The only test my OB offers is the QuadScreen which can be done between 16-18 weeks. It tests for Trisomy 21, Trisomy 18, and neural tube defects. The doctor said they have false positives and false negatives. I was still considering it until he said that even with a negative test results and an anatomy scan that shows no markers there is still about a 5% chance of something being wrong... that combined with the possibility of a false positive makes me feel like there's not much point. Am I missing something?
Yes. If you get a "positive" or what is (really) a result that indicates risk that is above average for your age profile (these are screeners, so there is no actual positive/negative result), most doctors will offer you CVS or Amniocentesis, which will give you a true positive/negative result. There is a very small risk associated with these tests (though most medical professionals believe that these risks are way overblown even as small as they are, as they are based on testing done 30 years ago when the ultrasound equipment was nowhere near as good as it is today), but they will give you a true positive/negative where things like the quad screen and even the anatomy scan may not be able to. CVS/amnio actually takes DNA from the fetus to analyze it, so it is about as exact as it can possibly be.
I'm with @motherofdragons and just want all of the possible information in advance...as I said WAY earlier on this thread, we had a scare with DD where her pediatrician thought she might have Down Syndrome at her two month appointment and had to refer us to a geneticist that was very difficult to get in to see...those were a very difficult two weeks for us, and when the geneticist told us almost immediately that there was "no way" that our child had DS, she suggested that we do NIPT with future pregnancies if we could afford it because it is so accurate. For that peace of mind, I am doing it this time, as well as any other testing that is available. It absolutely broke my heart knowing that DD could have been living with DS for two months without my knowledge, and without me knowing that I should be researching the condition, and getting early intervention for it. I won't go through that again if I can help it. I did have the NT scan/quad screen the first time around, and was assigned the lowest possible risk for my age group, but that's not a guarantee of anything, though it is reassuring. NIPT is technically also just a screener, but its accuracy is a good deal higher than NT/quad screen.
My MFM docs won't do both the NT and the NIPT. (I could probably argue for it but I've decided not to.) I chose the NIPT and then will have another draw at 16 weeks to test for spinal bifida - an AFP draw. I also have an early anatomy scan scheduled now (also 16 weeks) because Baby's bellybutton was protruding a bit at my 11 week scan (when they did the draw for the NIPT) and the docs want to make sure the intestines went back in as they should.
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DS #1 born 05/25/2012 BFP#2: 06/12/2013 ---- loss DS #2 born 4/08/2014 BPF#4: 2/1/2016 --- 2/23/2016 suspected molar pregnancy--- 3/15/2016 D&E - diagnosis MM BFP#5 - 9/22/2016 * formally bornmommy
@jennas312 With my first 3 we only did the NT at 12 weeks and the anatomy scan at 20. My third was born with Down syndrome, so it was a huge surprise. Do I wish I'd known while pregnant? Nope! I think it would've ruined my pregnancy. The "research" and things you read online are very outdated and would've made me worry over things that just don't matter when you have a newborn/infant. People ask if I wished I'd been more prepared...the truth is, while it was a HUGE shock and we grieved for the baby we thought we were supposed to have, we were just as prepared and were never behind on early intervention or anything medical that may have needed extra care and attention.
This time we are choosing to do NIPT because I don't want to have another birth surprise. I would be ok with a diagnosis while pregnant now because the fear isn't there anymore bc I'm living a lot of people's fears. Cameron didn't ruin our family like I thought he might, which I think is what a lot fear. He made us better...I'm not a rainbow and unicorn girl and I truly do mean that he made my family better!!
Need a good read? There's a new blogger in town... www.thepinningmama.com
I had my appointment today. Unfortunately the maternit21 results were not back and they're not sure if they'll be back before Thanksgiving. However, the NT scan was good and the baby was wiggling around and waving so that was great, and I think we'll still announce on Thursday as planned.
I got my Panorama results last night. Everything looks good, which is a big relief because am high risk for chromosomal disorders, having miscarried a daughter with Down syndrome a few years ago. We didn't get the sex reported, because we like to wait until the delivery room.
It wasn't supposed to be done until tomorrow (11/25) though, and it looks like the report has been ready since Monday. So check early if you Panorama. It only really took them five days!
Cameron didn't ruin our family like I thought he might, which I think is what a lot fear. He made us better...I'm not a rainbow and unicorn girl and I truly do mean that he made my family better!!
