Good and bad news

Shanseur*

This morning I got a call from the perinatologist's office and said that they could fit me in this morning at 11:15.  I said YES!  DH, Audrey, and I went and had an ultrasound done of the twins.  The good news....we are having two boys!  The bad news is...one of them has cysts on his head which is an indicator for trisomy 18.  Healthy babies do sometimes have this though.  About 1% of healthy babies have this indicator but then they turn out to be fine.  Not such good odds to go off of but we are hopeful.

Of course I cried a lot.  I know that it is not my fault but I couldn't help but feel like I'm doing something wrong.  DD has a hole in her heart and just had surgery for her grade 4 urinary reflux and I felt like I wasn't doing something right for this other baby as well.  I'm trying not to let my mind go there too much though since the other baby seems to be doing fine and this could possibly turn out to be nothing for the other baby.

Surgery and this news is just a lot to deal with at the moment.  We are doing fine though.

It does make me not want to buy two of anything...

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(HUGS)).  that is a scary thing... i will keep your little man in my prayers that all turns out OK!!!!

pea-kay

i'm sorry you didn't get all good news, but hopefully it turns out to be nothing.

congrats on your boys! 

armo

We had this one our DD too, and it was scary to hear, but she came out perfectly normal.   apparently it's quite common and benign.   She's fine so far!  On the next big (i forget when, 18 weeks or 21 weeks?) ultrasound, they'll check that DC opens and closes her fists etc and other signs hopefully indicating that everything else is on target.

 

viety82bur

Hi--I'm bored and lurking today but I've had some experience with this.I take it they're choroid plexus cysts????  If there are no other indicators (heart problems, other issues) it's probably nothing.  They showed up on my u/s at 19 weeks and at the time the doctor was very reassuring (after all, no one wants to hear that "there is something up with your baby's brain") and said that without any of the other markers it was most likely something that would just go away, and usually it goes away by 28 weeks.  Sure enough, we went back for another u/s at 29 weeks and she was fine.   Apparently they show up in approx. 3% of u/s's and in those 3% over 90% of them go away by 28 weeks.  They should have better explained things to you.  Also, I googled choroid plexus cysts and while googling is usually bad, I found out a lot.  They should send you for a level II u/s if they didn't do one already to check him out a bit further.  Try not to worry too much at this point--he's most likely fine!!!!!

 Oh--I forgot to mention....apparently these have always been around but u/s machines weren't good enough to pick them up until recently so it's something that was never an issue until now because no one really knew about them.

njarvis

Congratulations on your boys!  I am wondering if you might have misunderstood what the percentage means because you were very upset and worried.....we had this finding as well, but were told that because everything else appeared normal that it was only a 1% chance of Trisomy 18.  The doctor said that the cysts are a marker for T18, but that when they are the only finding on the baby then 99% of the time they go away and everything is fine!  I hope this makes you feel better!  Maybe you could call them back and get a little more information?

skimberlin

Well congrats on the boys and it turns out to be nothing. You all will be in my prayers. Just stay strong! I know it's hard especialy with the way your emotions are right now.

goldenmama

try not to worry! we had them show up also and the worst thing you can do is google or hear all the doom and gloom. the U/S that found them before she told the doctor said she had seen 12 ppl that morning and SIX yes six of them had the cysts..that is how common they are!!! As a pp said if everything else looks good try not to worry...by the time we got to our 27 wk U/S they had dissapeared.

congrats on the two boys!!!!!!

Brongemonger

I'm so sorry that you are in this scary situation. However, I absolutely hope and pray for you hat things work out well!! Just try and relax and you'll get through this OK. :-)

JChandlerJBates

Just want to say congrats on the boys and hopefully everything will turn out just fine.

raesue

I just want to repeat what the pps said.  On an u/s we saw cysts on our DS (choroid plexus cysts).  Everything is fine with him.  They were gone by his next u/s 2-4 weeks later.  According to our peri they are VERY common, and like someone else said it's just now the u/s equipment is so good they pick them up more.

Good luck....don't get too worried yet - and congrats on your 2 boys!

Kim777

Congrats on two boys! I hope everything turns out fine and the cysts are gone at your next appt.

ChiBride2007

Congrats on the boys. I hope all turns out well regarding the cysts. Sounds like lots of other people have had similar experiences, so hopefully you'll get good news as well.