Update re: Elliana and hypothyroidism...ARG!

CubbyMama

We took Elliana in last Tuesday to have blood drawn for the THIRD time to see if she has a thyroid disorder (the first time, the results were normal but with the disclaimer that the lab didn't draw enough blood, so the sample was diluted and not 100% reliable...the second time, the results came back abnormal and he wanted to do some additional tests to see if it was a fluke).  They had to draw blood from both arms because the tech didn't get enough blood from the first arm after twisting the needle around in her arm and torturing my baby to try and get more blood out. 

Now we've been waiting for results since then, and finally got a call from the pedi today that two of the studies he ordered came back normal, but for the 3rd one, the lab coded it wrong and did the wrong test.  They can't reuse the same vial of blood to do the correct test, and he needs that test result in order to verify whether she may have a thyroid disorder, so...we have to take her BACK to the lab this afternoon and let them draw MORE blood to redo that final test again.  ARG!!!

I'm glad they do this as a newborn screening and I know they need to know valid results ASAP so she can start taking the medication if there is a problem, but I'm sickened by having to put her through this so many times!

NikiGee

Ok, that just sucks. ?I'm so sorry. ?Hoping this will be the last time for you guys. ?It's so hard to see/hear them get stuck.

Dougsgirl4ever

Makenna had the test messed up several times too I think the 3rd was a charm if I remember correctly.  When you go into the lab ask them for someone that is used to drawing from babies.  This is what we did on the third time & it was a night & day differance in how she drew the blood.  Good luck today & I hope she is fine.

KrisBriMcBunny

awww poor little thing!

rebs

Awww, I know it is hard. 

DD had low blood sugar when she was born.  Her sugar levels just kept going down.  She got stuck so many times in the first day while they tested her blood.  Then when it was determined that she couldn't keep her levels up they wanted to put her on an IV. They tried multiple times in both hands and feet, but just could not get the line in.  Then they got one in her head, but it blew out after a couple of minutes.  And these were experienced NICU nurses!!  So she ended up having to be restrained and get a line through her umbilical cord stump, which meant I couldn't hold her for 24 hours.  And of course then she was stuck again multiple times for the next few days to make sure her sugar levels were ok.

Anyway, I feel your pain.  But she is now a happy, healthy and extremely active 20 month old who doesn't remember any of it.  I really think it might be harder on the mommy!

meglew

Poor baby!  I hope that you get a good result, eventually!

Marchmamma

That stinks!  I hope they get it right!

Alliebella

so sorry your sweet little angel has to be put through all that! I know it's frustrating! Fingers crossed for good results!  She is beautiful, btw!

jlc071903

Ask them if they will take her blood from her heel...this is how they did weekly blood tests (and many more) when my twins were in the NICU...I know I'm coming in late, so I hope that you see this before you go back.  They would prick their heel and then use a thin tube to help the blood run into hte vial for testing.  Sad that I know this I know.