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Multiples
SaucySarie
member
My worst fears came true today (long)
SaucySarie
member
in Multiples
So today the girls had Rehab Clinic appointments. We get there at 2 our appointment is at 2:15 and we have to wait until 3 just for the Dr. to even come in! Then she sits down and asks "So....what's the problem?" Um...you told us to come back in 6 months and we would have another discussion about the girls' progress? Thankfully, the girls' PT came with us and helped me out a bunch. We talked about equipment for the girls- a stander, some ankle braces, and a special seat for each of them that holds their heads better (it also fits on a stroller- kind of like a mini-wheelchair). She agreed to all of that, examined the girls and said she would be right back with some papers to take downstairs for their braces. When she came back she handed me the papers and I didn't even look at them. She asked me if I had anymore questions, I said no. Then I look at the paper she handed me and my heart about froze in my chest
Diagnosis: Cerebral Palsy
WHAT?!?!?!?! I mean I always knew that from the lack of oxygen the girls suffered in utero, there was a chance, but NO ONE ever told me that this was their "formal diagnosis". So of course I call her back into the room and ask what is up. She says that from what she has gathered and her exam of the girls, they have CP. A "formal" diagnosis won't be made until they are 2, but they can go ahead and say that is their diagnosis. Complete and utter devestation is the only way I can describe it. I felt my whole body go cold and numb, and I still feel that way. I cannot believe my sweet baby girls have this and am saddened at the way we had to actually find out.
Thanks for listening- you ladies are absolutly wonderful
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Re: My worst fears came true today (long)
I'm so sorry. ?This must be so hard for you. ?
For what it's worth, I work with a girl who has CP (along with her twin brother) and she is really smart and leads a very full life. ?Went to an Ivy League university, law school, etc. ?A CP diagnosis may not turn out to be as bad as it initially sounds. ? I hope that's the case for your girls.
Oh Sarah. I am SO sorry. I prayed that the girls would catch up and you wouldn't have any more pain.
This just makes me even more angry when those girls post asking how they can have mulitples because they always thought it would be fun.
Hugs to you and your family right now.
PS, WTF is wrong with that dr?
I'm just a lurker here -( I have a family full of multiples, so I drop by sometimes to read some of the posts on this board), but I wanted to offer you some reassuring words.
My cousin has a son with CP. He is a beautiful, bright little boy. Despite some of his physical limitations, he has come such a long way - even in terms of his mobility. He's walking (with leg braces) despite the fact that doctors said he would never walk!
I can't imagine how devistating this is for you and your family. You will be in my prayers. Please know that there is so much new information and technology out there now, that although this diagnosis seems so dark at this moment, there may be some light in the future!
I'm so sorry about the girls. No matter what, they are sweet beautiful little angels!
BTW-what a terrible doctor!
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(((HUGS))))
I so sorry about your sweet beautiful little girls.
I am so sorry for the day that you had today. What a jerk that Dr was.
Your girls are so adorable! We are here for you (hugs).
not only is the diagnosis life changing...but the way you found out was traumatic. ?i'm so sorry that it had to go that way, and i'm sure you'll feel cold and numb for a while. ?your girls are so very lucky to have you as their mom. ?i know you will fight for everything and anything they need. ?i can't imagine your pain and sadness. ?please know that we are here to support you.
-april?
Oh Sarah! Your girls are adorable and beautiful. This is not the end of the world. You CAN do this! They will have a tough road ahead, but are so lucky to have you as their mom and their brother to be their protector and rock. I will pray for your sweet family. You are an amazing mom. Your girls are lucky to have you. Keep your chin up!
P.S. Dr needs to get some class and manners!
I am so sorry
Honey, I'm so sorry. Your family will be in my prayers.
Baby #3 due September 12, 2014!
Oh sweety, I'm sorry. You definitely need a formal diagnosis with a "degree" of CP since there are so many.
Hugs to you sweets?
I'm so sorry - both for the diagnosis and the way the doctor treated you. I encourage you to find another doctor who will treat you with respect and hopefully educate your more about CP and severity of your DDs' CP. My brother has CP, but thankfully, it limits his life in rather small ways. Primarly he walks with a slight limp and he doesn't have full use of his right hand - but he manages very well physically.
I wish the best for your family.