Jaxon didn't pass

sweater

I'm upset.

The specialist said he averaged 93% and he needs to be 94%. She asked if he was up often or sick. I told her he cried the first hour he was on the machine because his brother was up crying and the time-change didn't help, and also that he's a little congested.

He wakes up heaving because of his reflux. She said she could see his heart rate elevate over 160 when his O2 would decrease...I said that happened when he cried.

(sigh)

We have to keep the tanks and keep him on oxygen.?

pea-kay

oh man! that sucks! when can you try it again? hopefully next time brady won't be keeping jax awake and he wont' be congested. and there won't be a time change. ugh. that is so unfair!

laceymb

That stinks to be so close to what he needed and just barely miss it. Hang in there momma.

Jessarella

Oh I am so sorry! No fair. When will they let him take the test again? His brother was buggin him, he can't sleep through that, give him a break doc!

 

MNheidi

poor buddy and mommy   What's the next step?

shady06

Oh, that sucks.  I'm sorry--what happens next?

Kim&Jim

How sad to be so close, especially with all the obstacles that were in his way!  I hope he can test again soon.

sweater

He has an appt with Pulmonary at the hospital on April 3. The doc said she would re-order another night study after that appt. She felt terrible making this call to me.

She said anything under an average of 94% means a threat to respiratory infections...but since we're SO close that if he rips the cannula off, to just leave it off. I said he rips it off immediately sometimes and she said "at least you tried". I told her I'm a mess because he pulls it down around his neck...she was silent and just felt bad.

Ugh....I'm just disappointed for him...?

lstaylor73

Damn!  That sucks!  Our specialist was okay with an average of 93% but really wanted 96% to go completely off O2 in the end.  I'm so sorry.

loree

i'm so sorry.

gymrat

OH that sucks. I'm sorry! ((HUGS))

Moonpie73

Oh Annie I'm so sorry ((HUGS)).  Hopefully Jax will pass the next time.  Especially considering he was only 1% off.

When is his next trial?

HisLobster

That sucks. I'm sorry.

kyluvsaj

I am sorry!  So close!  Next time you will have it!

BabyDavison

I'm so sorry... hugs!

tumbleweed80

I'm sorry to hear this. May we add little Jax to the prayer list? We were praying that his study would go well.

Cato3

Oh no!  I'm so sorry to hear this, I know how badly you wanted him to pass.  Next time will be much better, I just know it!

sweater

tumbleweed80:

I'm sorry to hear this. May we add little Jax to the prayer list? We were praying that his study would go well.

Please do. Thank you. I will need all the prayers in the world to get him off his feeding tube as well....but I know that will be sometime yet.?

Mrs. Destructo

Oh no!! Of course your amazing, strong little boy is in my prayers!

JustaKidAtHeart

Im sorry I hope he passes next time

macchiatto

I'm sorry. Fingers crossed he will pass next time!

blairsgirl

I'm really sorry.  I hope he passes next time.

debisheldon

Awww I am so sorry. He was so close. Its not fair. He'll get it next time

april062604

it totally sucks, but on a positive note, he failed by 1%...and it can be totally attributed to his crying, his congestion, and his heaving. ?most of the time he's a-ok. ?i can't imagine how frustrated you must be. ?when can he be tested again?

Zeidy01

Im so sorry

Boilergirl79

Sad!!!  And-what a crock!!  Just 1%!!   How much longer on the O2?  I hope not too long---that poor Jax has been through enough!! 

 

Hang in there!!!! 

Leah5185

I'm sorry! That really stinks. Hopefully it won't be much longer.

weemodin

Man, I'm so sorry.  But hopefully since he was so close, it's not for long   Hang in there.

linda98ny

I am so sorry. ?:-(

mamaoftwingirls

Aww, poor you and poor Jaxon...he is so close!!!!!!!!

 This may be a dumb question, but has he had the Nissen procedure?

SNL0605

boo on not passing... Im sorry hun. (((HUGS)))