My little sister has Downs Syndrome, she's 24 now, and to this day my parents- and the rest of the family say that she's the best thing to ever happen to us. Our family (including extended) was always close- but once she was born it's like she made our bond even tighter. I know being a sibling of someone with T21 isn't obviously the same as parenting them but I just wanted to tell you how much I agree with that statement!
Did anyone feel like their doctor was trying to talk them into the NT scan over the NIPT? (The MFM office I go to will only do one or the other. They do draw AFB bloodwork at 16 weeks for spinal bifida.) My MFM, who I never met...not even at the visit (he called me over the phone) sounded like he was trying to push me towards the NT scan saying "we can find more information out that way." I responded with "I thought the NIPT was more accurate?" and he said it is and then started talking about my scan results. It was strange. Just wondering if any of you had a similar experience.
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DS #1 born 05/25/2012 BFP#2: 06/12/2013 ---- loss DS #2 born 4/08/2014 BPF#4: 2/1/2016 --- 2/23/2016 suspected molar pregnancy--- 3/15/2016 D&E - diagnosis MM BFP#5 - 9/22/2016 * formally bornmommy
Just wanted to update you ladies and let you know that insurance ended up cover my Maternit21. I am 28 and not high risk. The sequenom lab that did the test was in network. I have BCBS PPO.
Me: 28 DH: 30
Married 5/8/2011 TTC #1 since 9/2015 BFP #1 1/14/16, MC 3/23/16 BFP #2 9/21/2016, EDD 5/30/2017
@Mashunya425 - thats awesome! BCBS always seems to have the best coverage. I'm still anxiously awaiting what my insurance says. I'm concerned now that I'll have to pay my deductible (even though that was not discussed when we were researching tests and insurance coverage) and since we switched our insurance after my D&C earlier this year, the deductible hasn't been touched
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DS #1 born 05/25/2012 BFP#2: 06/12/2013 ---- loss DS #2 born 4/08/2014 BPF#4: 2/1/2016 --- 2/23/2016 suspected molar pregnancy--- 3/15/2016 D&E - diagnosis MM BFP#5 - 9/22/2016 * formally bornmommy
Cameron didn't ruin our family like I thought he might, which I think is what a lot fear. He made us better...I'm not a rainbow and unicorn girl and I truly do mean that he made my family better!!
My little sister has Downs Syndrome, she's 24 now, and to this day my parents- and the rest of the family say that she's the best thing to ever happen to us. Our family (including extended) was always close- but once she was born it's like she made our bond even tighter. I know being a sibling of someone with T21 isn't obviously the same as parenting them but I just wanted to tell you how much I agree with that statement!
Awe this makes me so happy to hear! Sure, being a sibling vs being a parent to a child w DS is different. However, if it weren't for my older 2 I may not have understood what true unconditional love was as quickly as I did w Cameron. Watching his brother and sister love on him with zero expectations and judgements is still the most beautiful thing Ive ever witnessed! Your parents may not have ever said that to you, but I promise you they felt the same way we did!!
Need a good read? There's a new blogger in town... www.thepinningmama.com
@bornmommy, whatever you paid toward your deductible earlier this year should transfer to your new company as credit toward your new deductible. The old company should send new company documentation if you ask them to. I used to work at a school that changed insurance every fall, so I have had to do that several times. It's a pain, and sometimes you have to harass them a bunch, but it makes it so you don't get ripped off. I'd start by calling the new insurance to find out what they need to transfer deductible credit. Or talk to your company's HR if they are really good.
@ellie111227 - shut the front door! Thats great news!! I don't mind harassing insurance companies. Number 1 on my to do for tomorrow. (I'm under my husband's insurance but they are a great company. I'll call them first to see what they say.) THANK YOU!
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DS #1 born 05/25/2012 BFP#2: 06/12/2013 ---- loss DS #2 born 4/08/2014 BPF#4: 2/1/2016 --- 2/23/2016 suspected molar pregnancy--- 3/15/2016 D&E - diagnosis MM BFP#5 - 9/22/2016 * formally bornmommy
@ellie111227 that is such great news!! I'm on my OB's patient portal refreshing every so often, just dying to see my results!! I did Panorama as well, they said max 2 weeks but I heard it comes back in ~ 1 week so if you don't count Thanksgiving, that should've been Friday. I'm so impatient but also now worried it isn't posted that something came back high risk because they told me it would be on their patient portal...
