CDH

sparklingdiamond

Unfortunately at our appointment today, it was confirmed that baby girl has CDH (congenital diaphragmatic hernia).  It is when the diaphragm doesn't properly form and there is a hole in it that allows the organs to move into the chest cavity.  The stomach has moved up there and it looks like possibly the liver and part of the bowel too.  When this all moves up there, it inhibits the lungs from growing.  There is a high mortality rate with CDH.  I am scheduled for an amnio next week to see if this is an isolated thing or if there are any other underlying genetic issues.  Basically, it's a wait and see thing because we have to see how much the lungs develop.  If possible, they will do surgery to repair it after the baby is born.  Sometimes, nothing can be done if the lungs don't develop enough.  I may go through the pregnancy just to hold her for a little while.  I am just so numb.

curleemama32

I am so sorry you got this news. Prayers are going up for you and your little girl.

tincupchalice

So many hugs for you as you try to process this.

thunderberry

Oh no, I am so so so sorry to hear this . I know that is a very scary diagnosis. I hope yours is one of the ones that can be repaired and you get reassuring news at the amnio next week. My thoughts will be with you and let me know if you ever want to talk, or need anything.

nanifrog

I have no words. I wish I could give you a hug. Thinking of you.

tincupchalice

I want to reiterate that we're all here for you, no matter what happens and no matter what choices you face and make in the coming days.

abhphilly

I'm so sorry. Hopefully she's a fighter and her little lungs keep developing! At my anatomy scan last pregnancy they thought that might be an issue with my daughter as well, but it was minor in comparison to other major issues that unfortunately made the pregnancy unviable, so I never got much information on it. I will keep you and your baby in my thoughts. I'm sure the doctors will do everything in their power to care for her and give her every chance.

sbaby2019

Oh no, I am so so sorry to hear this news. I really have my fingers crossed that your next appointment brings some positive news. Thinking of you! 

charlestonchew

I'm so sorry you got this news. Hoping for the best possible outcome for you and your baby girl. Thoughts and prayers.

okaykoala

I am so, so sorry to hear this. You'll certainly be in my thoughts--here's hoping for a positive, healthy outcome.

suchaglencoco

This is heart wrenching. I am so sorry that this is the news. 
I am crying just from reading that so I cannot imagine how you are feeling.
We are here for you to vent or talk things through with.

melanier26

I am so sorry. I can’t imagine how you feel. I will pray for you and your little one.

mileswithmyles

I am so, so sorry to hear this.  So much love to you, @sparklingdiamond.  I will keep you and baby girl in my thoughts.  We are here for you no matter what.    

JNCPro3130

@sparklingdiamond, I am so terribly sorry for this news!  Please keep us posted as you find out more.  My prayers are with you, your family, and your precious baby.  We're here if you need anything!

Jlr025

I'm so sorry to hear this. I will keep you and baby girl in my thoughts. I hope your next appointment brings positive news. 

fraufarbissina

I am so very sorry!  I'm thinking all positive thoughts for you and your baby.  We are all here for you!  

lady_mormont18

PM me if you would like.

Last year I gave birth to a child with CDH. They did not catch it on the early ultrasounds and it was diagnosed at birth. As soon as they laid her on my chest she went purple and was rushed to the NICU. She had surgery at 3 days old.

Today she still has lingering cardio issues, but is asymptomatic and thriving. It is the scariest thing I have gone through. We were very lucky, but I will never forget the time in the NICU or hearing about the diagnosis. My prayers are with you and I am here if you need support.

Ceridwen77

This is heart breaking.  I am so sorry for you and your family, but I will keep the positive thoughts coming that baby girl's lungs develop.  

gildah

I’m so sorry to read this. My heart goes out to you! I had a student with CDH and she was a petite but thriving little girl. As I recall she did have some comorbidities, but was cognitively right on track and was an amazing singer. She must be 17 years old by now. 

bwow615

@sparklingdiamond I am thinking of you and LO and will be praying for a positive outcome.  

sparklingdiamond

Thank you so much for your support.  I truly appreciate it.

@lady_mormont18 I am sending you a PM

MLD912

Heartbreaking, I'm so sorry you're faced with this. Sending all the hugs and positive thoughts, and we are here if you need anything.

lincbeesmom

I am so sorry. We’re here for you! Hoping for the best for you and your family.

justsuzie

It hurts my hear to read this post.  So sorry. 

holli0801

I'm so very sorry, mama. I can't imagine the agony of the waiting. I will be thinking of you and wishing the very best for your family 

onesmallcoconut

Oh gosh. I can't even imagine how you're feeling. Hoping for the best for you and your family. 

glitzandglitter

I can't not even imagine what you are going through. I will keep you and your sweet baby girl in my prayers ❤️

tacosandvirginmargaritas

Hoping and praying that everything turns out ok, I am so sorry you are going through this. I will be praying for you and your baby girl. 

rachelg777

My heart aches for you, I’m so sorry you got this news. I will be keeping your family in my thoughts.

alli392

Hoping and praying for you. Stay strong little baby girl we’re rooting for you!

lady_mormont18

Just to show you a positive outcome. Here is Maggie Day 1 vs today

bearwithme

Sending so many hugs to you guys and keeping my fingers crossed for the best outcome. 

squashandlaces

I'm very sorry you are dealing with this. I hope everything turns out okay!

heelsidehero

So sorry to hear this. I will be thinking of you and yours.  I hope you are able to get more info soon. 

roomsu

I’m so sorry!  Crying for you and the tough time you are in. Thinking of and praying for you. 

BertieMeetsGertie

I’m so sorry to hear this. FX that the lungs continue to develop and your baby girl will be ok. 

kat11223344

I'm so so sorry to hear this. I will be thinking and praying for you, especially as you play this horrific waiting game. I hope for all the best possible outcomes.

kimmy9876

I'm so sorry , You and your little one will be in my thoughts and prayers

MissusTexas

Oh my gosh. How heartbreaking but we can still hope for the best for your baby girl. 

babydreams88

So much love to you and family ❤️ I'm so sorry you're dealing with this gut wrenching news. 

sandbar517

My heart is breaking for you.  I will be thinking the most positive and loving thoughts for you and your family, and sending the biggest hugs.  Fingers crossed for your appointment next week.