  Sounds like your case is not as serious so you may not have such a long recovery but you'll need to be prepared for a slow process to come back from it.