@ellie111227 that is such great news!! I'm on my OB's patient portal refreshing every so often, just dying to see my results!! I did Panorama as well, they said max 2 weeks but I heard it comes back in ~ 1 week so if you don't count Thanksgiving, that should've been Friday. I'm so impatient but also now worried it isn't posted that something came back high risk because they told me it would be on their patient portal...
This is the story of my life right now. I was expecting a call Friday, I knew I probably wouldn't get one as it was a holiday week, but I've been checking religiously since. Hopefully we hear today
@ellie111227 that is such great news!! I'm on my OB's patient portal refreshing every so often, just dying to see my results!! I did Panorama as well, they said max 2 weeks but I heard it comes back in ~ 1 week so if you don't count Thanksgiving, that should've been Friday. I'm so impatient but also now worried it isn't posted that something came back high risk because they told me it would be on their patient portal...
This is the story of my life right now. I was expecting a call Friday, I knew I probably wouldn't get one as it was a holiday week, but I've been checking religiously since. Hopefully we hear today
Meeeeeee too. I had my Panorama draw on 11/18. I don't even think my doctor's office was open on Friday, so I was assuming I'd get results this week at some point, today at best, but so far no call and nothing on the patient portal either. I have my NT scan this Friday, so I hope they're not just like "eh she can wait until then for results" because I CANNOT. My in-laws were at my house for Thanksgiving, so we told them even though we didn't have results yet, and I'd really like the results ASAP so we can tell my family too. I feel bad that the in-laws are in the know and they are not, but my mom annoyed the crap out of me the last time I was pregnant (totally overbearing) so I can't even imagine how annoying she'd be if I told her I was pregnant and then wound up miscarrying or if I get a terminal diagnosis of some sort. I need answers before telling her anything. Seriously, my mother only knew I was in labor with DD for the last 6 hours (when I finally allowed DH to tell her), and she called my cell phone at least 4 times during that span. I know she was just nervous, but seriously, BACK OFF LADY I AM BUSY. Thank god she lives an10 hour drive away or she'd have been in the waiting room the whole time.
@delujm0@Assiram42@michaela0704 Can you guys log in on the Natera (the company that does panorama) website? That's how I got my results. My doctor STILL hasn't called.
There was a little card in the box with all the test materials that had a case number or something on it. I had to put in that plus my name and DOB to get an account. There may be another way to log in if you don't have that though. I would try calling them if you can't get in online. I called about a billing question, and they were super helpful. I bet they would get you in to see the results yourself.
@ellie111227 I tried to sign up on Natera, but my lab tech didn't give me the card from my box, so I don't have the necessary data to log in. I was super annoyed when I realized that they should have given that to me. Especially since I'm sure they no longer have it. I also called Natera about billing, and they were helpful, but I don't know how much they can really do without that info...if I don't hear back from my doctor by Wednesday I'll probably call and ask WTF is going on. I do have the ability to email the nurse via my patient portal too, so I may take that step tomorrow just to be like HEY DO YOU HAVE MY RESULTS BECAUSE IF SO I WANT THEM PLEASE AND THANK YOU.
I feel bad that the in-laws are in the know and they are not, but my mom annoyed the crap out of me the last time I was pregnant (totally overbearing) so I can't even imagine how annoying she'd be if I told her I was pregnant and then wound up miscarrying or if I get a terminal diagnosis of some sort. I need answers before telling her anything. Seriously, my mother only knew I was in labor with DD for the last 6 hours (when I finally allowed DH to tell her), and she called my cell phone at least 4 times during that span. I know she was just nervous, but seriously, BACK OFF LADY I AM BUSY. Thank god she lives an10 hour drive away or she'd have been in the waiting room the whole time.
@delujm0, also, I totally get this. I am firmly in the camp that I tell who I want when I want, and no one has a right to know anything about my body that I don't want them to, regardless of who else I have told. We will have told one side of the family weeks before we tell the other, and I feel like if they find that out and get insulted, that can be their problem. Past actions have consequences. People who have been annoying or hurtful through past pregnancies/loss don't get as much information. I'm a b like that :-)
The only additional testing I'm having done is for cystic fibrosis (donor sperm used) and spina bifida (my dad had it). There's no big major health issues on my side and the donor I picked had a good medical history so I'm not overly worried about anything. I love my baby no matter what.
