Hi ladies! It is really hard for me to join a group like this and be happy but I am finding I need support so I hope to be a community here.
My story, sorry it is long.
I am nearly 27, married 3.5 years and off BC that whole time, although we spent one year living on opposite coasts. We thought foregoing BC and regular sex would eventually lead to a pregnancy but it did not. I worried about my fertility as I was placed on the pill at 17 for having irregular cycles, coming off after we got married it took about 5 months to get a period and it has since been irregular. Horrible and nearly debilitating cramping led to an investigation into cysts which were found but always resolved. The doc suspected endometriosis but I declined an invasive surgery just to find out as even if the answer was yes they can't treat it. A body composition test came back with a low body fat percentage so I started trying to put on a little weight...although my weight is fine my muscle mass kills my body fat percentage and they thought that could play into the irregularity. A year later we decided to see a fertility clinic after still no progress baby making. My bloodwork came back with high testosterone, and ovaries showed PCOS (despite not having any other usual accompanying symptoms). The doctor is unsure if I even ovulate. Tubes, after a second HSG, show unblocked at least.
Unfortunately the hubby had his sperm test come back and surprised us all with numerous issues. Low sperm count (7M/ml), low motility (20%), and zero percent normal morphology. We are waiting to see a follow up analysis but I doubt counts will change much.
I am upset as the combination of factors at our initial consult made the doctor recommend IVF as the only likelihood of conception. My husband thinks the clinic is just after money and the test results don't mean anything because we have never done the sex every other day thing so he considers that as "not really trying" but the doc said three plus years of no BC should have resulted in a pregnancy by now.
I cannot personally do IVF, I was hoping a drug like chlomid would help me ovulate to get things done naturally. Or even IUI. But it seems unlikely those will be successful considering the multitude of issues we face.
I am trying to accept that we may never have kids and am trying to find positives in a childless life but it is hard with so many pregnant friends and family inquiring when we will have kids. My husband doesn't understand my feelings as to him kids or no kids he is happy. We have recently moved due to my job and I have no friends nor the ability to make any here (average age at my work is ~60) so I am quite alone and depressed and it is weighing me down as much as I try to tell myself everything is for a reason or that maybe it is just not fate for me to have kids. Every month, or whenever my female plumbing decides to work, I have a painful reminder of my failure. I think I sill want to try chlomid just to see what happens, then maybe IUI, but that is as far as I am willing to go. But honestly I'm not sure it is worth trying those with the odds stacked against me, I don't want to get my hopes up.
If anyone has any stories of pcos infertility combined with male infertility to share that would be helpful. This is a very dark and lonely place to be.
Re: New to group!
I dont have pcos (that I know of!), but I can sympathize with the excruciating period pain as a sharp reminder that every month we are unsuccessful. As if the BFN isn't hard enough.
I hope you can find some answers and peace here!
TTC#1 since November 2015
9/16/2016 IUI#1 - BFN
10/12/2016 IUI#2 - BFN
1/21/2017 Clomid/IUI#3 - BFN
March 2017 IVF: BFP! (beta#1 191, beta#2 378!) - it's a boy! DS born 12/6/2017
TTC #2 since July 2018
May 2019 IVF #2: BFP! (beta#1 346, beta#2 646) - vanishing twin at 8 weeks. Baby B still going strong - due 2/8/20!
pcos can be regulated with clomid and meds and natural supplements. I have a close friend who went to a natural dr and stopped eating a variety of things, which helped her have regular periods. Also look into tribulus, maca, and vitex all things an RE would never suggest but are safe and work wonders on hormone levels.
i wish you luck but you may be wasting time by not looking at IVF.... and drs and definitely not just out for your money, they usually want to help you get pregnant too.
You don't need to answer if it's personal, but why wouldn't IVF be an option? I know that I used to think the same, if it's not meant to be naturally, I should just let it go (I still do sometimes) but something inside me drove me to start the IVF process, to know for sure...
All this may make it seem more natural for you.
someone suggested having the dr give you clomid to help you ovulate. Maybe that and getting the sperm better will be the magic bullet and you won't have to worry about IVF...
