September 2017 Moms

Less than stellar NT scan...?

124»

Re: Less than stellar NT scan...?

  • @Texafornian I am so sorry you're going through this. Little baby is a fighter though with that strong heartbeat. Probably gets his/her strength from you! Whatever happens, we are here for you. I know you're headed down a difficult road, we are all here for you. I know we don't know each other and all but please let me know if there is ANYTHING at all I can do. I'd like to give you a big squishy hug but I'm too far away. 
  • Loading the player...
  • @Texafornian I'm so sorry to hear this news. Sending you positive thoughts to get you through this difficult time.
  • @Texafornian I am so sorry. I am glad you are getting answers and that you will have the preliminary results quickly. My thoughts and prayers will continue to be with you during this very difficult time. 
    Babysizer Cravings Pregnancy Tracker
  • @Texafornian I'm sorry things aren't looking good. Sending lots of T&Ps!
  • @rainafire77 and @daniellelynette thanks for the hugs... <3 I'll take 'em 


    Baby Birthday Ticker Ticker

    **TW**
    Losses:
     #1: 8wks MMC 4/16
    #2: 13+4 T21 + Hydrops 3/17
  • @Texafornian still praying for you and your family.  
  • @Texafornian I'm sorry you didn't but get the news you had hoped for, but I'm glad you are making peace with all of this.  Big creepy internet hugs and hoping the rest of this pregnancy is healthy and well for you! 
  • Thank you for keeping us updated. I've been thinking of you and your family. I'm sorry you have to go through this. I wish you peace in whatever you decide going forward. Hugs hugs hugs. 
  • The draw certainly does not sound fun and neither does more waiting. But I'm so glad you got the testing done in time so you can get some answers. Big hugs and all the positive thoughts for you and your little one. 
  • I'm so sorry to hear all of this @Texafornian
    thinking of you. 
  • @Texafornian thinking of you, and holding on to hope!
    Pregnancy Ticker
    Baby Birthday Ticker Ticker
  • @Texafornian I'm so sorry you're going through this difficult experience. It sucks and I'm thinking of you. You are such a sweetheart and a support to all of us on this bmb. I hope that your results come back quickly. Lots of love to you. 
  • @lilpoots xoxo


    Baby Birthday Ticker Ticker

    **TW**
    Losses:
     #1: 8wks MMC 4/16
    #2: 13+4 T21 + Hydrops 3/17
  • @Texafornian a hug and support!  Words aren't really adequate, but I hope you feel all the good juju coming to you from all of us here!!!
  • @IsItTacoTuesday I do...soooo much. Thank you xo


    Baby Birthday Ticker Ticker

    **TW**
    Losses:
     #1: 8wks MMC 4/16
    #2: 13+4 T21 + Hydrops 3/17
  • How are you doing today @Texafornian ? How is your DH doing?
  • @daniellelynette I'm ridiculously sore but mentally we are both hanging in there. My bff, her hubs and her 2.5yo son are flying in in a few hours so I'm organizing and it's keeping me preoccupied. 
    Do they want you to be on bedrest for a certain amount of time afterward? I can imagine you're pretty sore! Especially since they had to poke you twice :( Good that you get to see your BFF and family! That will be good! 
  • @Texafornian oh I bet, I'm constantly picking DS up, he weighs about the same as your DD. How is your DD doing?
  • @daniellelynette just no strenuous activity for 48h, no sex for a week (as IF lol) and take it easy. Hardest part has been not picking up my 24lb toddler...
    Oh geeze... how are you supposed to not pick her up? That would be rough.
    Pregnancy Ticker
  • @Texafornian just came over here to read your update from yesterday. I'm praying you get a miracle! It must be hard to wait another 2-3 weeks for more results! Part of me really wants to know if my baby has any genetic abnormalities, and part of me is so afraid of going through all that you are that I'm considering avoiding it. Question: Does your insurance cover all the tests? I know that many don't cover genetic testing, but in both our cases I would deem it medically necessary.
  • TexafornianTexafornian member
    edited March 2017
    @daniellelynette DD is great...she's not entirely grasping the idea of baby yet so I think she'll be fine no matter what. She is a little pissy that I'm not hoisting her up every two seconds though lol.