The only additional testing I'm having done is for cystic fibrosis (donor sperm used) and spina bifida (my dad had it). There's no big major health issues on my side and the donor I picked had a good medical history so I'm not overly worried about anything. I love my baby no matter what.
I know you probably did not mean it this way, but this comment comes off as extremely judgey and holier-than-thou. I also love my baby no matter what. But if I am told that it has a terminal condition that would mean a painful gestation and extremely short and very painful life once born, I would want to be able to make an informed decision about potentially terminating. I acknowledge that is not everyone's position. But I don't judge people who would carry a terminal baby even knowing how much pain that baby would be in, and I don't expect people to judge me for thinking that I would possibly terminate if I had to, god forbid, make that horrible decision.
I had mine drawn on the 15th and I'm still waiting. I'm going crazy! My doctor's office called the lab and they said up to 3 weeks. I love how the brochure says 5 days and then once they take your blood they tell you 3 weeks....
I was supposed to have results back Friday from my RE's office, so I called them and it turns out Natera won't give the RE my results because they never sent my height with the paperwork. Are you kidding me?! So now I have to wait a couple more days.
Rage. So much rage. I just want to know that baby nightcheese is healthy! Wahhhhh.
The only additional testing I'm having done is for cystic fibrosis (donor sperm used) and spina bifida (my dad had it). There's no big major health issues on my side and the donor I picked had a good medical history so I'm not overly worried about anything. I love my baby no matter what.
I know you probably did not mean it this way, but this comment comes off as extremely judgey and holier-than-thou. I also love my baby no matter what. But if I am told that it has a terminal condition that would mean a painful gestation and extremely short and very painful life once born, I would want to be able to make an informed decision about potentially terminating. I acknowledge that is not everyone's position. But I don't judge people who would carry a terminal baby even knowing how much pain that baby would be in, and I don't expect people to judge me for thinking that I would possibly terminate if I had to, god forbid, make that horrible decision.
The only additional testing I'm having done is for cystic fibrosis (donor sperm used) and spina bifida (my dad had it). There's no big major health issues on my side and the donor I picked had a good medical history so I'm not overly worried about anything. I love my baby no matter what.
I know you probably did not mean it this way, but this comment comes off as extremely judgey and holier-than-thou. I also love my baby no matter what. But if I am told that it has a terminal condition that would mean a painful gestation and extremely short and very painful life once born, I would want to be able to make an informed decision about potentially terminating. I acknowledge that is not everyone's position. But I don't judge people who would carry a terminal baby even knowing how much pain that baby would be in, and I don't expect people to judge me for thinking that I would possibly terminate if I had to, god forbid, make that horrible decision.
that statement is very judgy.
That was kind of the point. People with a "I don't need testing because it wouldn't change my mind" or "I love my baby no matter what" stance seem to be saying "I love my baby more than you love yours, because if it had a terminal issue I would carry it until it died naturally, which is better than aborting and therefore killing it before its time." But the fact of the matter is that there are two options when you have a terminal diagnosis: you either carry the baby to term, or whenever it will die naturally, and that death will not be painless; or you abort the baby which, yes, would also be painful for it. Either way, the decision is terrible to make, and either way the baby will have to deal with pain at some point. Making that decision is completely personal and based in many cases on what the mother believes would be less painful for the baby - birth and death soon afterwards, or abortion during early pregnancy. To act as though one decision is better than the other is offensive. It seems like a lot of times, the people who are high and mighty about how they wouldn't terminate in these circumstances say that because they believe that carrying until natural death is a pain-free option for the fetus, while abortion is violent and painful, and that is not the case. No matter what decision you make, it is just unimaginably horrible - throwing in stuff like "I love my baby no matter what" and "I didn't need testing because it wouldn't change my mind" seems unnecessarily judgey in my opinion.
@delujm0 not sure how you decided what she thought of pain and how she feels of others based on one statement. She was saying that was made her decision, nothing wrong with that. The post did not say anyone getting the test doesn't love their baby.
I have never tested for similar reasons. I do not want to make the decision, so I basically leave it up to God. I believe in God. That's personal for me. That in turn does not mean that I feel that someone who does make a decision is wrong, I actually think they are braver than I am. And it does not mean everyone has to believe in God. And because I believe in God doesn't mean I wouldn't chose to terminate if it was the right thing.
