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Multiples
our babies have twin-to-twin-transfusion
I cannot even describe to you how hard-broken we are about the news. If left untreated, there is a 80-95% both of our girls will die. Our clinic belongs to the very few in the country the performs the laser surgery, but even with a successful surgery the chance of both of them surviving is only 50-60%. And the doctor who does the procedure is out of the country next week, meaning if things look worse by Monday, we might have to fly to Seattle or Houston to have the surgery there. More details on my blog. Please pray for us and for our precious twin girls.
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Re: our babies have twin-to-twin-transfusion
What level of TTTS do the girls have? Many of us on this board experienced TTTS to varying degrees. At one point my boys were more than 30% different. I was not eligable to get the laser surgery since the boys were mono and the cords were too close together on the placenta. So I guess my TTTS went "untreated".
Just a word of advice from someone who went thru WEEKLY stare downs from specialists. They always give you the worst case scenario possible and scare the hell out of you. I can't even begin to tell you the weekly threats I was given of how both children, let alone one will most likely not make it.
Please take this as a big hug and a shoulder. Hang in there, and try to (hard to do I know) stay calm. I decided at one point that I was no longer going to freak out about what will most likely happen, until it actually does....that really helped a lot.
My blog has the boy's gestational weights and discordinance between them thru the pregnancy if you want to peek. It's on the left hand side.?
How to tell my boys apart
The different types of twins and triplets
Jack, Sydney and Carynne, Annaleigh, JW, Eden...forever in our hearts.
My blog * We made the national news!
I'm so sorry. I hope things stay clear for another week.
Like Sweater, I had "untreated" TTTS since things stabilized around 24 weeks, so I didn't have to make the awful decision about the surgery. I was on strict bedrest by that point. When they were born, however, there was a 40% discordance between the two.
Our thoughts and prayers are with you.
Also, I live about 15 minutes from Seattle. ?If you need anything, please let me know.
Trina?
i carry your heart with me(i carry it in my heart) Our first love and loss 7/2/07
3 cycles clomid TI = BFNs
3 cycles clomid Ovidrel IUI = BFNs
6/27/08 Surprise BFP = chemical pg
IVF#1 July 08 BFP @7dp3dt
TTC #3 since February 2010
FET Sept. and Oct. 2010=BFN's
IVF#2 June 2011=BFP
I'm so sorry. I had laser surgery for TTTS two weeks ago and was diagnosed the Monday before at 20 weeks. We were Stage IV and it doesn't sound like you're that far yet - I hope not.
If you have to go to Houston, I had the most wonderful experience at the Baylor Clinic. Dr. Johnson and his team were amazing through the hardest, scariest time.
I will pray that you and your babies are well! Don't let my story scare you. Here's a link that Dr. Johnson's office sent me - the video is long, and realistic and scary, but helpful: https://miraclesofmultiples.blogspot.com/2008/08/ttts-counselling-video.html
Like a few of the other posters, my boys also had TTTS. The fluid levels on the recipient never got low enough for us to need any treatment, but at birth there was a 50% size difference between the two of them. They are strong and vibrant little guys now.
Hang in there and please keep us updated. I'll be thinking about your sweet little angels, and I hope those fluid levels stabilize.