CP #1- due April 2017 lost 5.5 weeks
cp #2- due May 2017 lost at 4.5 weeks
iUI #1- BFN
IUI #2-BFN
IVF#1- transfer 2- BFP! Due October 2017 c/p#3 lost at 3.5 weeks
TTC June 2013
Lap, HSG, Hysteroscopy
High FSH/ Low AMH
Endo Mild/ Moderate
History w/Clomid/Femera/Progesterone
IVF #1 cancelled poor responder
IVF #2 two good eggs/ froze both on day 3 rather then lose before blast
Awaiting sonohystogram to determine if minor surgery needed before FET
However, I was quite surprised to see that not all REs want to do mini or natural IVFs. In fact it is only a few that I researched that specifically are ok with this. I assume it has to do with the negative impact on their success statistics (I find it upsetting that they can't change the reporting so that they can think of me first rather than their stupid ratings but c'est la vie).
TTC June 2013
Lap, HSG, Hysteroscopy
High FSH/ Low AMH
Endo Mild/ Moderate
History w/Clomid/Femera/Progesterone
IVF #1 cancelled poor responder
IVF #2 two good eggs/ froze both on day 3 rather then lose before blast
Awaiting sonohystogram to determine if minor surgery needed before FET
@MariaBend25 It's only "more expensive" in that you may need two or more retrievals, depending on your luck so to speak. You may be successful (having one or two good embryos) from the first one, and in that case the cost would be less.
When our RE first outlined an IUI plan for us, followed by IVF if not successful, I was really surprised. I guess I hadn't realized how badly I'd wanted to conceive our baby at home, just us - doing it another way felt kind of cold and clinical. A few days later, and another AF, I was singing a different tune: suddenly I couldn't wait to book it, and conceiving a child in a clinic seemed like such an act of love, like: "we wanted you so badly, we paid a whole team of people to help us." Now I am even frustrated we haven't started - it's agony, taking the time to document my cycle (even triple-check it!) and wait through my clinic's holiday closures.
My DH took it a little harder than I did, and it is still a sore spot for us. I was surprised - he is very pro-science in every area of his life (I am the spiritual one), but for some reason, he thinks having to ejaculate in a cup again, have that washed, and then injected into me, wasn't "natural" - it makes him uncomfortable to think that is how we will have to conceive.
He is softening, for a couple of reasons:
1) Before the RE's recommendations, he'd been taking the BD and FW seriously, but not as seriously as me. After the RE's recommendations, for the next two cycles, he gave BD-ing like 110%, and we still didn't conceive. Faced with the prospect of another year of that, he was like: "Ok, maybe we do need some help."
2) We've had some serious discussions (and at least one screaming match) about "natural" and "unnatural". We use technology in every area of our lives, and it has hugely helped us. Quite frankly, if it weren't for BC, DH probably would have knocked up his highschool girlfriend, never gone to college, and would still be in his hometown. We never would have met or fell in love, even. We take medicine when we're sick, we drive cars, we use electricity.
All of these technologies work because they exploit some aspect of the natural world: BC works because of the natural hormones you have that regulate your reproductive cycle, vaccines work because of our natural immune response. Likewise, clomid only works because of how your ovaries work; IVF and ICSI only work because of our natural cellular reproductive process - by that I mean mitosis. When I think about that - my DNA fusing with DH's DNA and creating a living, breathing child, with lungs and legs and muscles and a face - the whole process - that, for me, is the miracle, not how the cells get there.
To me, none of these treatments are "unnatural".
DH & I are not 100% there yet - as in, he's not quite on my page - but our game isn't over yet. It could go any number of ways - we have a family, we make peace with childlessness, I leave him and have a family with someone else... Who knows. Whatever happens will be difficult.
This IF journey challenges is in many ways - financially, our marriages, our communication, our thoughts, our beliefs, our bodies. It is HARD and can be very lonely. Whatever you chose, however you decide to go forward, I wish you well and much luck with all of this. xx
Sometimes I wish I weren't willing to try IVF, just because it means our journey is going to be so much longer. My DH is like yours - kids or no kids, he is happy - so the burden of deciding how far to go is on me.
