Has anyone here been dx'd with this?
I stopped birth control in Nov 2015 and everything has been a mess since then.
Was first dx'd with PCOS but it wasn't properly tested and never fit me completely. So I got second opinions and went through an endometrial biopsy to get this new dx.
I find very few articles on it, and basically my doctor said that my endometrium wants to shed at different times, causing irregular cycles, anovulation and breakthrough bleeding.
Her cure for this is birth control for 2-3 months.
This just doesn't sit right with me. I feel like birth control is what got me into this mess.
So I'd love to hear from someone who has been through the same/similar thing.
I failed a progesterone challenge a year ago. This didn't cause my doctors as much distress as you'd think it would do. My AMH is 6.4 so I'm not in early menopause. My docs don't want to listen to my theory of hypothalamic amenorrhea even though I don't have a thyroid.

Me: 28 DH: 29

Married since 2012 dating since 2005.

Golden Retriever girls (8) and (3), orange feral rescue tabby (1).
Finally TTC#1 as of 11/2017!
Thryoidectomy 2007, PCOS, disordered proliferative endometrium.
Re: Disordered Endometrium
TTC #1 Since: April 2015
Unexplained Infertility
Cycle 1&2 : Clomid 50mg- BFN
Cycle 3: Letrozole 2.5mg- BFN
Cycle 4: Letrozole 5mg- BFN
Cycle 5: HSG-normal
Clomid 100mg+ Estrace- BFN
Cycle 6: Letrozole 5mg+Trigger shot+IUI+Progestrone- BFN
Cycle 7: Letrozole 5mg, Cyst found during follicle check
Cycle 8: Birth control to treat left ovary cyst
Cycle 9: Letrozole 7.5mg+Trigger shot+IUI+Progesterone- BFN
Cycle 10: Letrozole 7.5mg, 2 Cysts found during follicle check
Cycle 11: Clomid 100mg+Estradiol+Trigger shot+IUI+Progesterone- BFN
Cycle 12: Clomid 100mg- BFN
Cycle 13-16: Natural attempts while awaiting IVF
Cycle 14: IVF-BFN
Finally TTC#1 as of 11/2017!
Thryoidectomy 2007, PCOS, disordered proliferative endometrium.