Update 8-8-17 I was induced Friday 8/4. We went in at 8 am, I delivered at approximately 4:20 pm, had to have a D&C to remove the rest of the placenta and finally made it home around 11 pm after a trip to the 24-hour pharmacy. We had no other complications and I've finished all of my scripts aside from my as-needed pain meds. My bleeding has reduced to spotting. My mom was a sweetheart and took the day off of work to come be with DH&I, sent me flowers, and has checked on me everyday. Poor DH worked the 3rd shift the night before and didn't sleep or leave my side (or eat) the entire time. We finally finished telling immediate family yesterday. Both sets of my parents, as well as my brother & SIL have made a point to check on me daily. The staff at my OB's office has checked on me several times over the past week since we found out as well. I think DH & I are still processing all that has happened. I don't think it's quite *real* for either of us at this point. Thank you for all of your love and support these past few weeks, it's definitely helped I'll try and pop in from time to time to get caught up on your LOs as continue on your pregnancy journeys Wishing you all a H&H9 and FX that it works out for DH&I next time.
Original Post.
TL;DR aka Short Story: We confirmed a missed miscarriage of our little bean today, just shy of 16 weeks. I hope you all have a H&H remainder of your pregnancies and bring hope H&H bundles of joy in or around January as planned. We're going to wait probably a week and I'm going to go hang out in L&D all day with DH and/or my MOH while they induce me with Cytotec. Fridays are DH's day off, and that will give me the weekend to recover before going back to work on Monday. I didn't want to do it today because I want time to properly process everything and don't want to do it later because the 11th is my birthday and that's not something I want to associate with that date every year for the rest of my life.
This rest of this post is one big Trigger Warning. Writing is therapeutic to me and a lot has happened in the past 24 hours, so I apologize if I go into too much detail. Hopefully it can help someone else in the future who deals with one of the conditions mentioned.
Long Story: For a bit of a recap leading up to yesterday (as previously posted in HR, FTM, & WA threads): I had an irregular ultrasound on 6/28 at approximately 11.5 weeks with a suspected Cystic Hygroma. I was sent to the lab for a chromosomal test and referred to a perinatologist in a nearby city and scheduled a follow-up with the local obstetrician on 7/27. I had a follow-up ultrasound and visit with the perinatologist at just under 13 weeks and confirmed the Cystic Hygroma. I was still cautiously optimistic because our little bean was wiggling around and still had a good heartbeat. A few hours later the perinatologist's nurse called with my results from the chromosomal screening I had done a week and a half before. It was abnormal, positive for Monosomy X (Turner's Syndrome), meaning our bean was a girl. I spent next several days doing some research on TS trying to educate myself & DH about our very real possibilities of not making it full term, as well as what steps we may need to take or things we may need to look for if our girl made it home with us. Aside from the risk of miscarriage/stillbirth, the actual potential symptoms or Turner's were very manageable with proper health monitoring and additional tutoring/occupational therapy if she ended up having issues with learning certain school subjects or social skills. The perinatologist scheduled me for a follow-up for 7/31 & 9/14, the latter of which I would also be seen by a pediatric cardiologist for a full echosonogram.
Yesterday I had my followup at the local obstetrician. Since I was now deemed high-risk, they no longer let me see the midwife and instead switched me to a patient of one of the physicians. The ob they paired me with (whom I've never met) was on vacation so I actually met with the other local ob instead. Since I was scheduled for an U/S next Monday with the perinatologist, they let me skip it before this appointment, so we just talked to start instead. She went over the results of my chromosomal test and the results that she had in the computer were DIFFERENT than the ones given to me by the perinatologist's office. The results at my local office stated that our bean was male and suffered from Trisomy 18 (Edwards Syndrome). We were both very frustrated and confused. She tried to call the perinatologist's office about the mix up but they were already gone for the day. She vowed to check it out the next day and get back to me. She sat me on the table and got out the fetal doppler. I know something was wrong because she immediately asked me if I had felt any kicking yet, which I hadn't. I hadn't but hadn't really thought about it because I just saw our bean moving around with her?his? little heart beating less than 3 weeks ago and I wasn't quite at 16 weeks yet. She couldn't find the heartbeat, kept asking me about moving, and eventually we swapped rooms with another patient so we could use the ultrasound in that room. That's pretty much when I knew. She tried the abdominal u/s first and couldn't see what she wanted. I couldn't see the heartbeat fluttering or our bean moving at all. She then switched to the transvaginal u/s to get a better look and during that she got called out for a birth at the attached hospital. She asked me to wait if I could and that she would call if it was going to be too late that evening for her to finish my appointment. I opted to wait and sat in the waiting room. She called from L&D and offered to use their sono equipment instead. Her nurse walked me about halfway to L&D and gave me directions when I just had one turn left. We did a 3rd u/s up in L&D and she still couldn't find it. She assured me that she's not a sonographer, but she's never been wrong, and wanted me to return at 8 am when the regular ob sonographer was in so I could be checked again. I asked her about our options for once it was confirmed and had her go over it a couple of times. I did fairly well over the evening. I got some greasy fast food and DH & I mostly sat in silence on the couch. I had been mentally preparing myself for the possibility, but I wasn't expecting it quite so soon. My old friend insomnia (from First Trimester) visited me about 3 or 3:30am and I was unable to go back to sleep.
