hydrocephalus

courtneyaok

I just spoke to the doctor, of course, at 8:30 on a Friday night, and she thinks that baby A might have very mild hydrocephalitis.  DH and I looked it up on WebMD and are obviously upset -- has anyone else had experience with this?

The doctor is referring us to a perinatologist on Monday so that they can get a closer look.

maria15288

Stay stress free. doctors often make mistakes and until the peri tells you that there is something wrong you shouldn't worry.

SCOOTER

And step away from Google.

 

GL.

mrsbaecker101108

I just happened to click on the link to the multiple board by accident and saw this post glaring out at me. I'm not a twin mom or a mom at all for the matter, however, I do myself have Hydrocephalus.  I was diagnosed at 1mth old.  I had a shunt put into my head with a tube draining the excess fluid into my abdomen.  I had a second surgery when I was 10yrs old to extend the tube since I had grown. 

 

I did have regular CT scans and xrays to make sure the shunt was working properly, however, I never had a problem with it.  I do know others who have had to have the shunt replace because of malfunction, however, they are not as common these days.  But it is a possible complication.

 

I played contact sports all through my childhood, had straight A's and graduated with honors from college, so don't let google make you think that IF your baby has hydrocephalus they will be a special needs child.  By no means did was I ever considered such.

 

I hope this eases your fear a bit.  But like the other poster said, wait to get an official diagnosis first before assuming the worst.  GL to you and your babies!

 

oreille

Agreed with MrsB. I am a fraternal twin myself and was a hydrocephalus baby.  Don't let this worry you until it has to.  The treatment, as MrsB described, is a shunt to drain the fluid.  Or, you baby could have a freak case like mine, where I did have hydrocephalus, but the problem somehow resolved on its own, before the scheduled shunt surgery (sorry, I don't have more details).  I was a straight A student all through school, and am currently enrolled in a doctoral program.

PianoPlayingSarah

One of my triplets has hydrocephalus as a result of spina bifida.  Hers was very obvious during our 17 week u/s. 

She had a shunt put in when she was about a week old and hasn't had any problems.  She's a very smart toddler - not behind at all b/c of this.