But now you have to watch everything you say because people decide what you mean (not said) and turn it into a defensive battle.
As far as the most recent comments, you really can't judge either way. Just because someone gets the testing done, it does not mean they will terminate. It just means they want all available information as soon as possible so that they can be informed. It really makes no difference to me what other people choose to do, but I think it is safe to say that we all love our babies..
Just here to support @delujm0. I'm a proud member of the PC police because I understand my experiences aren't the only one and I would never want to tear open old wounds of a suffering mother.
@wino0920 I completely respect your feelings and opinions and any decision you make is valid. it just chafes me that it is seen as totes cool for people to say things like "i love my baby either way" and "i don't test bc it wouldn't change anything," seemingly implying that those of us who do test, and for whom termination is a viable option in the case if terminal diagnosis, don't love our babies as much because of it. And we're just supposed to brush those comments off and accept them without ever making the opposite point. I know the original comment wasn't intended to be offensive, I just wanted to make that poster aware that comments like that can make some of us feel like we're being judged. God forbid any of us gets bad news and is in the position to even have to make a decision like this, I imagine it's the hardest decision a person would have to make.
I mean DD had an ear infection this weekend and her pain was tearing me apart, even imagining worse than that is horrible and I wouldn't wish it on my worst enemy. momming is hard.
@delujm0 another supporter of you here. I am an individual that would seriously consider terminating if NIPT and other tests showed serious genetic abnormalities, but I have always been hesitant to admit this because of the points you've made. I hope you get your results soon and that it's all good news!
Me: 28 DH: 30
Married 5/8/2011 TTC #1 since 9/2015 BFP #1 1/14/16, MC 3/23/16 BFP #2 9/21/2016, EDD 5/30/2017
I've been hesitant to get testing done solely because I don't even want to think about the possible decision I would have to make. I'm basically just burying my head in the sand and hoping for the best because I can't deal. DH is all for testing so he may talk me into it, but I'm leaning towards.... a hard no.
From the bottom of my heart, thank you for your sensitivity @delujm0. With my last pregnancy our son was showing a host of concerning anatomical abnormalities in addition to his T21 diagnosis and my DH and I were tasked with figuring out what the best thing was for him. He passed away in utero before we had to, but that was an anguishing two weeks I would never wish on anyone. We loved Gabe as much as any two humans could love a child. Still do. But sometimes love presents you with incomprehensible decisions to make. And even though it's unintentional, those words are a knife in a still hurting heart.
Me: 38 l DH: 41 Gavin - 8/27/10 *TW* Gabriel - 2nd tri loss 5/17/16 Trisomy 18 & 21 Hope - 2nd tri loss 12/7/16 complications from pneumonia
There are not just 2 'camps' or schools of thought on this. You could argue even more than 3 but there are these 3 at least at a high level...
1. Don't test as it wouldn't change any action regardless of result.
2. Test so that you can terminate if certain results are found.
3. Test so that you if there are any results that would warrant research and/or extra preparations, not to terminate.
I've seen comments in this thread alone that have women fall in all 3... and that is ok ladies!! We are all doing our what we feel is best and have our own opinions on what is best and how best to parent our babies before they are even here. No one is wrong or right...
Sure, of course. The problem is when position 1 is stated as if it is the most loving. (i.e. "I'm not getting testing done because I love my baby unconditionally" has a pretty strong subtext that those who do test do not love their babies unconditionally, which is obviously untrue and hurtful.)
@ellie111227 I 100% understand, and I would argue unconditional love can mean different things to different people. Some would say that unconditional love means never terminating regardless of condition, some would say unconditional love would be to lessen the pain for a baby if found to have a terminal diagnosis... I think it gets back to a whole other HUGE debate (which I won't open that can of worms) around what choices people would/do make when presented with hardship. I personally am testing and I think it is the best choice for me/my husband. I can't change the fact that there are people who truly believe that I love my baby less, and as much as it stings for anyone to even insinuate that to those of us testing... I'm not going to let them rain on my parade - I know I'm not a bad mom, I know I love my unborn baby... that's all that matters to me at the end of the day.
On a side note... I STILL don't have my results uploaded to the patient portal... I had my blood drawn the morning of Thursday 11/17... I'm so impatient!!