    @HollyGolightly09 I deserve to hubby for the lifting...he's like my errand boy lol. I should make him wear a sexy maid outfit...  :D

    @Toshandbaby my preliminary tests (which I'll  most likely now get Monday since it's 5p and no word) will tell me the trisomies. That's what I'm mostly waiting on as the baby has Hydrops Fetalis as well so the Hydrops in combo with any of the Trisomies is a REALLY bad combo. Mortality and morbidity rate is pretty high with both. Separately, T21 is workable but T13 and T18 not so much. Hydrops alone without trisomies is iffy but depends on the case. Right now baby has 7mm NT, edema of skin/brain/abdomen (which is all the Hydrops). If the trisomies come back negative then I'll wait and do an amnio for further testing if baby makes it to that point. If the test shows a Trisomy...which based on genetics and three diff ultrasounds with three diff doctors that have all said it IS present...then I have a huge decision to make about continuing the pregnancy. There's risk with continuing for me as well as for baby...Mirror Syndrome (taking on baby's symptoms of edema, hypertension and pre-e) so I have to factor that I'm as well...Higher blood pressure (which I'm already showing a bit...among other stuff. It's an impossible position to be in.
    To answer your question...my genetics was covered as I'm 43. Are you over 35? If so, it's covered. If not, if the doctors request it and it's medically necessary, I'm pretty sure it's covered as well. If not, know you can call for cost. If it's elective and you're under 35...not covered. An NT scan plus the first and second trimester blood screens ARE covered. 
    Like I mentioned your thread...I'd do the testing especially if the docs suggest it. I think either way you'll wonder if there's something wrong. The tests most likely will givevyou piece of mind. :)


    Baby Birthday Ticker Ticker

    **TW**
    Losses:
     #1: 8wks MMC 4/16
    #2: 13+4 T21 + Hydrops 3/17
  • @Texafornian Wow! What an incredibly tough position to be in. You are living my worst nightmare from the last few weeks. I really do hope for one of those two things I mentioned before because anything in between just brings to much stress and physical complications to bear. I pray that God makes the decision for you and that you won't have to, and that it comes quickly! I'm only 24, so I'll check with my doctor and make sure it is medically necessary and will be billed that way.
  • @Texafornian I cannot only imagine how difficult dealing with all this must be. Sending prayers.
  • @Texafornian I just read this blog from last year, and thought of you and what you're going through.

    https://www.citytosouth.com/2016/01/1-in-900.html?m=1

    Me: 27 years old            DH: 27 years old
    Type 1 Diabetes since 2001, MTHFR hetero A1298T
    Dogs: Raider 4 yrs, Dex 4 yrs
    Married in July 2014
    TTC #1 since late Feb 2016
    BFP #1 3/29/16     MMC: 5/5/16
    BFP #2 7/6/16    SCH, D&C 8/4/16
    BFP #3 12/26/16     EDD: 9/6/17
    My Chart / My Diabetes/Pregnancy Blog
    My Type 1/TTC/Pregnancy Podcast: 
    Juicebox Podcast Episode 118
    A1Cs:
    1/12/16 6.7%
    5/25/16 6.0%
    11/2/16 6.1%
    3/22/16 5.8%
    4/27/17 5.4%
    6/13/17 5.3%
               
    "Sugar Fancy Tutu"
  • @jillibean0871 thank you so much ❤


    Baby Birthday Ticker Ticker

    **TW**
    Losses:
     #1: 8wks MMC 4/16
    #2: 13+4 T21 + Hydrops 3/17
  • @Texafornian I just wanted you to know I'm thinking of you and praying for you and your family. Your grace through this really tough journey is pretty remarkable. Sending internet hugs to you. 
  • I'm just catching up I'm sorry, that is difficult news. I can't imagine, all the thoughts going through your mind right now.  If there's anything I can do please do tell me know.
Sign In or Register to comment.
Choose Another Board
Search Boards
"
"