This morning DH & I were at the office when they opened at 8. There was one ahead of us for sonography, but we were seen fairly quickly. I finally started crying during the u/s, mostly every time I looked at DH. This machine (which was better than the other 2 we used the previous day) was much clearer. I could see it's little features in there, "sleeping." No finger/arm movement, no feet kicking, no heart flutter. The sonographer apologized for the results and gave her condolences and left DH & I alone in the room. I lost it when she left. I was able to compose myself long enough to clean off the gel and grab some tissues, but then I just sobbed and DH put his arm around me and held my hand. After a while she came back and moved us to an exam room so we wouldn't have to go wait in the main lobby while we waited for the ob. The ob from yesterday came in and gave her condolences and the rest of the results. Bean was too constricted in the fetal position to properly measure for an estimated date of when the MMC occurred, and looked hydropic (which would have developed from the Cystic Hygroma and the likely COD). She asked me if I had thought about the options she gave me the next day. During that the perinatologist's office called back, still claims that their results were correct (this should have been the SAME results page, mind you, that they would have received from my ob's office) and that we should do a post-mortem test to be sure. I found the whole thing ridiculous and irrelevant. There's obviously an error *somewhere* since they gave me 2 separate sexes & separate abnormal test results, but it doesn't change the fact that there was SOME sort of chromosomal abnormality and our baby is dead. To my knowledge, neither abnormality has an increased chance of occurring in a 2nd pregnancy. The ob agreed another test was a pointless and unnecessary expense, and was going to have their office manager get ahold of the lab and have them send over a copy of the original results on letterhead to confirm either way so she could determine where the error in communication came from to begin with. I've opted to be induced in about a week if the miscarriage doesn't finish on its own (it could have occurred yesterday or three weeks ago, there's no way to know). The hospital will cremate the remains for us at no charge. While I'm in a okay mood about it, I went ahead and let my nurse at the RE's office know of the loss and asked for advice going forward. I think the both the hardest and best thing about it being chromosomal is that there's absolutely nothing we could have done differently, but also no one to blame. We can just focus on ourselves and each other and then try again.
I tend to not post on these because I don't know what to say, and I still don't know. My heart is aching for you and I am so sorry that you and your husband are going through this.
@WildMagelet I read your entire post. I am so incredibly sorry for your loss. Thank you for being brave and sharing your story to potentially help another person.
Take care of yourself. Again, so very sorry. ❤
Jan '18 December Siggy Challenge: Christmas Movies
@WildMagelet I want to send you all of the love and peace and restful thoughts I can. I am so beyond sorry. And I do think you sharing your story will help someone else down the road. Hugs to you and your family. So tremendously sorry you are dealing with all of this.
@WildMagelet I am so very sorry for your loss. You and your DH will be in my thoughts. Lean on each other. I hope that you are offered comfort from those closest to you in the coming weeks. If you don't want to/can't return to work on Monday, don't. Take all the time you need to grieve for your little bean - it is devastating, but you are not alone.
If you think it would help, I can recommend the MC/Loss board on here - it has been a lifeline for many of us who have faced loss. I am grateful you shared your story. It will help others, at the very least with awareness and understanding. You are so strong, stronger than you think.
My sympathies and big, big hugs to you.
Me: 40, DH: 35 / Married: 2009; TTC #1: 2013
2013 - 2015: 5 pregnancies —> 5 miscarriages
TTCAL with RE (RPL specialist): February 2016
2016: 3 medicated TI cycles —> 3 medicated IUI cycles: All BFN
@WildMagelet How devastating. I'm so very sorry for your loss. I hope you find peace and comfort in your loved ones. Thank you for finding the strength to share.
