I've been around the knot and the nest, and now I'm here. I'm not sure where to start, but like many of you I'm just looking for a place where I belong with others who understand.
My journey started when I was in my early 20's. Short version, I asked my GYN about PCOS as I had many of the symptoms. I was told it wasn't an issue and not to worry about it until we were TTC. While we were not actively trying, I ended up having a miscarriage in December of 2006. Over the years I continued to seek a doctor who would test me for PCOS, and even though I kept asking because of all the other health issues, I met the same brick wall - "You're not actively trying so it's not an issue. We can worry about it when you are ready to start having kids." The answer was always BCPs. Needless to say frustrated doesn't even begin to describe it.
I was diagnosed with chronic complex migraines in March 2015. I began reading everything I could about potential triggers and alternative therapies. Many were saying that birth control was causing issues for them so I talked to my neurologist about it. He agreed that it could be a trigger and to discuss it with my PCP. I explained to her what was going on and she said "we there are other forms of prevention if you are not TTC." I told her that I was on the pill to regulate my periods and before I knew it my whole story flew out of my mouth. She suggested I stop the pill and after 3 months she would order blood work. I stopped the pill July 2016 and have been actively TTC since August. My blood work came back and she wanted me to have an ultrasound and a trans-vaginal ultrasound.
November 21 I was officially diagnosed with PCOS based on my blood work and multiple cysts on both ovaries. I cried. I was relieved that someone FINALLY listened to me, I was overwhelmed because I knew I would have a long road ahead. She initially put me on Metformin, 1000mg. At my last visit I told her it wasn't working, 4 months and still no period therefore I don't think I'm ovulating. She wanted me to wait a few more months before taking the next step but that wasn't good enough for me. I went to a recommended OBGYN earlier this month and again explained my story. She agreed that the Metformin in the current dose was not working as I haven't had a period since August 2016. She upped my Metformin and wants me to try it for 2 months and if that doesn't work we will move to the next step.
I know I haven't been TTC as long as some of you have, but I struggle with many of the same feelings and issues that many of you have for years. So that's my story and it feels good to get it out to people who understand. I've stopped telling people we are TTC because I get so sick of hearing "it will happen when you stop trying!" I look forward to getting to know you all!
Me: 34 - SO: 40
TTC #1 since 8/2016
FINALLY diagnosed with anovulatory PCOS 11/2016 (Insulin resistance and multiple cysts on both ovaries)
Miscarriage on 7/19/17 at 7 weeks
Miscarriage on 10/16/17 at 5 weeks
Re: New to the Board (TW - Loss Mentioned)
Best of luck to you going forward- I don't have PCOS, but many other women here have experience with it. I hope you find support on these boards.
I have PCOS and am on Metformin too - and it can be so hard to find a good doctor. My story was similar - doctor didn't listen, wanted me to wait a few months, etc so I found a new one that would listen
So as my doctor says - it's a marathon, not a sprint, but we'll get there eventually.
Keep positive and make sure to use everyone here for venting
TTC #1 since July 2016
Dx: PCOS, on Metformin since Feb 2017
I hope your new dosage of Metformin works.
TTC #1 Since: April 2015
Unexplained Infertility
Cycle 1&2 : Clomid 50mg- BFN
Cycle 3: Letrozole 2.5mg- BFN
Cycle 4: Letrozole 5mg- BFN
Cycle 5: HSG-normal
Clomid 100mg+ Estrace- BFN
Cycle 6: Letrozole 5mg+Trigger shot+IUI+Progestrone- BFN
Cycle 7: Letrozole 5mg, Cyst found during follicle check
Cycle 8: Birth control to treat left ovary cyst
Cycle 9: Letrozole 7.5mg+Trigger shot+IUI+Progesterone- BFN
Cycle 10: Letrozole 7.5mg, 2 Cysts found during follicle check
Cycle 11: Clomid 100mg+Estradiol+Trigger shot+IUI+Progesterone- BFN
Cycle 12: Clomid 100mg- BFN
Cycle 13-16: Natural attempts while awaiting IVF
Cycle 14: IVF-BFN
TTC #1: Oct 2015
DX: Unexplained - all tests normal
TXX:
Jan '17 - 1st round of Letrozole 25mg CD1-9... BFN
Feb '17 - 2nd round of Letrozole 25mg CD1-9... BFN
Mar '17 - 3rd round of Letrozole 25mg CD1-9 + IUI... BFP!!!!!!
DD - 12/28/17
TTC #2 3/2019
BFP 5/2019 || MC - D&C 5/2019
BFP 2/2020 || EDD 10/10/2020
Married June 2014
TTC #1 since March 2016
Dx: PCOS
On Meftormin since Feb 2017
Married since 2010, TTC since Dec 2013
Dx: PCOS
Me: 36 DH:35
Married: 7/10/2016
TTC#1 - May 2016
BFP 9/6/2016 - Missed MC 10/20/2016
BFP 5/5/2017 - CP
IVF #1 - June 2017 - Transferred 1 fresh 4 AA embryo. 7/9 Beta #1 - 161