I have thought about what it would be like to be childless. If we are childless, we are going to retire really early, live in a fancy downtown condo with all glass furniture, travel often, and eat really finicky food - stuff kids hate, like blue cheese souffles. I am going to sleep lots and read lots and wear really, really nice clothing, and be a great aunt and have an awesome jewellery collection.
When I tell my DH this, he says: "That sounds great! Why would you want kids anyway? They're dirty and snotty and get pinworm." Which makes me laugh, but I also know, as cool as our life would be without kids and as much as we love each other, I'd rather hold our little baby than have $1,000,000 in diamonds and glass furniture. $10,000,000 even. Really depends on the person.
TTC#1 since November 2015
9/16/2016 IUI#1 - BFN
10/12/2016 IUI#2 - BFN
1/21/2017 Clomid/IUI#3 - BFN
March 2017 IVF: BFP! (beta#1 191, beta#2 378!) - it's a boy! DS born 12/6/2017
TTC #2 since July 2018
May 2019 IVF #2: BFP! (beta#1 346, beta#2 646) - vanishing twin at 8 weeks. Baby B still going strong - due 2/8/20!
So I am definitely driving our IF bus. We've had some serious arguments, and sometimes I wonder how I manage to keep pushing so hard. It would be a lot easier if we were on the same page and shared the same medical beliefs. I like to remind myself that this is all my choice - what we do, what we don't do, how we decide to tackle this. It helps for me to see my own agency in this, it makes me feel less like a victim of fate.
So interesting to me this mini debate about gender reassignment surgery coverage! I obviously can't speak for @MariaBend25 - we have different beliefs about medical procedures - but when I've combed through insurance documents, I've had reactions like that, like: "I see, this coverage pays for this, and this, and this, and this, and not IVF! This is bullshit!"
For me, it's not about gender reassignment surgery at all, it's just how arbitrary all the judgements are. Like how some things are considered worth funding, and others aren't. How some procedures are more "necessary" than others.
I have so much compassion for people transitioning - there's so much discrimination and prejudice, and I think it's wonderful when they can have support for their surgeries and hormones. But I think infertility procedures should be supported too. It is frustrating to me that so many employers don't seem to think so.
And, @PoeMasque, even if gender reassignment were cosmetic (which I don't believe it is) I'm not sure where my lines are about cosmetic procedures. Years ago, I had a breast reduction surgery and that was covered, yet someone I knew who had - I'm not joking - a GIANT nose had to pay for her rhinoplasty out-of-pocket. Why was my surgery more acceptable than hers? (For real, this wasn't like a small bump on the bridge - we're talking a really big, uncomfortably big, nose.)
Those examples are the tip of the iceberg. I read one insurance document that provided coverage for rehab for substance abuse, like the extended-stay residential detox ones (so expensive!) but not fertility issues, which blew my mind. In our family, one older member has made some very poor lifestyle choices over the past 30 years. I understand that obesity is an illness, and that there are many causes - similar to addiction - and I have compassion, but it is hard for me to ignore that all of the complications for this person's type 2 diabetes and then their other medical needs are now covered, while our comparatively few infertility costs aren't. (I may be extra sensitive about this last one, because I am frustrated with this person. It is hard to watch someone you care about suffer, and yet seem so resigned, like: "well, this was inevitable". Makes me want to say: "No it wasn't"... But that won't solve anything.) I could list 100 more examples: why contraception but not IF? Why naturopaths but not IF?
It's not that I don't think rehab or gender reassignment surgery or other medical issues shouldn't be covered, I just don't see why all of these things are seen as being more "essential" or "worthy" than infertility treatments.
(God, I am always writing such novels! Gah - if you've made it this far, I am impressed. Thank you for reading.)
Totally understand your explanation of that, I think the first time it came off a bit judgemental/unsympathetic. Which is why I think offence was taken, given the political nature of that specific example.
But right there with you on the arbitrary nature of insurance.