@WildMagelet Thank you for sharing your story. It brought me to tears. I am so sorry for your loss. Be kind to yourself. You and your DH are in my thoughts and prayers.
I'm so sorry for your loss. I'm sure this experience has been really painful for you all. I have a friend who lost her third baby in the womb to Turners syndrome. She did go on to have another healthy baby after that. I hope the best for you going forward.
So sorry for your loss. Sorry you had to endure such a long, confusing wait to get some closure and that you'll never fully feel like you had accurate information about little bean.
Me-37, DH-38
Married in 2006, TTC #1 since Jan 2012
Baby Boy born June 1, 2015
He settles her in her home as a happy mother of children, praise the Lord! (Psalms 113:9)
And the peace of God, which surpasses all understand, will guard your heart and mind in Jesus Christ (Philippians 4:7)
I'm so very sorry for your loss and all that went through in the process. Know that you and your family are in my thoughts and prayers. I'm confident it will help others down the road, thank you for finding the strength to share.
@WildMagelet I am sending you and your DH all the love in the world from MD...I definitely teared up reading your story and can't imagine the range of emotions that you are going through right now. My prayers are most certainly with you and your family. I will have my mom light a candle at our church tomorrow for your little one. XOXO!
@WildMagelet sending you all warmth and love. I'm so sorry to hear this news. It struck a chord with me reading your posts and my heart goes out to you guys. I admire you sharing your story and your strength with us. Prayers for your LO and best wishes for the future.
@WildMagelet I'm so so sorry for your loss. What a long and scary road to have had to take. I know the pain of a MMC and seeing your sweet baby no longer there but still inside of you. Please take the time to heal. Prayers and love are with you.
Words can't express how sorry I am for your loss. Thank you for being brave and sharing your story. I pray for peace of mind and comfort to you and your husband. Take care of yourself and each other.
I am so so sorry. I teared up as I read your whole story. Thanks for sharing it! I hope you are surrounded by people who care and support you! Prayers for you and your husband!
Thanks ladies. Your thoughts, prayers, and well wishes are definitely appreciated. This next week will be a long one for sure. Nobody knows there was an issue at this point aside from myself, DH, and my best friend. I've decided to wait and share the news with our family until after everything's all said and done. I think it'll be easier on everyone (myself & DH included) to heal without having that one final step to worry about, and I definitely don't want a million texts & phone calls the day we're sitting in the hospital waiting for it to finally happen. And at that point I'll honestly be able to simply say "DH & I just spent 4/6/8/etc. hours in the hospital. The baby's gone."
I'm so incredibly sorry, @WildMagelet. My heart aches for you. I hope you're able to find comfort with family and friends during such a difficult time. Many, many comforting, creepy internet hugs coming your way.
Re: *TW* (Updated 8-8)
J18 December Siggy Challenge: Christmas Movies
I use Hypnobabies! http://www.hypnobabies-store.com/link.cgi?affiliateID=472
J18 December Siggy Challenge: Christmas Movies!
EDD: 1/6/2018
Eva Jane: 7/23/2014
Take care of yourself. Again, so very sorry. ❤
Jan '18 December Siggy Challenge: Christmas Movies
DD1 EDD 9/29/2015, Born 9/24/2015
DS1 EDD 1/3/2018, Born 12/26/2017
BFP #3 3/21/2019, EDD 11/29/2019, MMC/D&C 5/7/2019
BFP #4 6/28/2019, EDD 3/12/2020
If you think it would help, I can recommend the MC/Loss board on here - it has been a lifeline for many of us who have faced loss. I am grateful you shared your story. It will help others, at the very least with awareness and understanding. You are so strong, stronger than you think.
My sympathies and big, big hugs to you.
Me: 40, DH: 35 / Married: 2009; TTC #1: 2013
2013 - 2015: 5 pregnancies —> 5 miscarriages
TTCAL with RE (RPL specialist): February 2016
2016: 3 medicated TI cycles —> 3 medicated IUI cycles: All BFN
Donor Egg IVF Transfer: May 1, 2017
May 11, 2017: BFP!! Beta #1: 449.1, Beta #2: 844, Beta #3: 1714
EDD: 1/17/18, it's a GIRL! E. L. A. born 12/7/2017
DS2: Jan. 2016
DS3: Dec. 2017
Baby #4 on the way!
SD: 21 & SS: 17
BFP #2 6/3/2020
*Trigger Warning*
Married: June 2011
TTC since Feb 2016
BFP#1: 7/7/16 MMC: 8/16/16
BFP#2: 5/8/17 - CP
BFP#3: 6/27/17 EDD: 3/10/18