Re: NIPT (Noninvasive Prenatal Testing)
Yes. If you get a "positive" or what is (really) a result that indicates risk that is above average for your age profile (these are screeners, so there is no actual positive/negative result), most doctors will offer you CVS or Amniocentesis, which will give you a true positive/negative result. There is a very small risk associated with these tests (though most medical professionals believe that these risks are way overblown even as small as they are, as they are based on testing done 30 years ago when the ultrasound equipment was nowhere near as good as it is today), but they will give you a true positive/negative where things like the quad screen and even the anatomy scan may not be able to. CVS/amnio actually takes DNA from the fetus to analyze it, so it is about as exact as it can possibly be.
I'm with @motherofdragons and just want all of the possible information in advance...as I said WAY earlier on this thread, we had a scare with DD where her pediatrician thought she might have Down Syndrome at her two month appointment and had to refer us to a geneticist that was very difficult to get in to see...those were a very difficult two weeks for us, and when the geneticist told us almost immediately that there was "no way" that our child had DS, she suggested that we do NIPT with future pregnancies if we could afford it because it is so accurate. For that peace of mind, I am doing it this time, as well as any other testing that is available. It absolutely broke my heart knowing that DD could have been living with DS for two months without my knowledge, and without me knowing that I should be researching the condition, and getting early intervention for it. I won't go through that again if I can help it. I did have the NT scan/quad screen the first time around, and was assigned the lowest possible risk for my age group, but that's not a guarantee of anything, though it is reassuring. NIPT is technically also just a screener, but its accuracy is a good deal higher than NT/quad screen.
DS #1 born 05/25/2012
BFP#2: 06/12/2013 ---- loss
DS #2 born 4/08/2014
BPF#4: 2/1/2016 --- 2/23/2016 suspected molar pregnancy--- 3/15/2016 D&E - diagnosis MM
BFP#5 - 9/22/2016
* formally bornmommy
This time we are choosing to do NIPT because I don't want to have another birth surprise. I would be ok with a diagnosis while pregnant now because the fear isn't there anymore bc I'm living a lot of people's fears. Cameron didn't ruin our family like I thought he might, which I think is what a lot fear. He made us better...I'm not a rainbow and unicorn girl and I truly do mean that he made my family better!!
Ahhhhhh!!!!!! After having the MaterniT21 test taken last Wednesday, the genetic counselor just called to tell us that everything looks great.
And we are having a bouncing baby boy.
So many happy tears.
It wasn't supposed to be done until tomorrow (11/25) though, and it looks like the report has been ready since Monday. So check early if you Panorama. It only really took them five days!
Got my results back yesterday and everything came back low risk
DS #1 born 05/25/2012
BFP#2: 06/12/2013 ---- loss
DS #2 born 4/08/2014
BPF#4: 2/1/2016 --- 2/23/2016 suspected molar pregnancy--- 3/15/2016 D&E - diagnosis MM
BFP#5 - 9/22/2016
* formally bornmommy
I know being a sibling of someone with T21 isn't obviously the same as parenting them but I just wanted to tell you how much I agree with that statement!
DS #1 born 05/25/2012
BFP#2: 06/12/2013 ---- loss
DS #2 born 4/08/2014
BPF#4: 2/1/2016 --- 2/23/2016 suspected molar pregnancy--- 3/15/2016 D&E - diagnosis MM
BFP#5 - 9/22/2016
* formally bornmommy
TTC #1 since 9/2015
BFP #1 1/14/16, MC 3/23/16
BFP #2 9/21/2016, EDD 5/30/2017
DS #1 born 05/25/2012
BFP#2: 06/12/2013 ---- loss
DS #2 born 4/08/2014
BPF#4: 2/1/2016 --- 2/23/2016 suspected molar pregnancy--- 3/15/2016 D&E - diagnosis MM
BFP#5 - 9/22/2016
* formally bornmommy
DS #1 born 05/25/2012
BFP#2: 06/12/2013 ---- loss
DS #2 born 4/08/2014
BPF#4: 2/1/2016 --- 2/23/2016 suspected molar pregnancy--- 3/15/2016 D&E - diagnosis MM
BFP#5 - 9/22/2016
* formally bornmommy
Meeeeeee too. I had my Panorama draw on 11/18. I don't even think my doctor's office was open on Friday, so I was assuming I'd get results this week at some point, today at best, but so far no call and nothing on the patient portal either. I have my NT scan this Friday, so I hope they're not just like "eh she can wait until then for results" because I CANNOT. My in-laws were at my house for Thanksgiving, so we told them even though we didn't have results yet, and I'd really like the results ASAP so we can tell my family too. I feel bad that the in-laws are in the know and they are not, but my mom annoyed the crap out of me the last time I was pregnant (totally overbearing) so I can't even imagine how annoying she'd be if I told her I was pregnant and then wound up miscarrying or if I get a terminal diagnosis of some sort. I need answers before telling her anything. Seriously, my mother only knew I was in labor with DD for the last 6 hours (when I finally allowed DH to tell her), and she called my cell phone at least 4 times during that span. I know she was just nervous, but seriously, BACK OFF LADY I AM BUSY. Thank god she lives an10 hour drive away or she'd have been in the waiting room the whole time.
