Special Needs

Ketogenic diet and epilepsy?

For the mommies of those with epilepsy, have you heard of this?  Have you tried this?  If so, what has been your experience?  And if not, I recommend asking your neurologist about it.

I'm currently reading up on it, so I don't have much info, but anytime I learn anything, I want to educate others.


Re: Ketogenic diet and epilepsy?

  • The local news here recently did a story on this and the incredible results it had on the little girl!
  • My neuro said that it may be an option for us down the road, but doesn't have as good of results on focal seizures (which is what DS has) as generalized seizures.  He also said that it was difficult in infants because the palate is really bland, and it often requires a NG tube to maintain the diet.  But it is certainly something we may end up doing if everything else fails.
    imageimageimageimageimage 9/07 m/c baby boy @ 18wks, 4/09 m/c @ 4.5wks
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  • My niece was on something like this for quite a while at about 2-3 years old and the results were amazing!  I haven't heard anything about infants, though.
  • Hi!

    My son had focal, myoclonic,  and grand mal seizures from birth. We tried SO many meds. ( kepra, trazadone, depakote...) Nothing worked.

    After a week in the hospital to begin the diet at Johns Hopkins, my sons seizures were decreased by about 1/3. After 3 months on the diet the seizures had stopped. He was on the diet for 2 years. He has been off the diet now for about 1 year and only has an occasional breakthrough seizure when he is sick with a cold, flu ect..

    We started him on the diet when he was 1 1/2 years. He is now 4 1/2 and making developmental progress.

    I would be happy to answer any questions about the particulars of the diet and administering it. Its not nearly as hard as the literature makes it sound!


    Beth (mom to Max) 


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