For us, IUIs are 100% covered for everything (monitoring, procedure, consults) - but then when you move to IVF it's suddenly no help at all. How does that logic work out?!
We have couples going through round after round of IUI, racking up huge bills, when one IVF round could likely be more effective and less costly.
Me - all clear, DH - initially low SA, with 1% morph. Now A+ SA (increase from 10M to 60M).
Sep/Oct 2016 - IUI #1 + 2 - Femara + Ovidrel + Estrace - BFN
Nov 2016 - IUI #3 - Femara + Puregon +Ovidrel + Prometrium - BFN
Dec 2016 - IUI #4 - Femara + Puregon +Ovidrel + Prometrium - TBD
I wish IVF was universally covered. Most insurance companies WILL cover IVF if one of the partners has had cancer, which is a step forward at least! I definitely think infertility causes psychological harm, but IVF success rates just aren't high enough to completely tip the scales at this point. I think if we saw rates in the 70-90% range we would see more insurance companies covering it and more medical professionals pressing for it to be covered.
This is why it's so important to fund basic science research. without it we will never have better, more successful IF treatments.
TTC#1 since November 2015
9/16/2016 IUI#1 - BFN
10/12/2016 IUI#2 - BFN
1/21/2017 Clomid/IUI#3 - BFN
March 2017 IVF: BFP! (beta#1 191, beta#2 378!) - it's a boy! DS born 12/6/2017
TTC #2 since July 2018
May 2019 IVF #2: BFP! (beta#1 346, beta#2 646) - vanishing twin at 8 weeks. Baby B still going strong - due 2/8/20!
I totally agree though that if there were more information about causes of infertility, and more effective treatments, that it might start to tip the scales in our favour... Really seems grossly unfair.
Sorry, I am an ER nurse and public health nurse and I would choose insurance covering rehab 100 times for the same person over it covering IVF for us once.
TTC#1 since November 2015
9/16/2016 IUI#1 - BFN
10/12/2016 IUI#2 - BFN
1/21/2017 Clomid/IUI#3 - BFN
March 2017 IVF: BFP! (beta#1 191, beta#2 378!) - it's a boy! DS born 12/6/2017
TTC #2 since July 2018
May 2019 IVF #2: BFP! (beta#1 346, beta#2 646) - vanishing twin at 8 weeks. Baby B still going strong - due 2/8/20!
As an ER nurse, you probably see a lot more extreme addictions than most, and are likely more compassionate towards those in end-stage distress than many. From a public health perspective, I can see why those suffering from addictions would be a priority, because of their risk of death. But I really don't think that's how employers are viewing it.
I don't think it has anything to do with harm/risk, I think they don't do it because they don't have to - there's no pressure to. It costs too much, and if no one else is doing it, they can easily save cash. Even the like 3 employers who pay for rehab (but only 1-2 times, hardly 100), they probably did a calculation and figured out that only .09% had addictions that would require treatment, whereas 2.8% would need IVF - or something. I'm even cynical enough to believe that the 3 employers who do offer it either offer it because the boss's son had a drug problem or the legal department did an assessment and realized that if they didn't pay for Jimmy from Accounting's drinking problem, there would be a lawsuit that would cost x. After all, an employee wanting to have children is more valuable to the business than an employee suffering from addiction - the one wanting to start a family is more likely to work longer and reduce turnover costs.
Your framework, of preventing harm vs. causing harm, is from a perspective that seems sweet to me - compassion and help for all those already alive. And I hope all hospital and ER staff think that way - prioritizing the life-threatening over other ailments, trying to keep us all alive.
But I don't think that that perspective is universal - my employer cares less about whether or not I'm alive than whether or not I will add to their bottom line.
using an antiandrogen to combat the excess androgens produced in PCOS is maybe the hormone therapy you were referring to, but those meds are also contraindicated in pregnancy since they can inhibit development of male fetuses.
