My baby was due Dec 29, but found out this week his heart had stopped, likely due to severe Down syndrome. Dr told me he had multiple deformities. She told me the chances of this happening again are slim, but Google hasn’t eased my concerns at all. Not trying again immediately, but just wondering if there is anyone here who has had Down syndrome pg loss and gone on to have a healthy pregnancy. I’m 32 I have 2 kids already. Had no indication anything was wrong this time, so I was completely blindsided.
Re: Chances of this happening again?
As for success stories... it's not me... I'd literally give my left arm to discover the cause of my losses...
I found out about the 2nd mmc at my 12wk scan and had the d&c last week. It's just devastating to go through this, especially more than once. I feel kind of lost right now. I know this is a rant - thanks for reading and I'm really thankful to have this board.
Did you have the fetal tissue tested from your second loss?
Also, I know it's hard to do... but for future pregnancies, remember that you ARE PG at that moment... and nothing you do is going to change the outcome, and you don't want to regret any time you had with/thinking of THAT baby. So just appreciate every day that you ARE PG and think to yourself that you are thankful that you are PG THAT day, regardless of whether you get to connect for 2 days, 6 weeks, or an entire PG until a healthy child is in your arms.
Hoping you have a much better outcome than I did!
I did request to get the fetal tissue tested this time, but have not seen any results yet. My first mmc I tried to pass naturally but then ended up needing a D&C two months later to remove retained tissue, so there wasn't anything left to really test for on that one.
I have a follow-up appt. with my OB on July 3 to talk about the additional testing and have been trying to do as much research as possible so I know what tests to ask about - were there any tests you found particularly helpful or a total waste of time? I'm tempted to just get the full panel and get everything out of the way vs. trying to do anything piece wise. I was also looking into the "general management" options such as taking baby aspirin next time but I feel like I need to do more research on that.
It's scary not to know whether next time will work, but you are completely right in living in the moment. Many of my friends who have never known and hopefully never will know the pain and sadness of mc complain about how annoying or uncomfortable their pregnancies are, but I will surely be thankful for every moment of mine!!
In the meantime, I'm trying to make a summer "bucket list" of things I wouldn't have done if I were pregnant and hope that will help to pass the time healthily and constructively. Also hoping to focus on strengthening my marriage so we can face whatever is coming our way in the future. Best of luck to you as well and happy to be able to connect - makes me feel less alone
Tw: my 1st pregnancy I had a living child who has t21, was 28 at the time. end tw
I got pregnant 18 months later and had a 1st trimester miscarriage. Then had a neurotypical baby last year.
The chances of your next baby having any chromosomal anomalies is 1%, until 40 and then it goes up. And yes there are a few local moms who have 2 kids, so it does happen. Also, translocation is rare ( 3% but only half are inherited) so if you are worried, you can get tested.
My first pregnancy resulted in my dd. Then I had an early second trimester loss that was most likely due to Down syndrome. I also had 2 possible CP that we couldn’t be sure of. Then I had my DS. We started trying again a few years later, I had a molar pregnancy followed by 2 CP’s. I am now 15 weeks pregnant with a healthy boy. While I have successfully gotten pregnant with a healthy child, it hasn’t been an easy road, but there is hope. Best of luck to you.
I'm sorry what you're going through. I'm responding to both empathize and give you hope. I have a healthy 3 year old daughter, and when she was 1.5 I got pregnant and had a miscarriage at 16 weeks due to Down Syndrome. I was really scared about the same thing happening again, but we decided to try again anyway. 3 months later, I got pregnant again and had my healthy baby boy last August. It was a very tough pregnancy mentally for me, because I was constantly worried about his health. And a big part of me is scared to try again in fear we will have another miscarriage if we try again. Oh and I am 34.