TTC#1 since November 2015
9/16/2016 IUI#1 - BFN
10/12/2016 IUI#2 - BFN
1/21/2017 Clomid/IUI#3 - BFN
March 2017 IVF: BFP! (beta#1 191, beta#2 378!) - it's a boy! DS born 12/6/2017
TTC #2 since July 2018
May 2019 IVF #2: BFP! (beta#1 346, beta#2 646) - vanishing twin at 8 weeks. Baby B still going strong - due 2/8/20!
My initial reaction was wrong - it's not arbitrary that things like rehab and gender reassignment surgery are covered and IVF isn't - it actually makes a lot of sense if we look at how the broader system is set up, as PoeMasque mentioned.
I should have said that I think the overall system, as it stands, is flawed for those experiencing infertility. As in - it's not arbitrary that x is covered and y is not, it's that we live in a society where your reproductive system is seen as the least important of your biological systems - and I disagree with that.
I keep thinking about IVF and treatment payments in a highly theoretical way, like about what it means to have an employer funded healthcare system, over a state-funded one. I'm cynical. I don't think the military funds gender reassignment surgery because they woke up one morning and thought: "We've made a terrible mistake! This is the right thing to do!" I think they were pressured to after a dark history of discrimination and a number of expensive lawsuits. I'm going to quote Frederick Douglass on this one: "Power concedes nothing without a demand. It never did and never will."
This is also why I make a lot of my own demands.
If you saw my DH and I on the street, you would be shocked that we had any health problems or conditions whatsoever - especially me. (Like, between DH and I, I look like the healthier one, yet I'm pretty sure I'm the one with the fertility issues...) We both make careful choices and pay our taxes. We are educated, we have stable incomes and a home in a nice neighbourhood - we're exactly the kind of people who "should" be parents. (This is not to say that I think we're more worthy of being parents than anyone else - I don't - but we're certainly not any "less" worthy, not by any superficial standards.)
Yet there is more support for pregnant teenagers than there is for us - there is more support for deadbeats having their 6th child than there is for us.
For DH & I, paying OOP for treatments is a possibility. We will be able to do it. It'll suck, it'll be tight, we will be stretched, but we will be able to do it. So I don't mean this for us specifically, I mean this conceptually, as a society: why does the system support someone else's having 6 children, that labour and delivery and then care for those children, but nothing for people like me? Just because their biology can and that mother may not believe in family planning? Whether or not that mother will be as good a mother as me, whether or not they are capable?
As a taxpayer, and as a worker, I think it's bullsh*t. As a taxpayer, and as a worker, I want resources to go to supporting law-abiding, responsible citizens.
The harm metric PoeMasque explained, as much as I want to believe it's the one employers use - like we'll fund things that will prevent harm, and risks of no rehab are worse than risks of no IVF (as per PoeMasque) - I don't believe it. I can think of too many examples where that is flatly not true. I had a friend who worked somewhere where her employer would pay for her breast enhancements! Employers want what employers want - it's not a state-funded system.
And, even if it were true - even if the harm metric were the one being used by employers/the state - I don't agree with it.
My employer funds travel accidents more than fertility issues. Say I'm driving a moped recklessly on a holiday in Italy, and I crash - I'd be totally covered, even if the accident is my fault. But no coverage for IF. I understand that in a situation like that, there is a risk of death or grave illness, but I think my IF is a more "worthy" cause than a moped accident I caused, heartless as that may be.
I mean, I'd love it if there were universal coverage for everything, and it rained lollipops and chocolates every day at 3pm too, but if we had to rank priorities of what is/isn't more important - I believe infertility treatments should be ranked above other issues that are currently covered.
I keep wondering, why is my condition less important? Because it's not life-threatening? Why do we devote more resources towards aiding life-threatening injuries sustained from reckless behaviour than we do towards helping responsible, infertile people? We should do the opposite.
I know people make mistakes, I know accidents happen, I want there to be safety nets for people. I know there is a lot of prejudice and discrimination and I've read about different compulsory sterilization programs, which are a shameful part of history. It just feels like infertile people are the only people who are forced to go it alone, and I think it's wrong.
(Anyway, there is my 2 cents - though I suppose at this length, it's more like a whole dollar...)