There was a little card in the box with all the test materials that had a case number or something on it. I had to put in that plus my name and DOB to get an account. There may be another way to log in if you don't have that though. I would try calling them if you can't get in online. I called about a billing question, and they were super helpful. I bet they would get you in to see the results yourself.
Rage. So much rage. I just want to know that baby nightcheese is healthy! Wahhhhh.
That was kind of the point. People with a "I don't need testing because it wouldn't change my mind" or "I love my baby no matter what" stance seem to be saying "I love my baby more than you love yours, because if it had a terminal issue I would carry it until it died naturally, which is better than aborting and therefore killing it before its time." But the fact of the matter is that there are two options when you have a terminal diagnosis: you either carry the baby to term, or whenever it will die naturally, and that death will not be painless; or you abort the baby which, yes, would also be painful for it. Either way, the decision is terrible to make, and either way the baby will have to deal with pain at some point. Making that decision is completely personal and based in many cases on what the mother believes would be less painful for the baby - birth and death soon afterwards, or abortion during early pregnancy. To act as though one decision is better than the other is offensive. It seems like a lot of times, the people who are high and mighty about how they wouldn't terminate in these circumstances say that because they believe that carrying until natural death is a pain-free option for the fetus, while abortion is violent and painful, and that is not the case. No matter what decision you make, it is just unimaginably horrible - throwing in stuff like "I love my baby no matter what" and "I didn't need testing because it wouldn't change my mind" seems unnecessarily judgey in my opinion.
I have never tested for similar reasons. I do not want to make the decision, so I basically leave it up to God. I believe in God. That's personal for me. That in turn does not mean that I feel that someone who does make a decision is wrong, I actually think they are braver than I am. And it does not mean everyone has to believe in God. And because I believe in God doesn't mean I wouldn't chose to terminate if it was the right thing.
But now you have to watch everything you say because people decide what you mean (not said) and turn it into a defensive battle.
As far as the most recent comments, you really can't judge either way. Just because someone gets the testing done, it does not mean they will terminate. It just means they want all available information as soon as possible so that they can be informed. It really makes no difference to me what other people choose to do, but I think it is safe to say that we all love our babies..
I mean DD had an ear infection this weekend and her pain was tearing me apart, even imagining worse than that is horrible and I wouldn't wish it on my worst enemy. momming is hard.
Also where are my effing test results. ugh.
TTC #1 since 9/2015
BFP #1 1/14/16, MC 3/23/16
BFP #2 9/21/2016, EDD 5/30/2017
I've been hesitant to get testing done solely because I don't even want to think about the possible decision I would have to make. I'm basically just burying my head in the sand and hoping for the best because I can't deal. DH is all for testing so he may talk me into it, but I'm leaning towards.... a hard no.
From the bottom of my heart, thank you for your sensitivity @delujm0. With my last pregnancy our son was showing a host of concerning anatomical abnormalities in addition to his T21 diagnosis and my DH and I were tasked with figuring out what the best thing was for him. He passed away in utero before we had to, but that was an anguishing two weeks I would never wish on anyone. We loved Gabe as much as any two humans could love a child. Still do. But sometimes love presents you with incomprehensible decisions to make. And even though it's unintentional, those words are a knife in a still hurting heart.
Gavin - 8/27/10
*TW*
Gabriel - 2nd tri loss 5/17/16 Trisomy 18 & 21
Hope - 2nd tri loss 12/7/16 complications from pneumonia
There are not just 2 'camps' or schools of thought on this. You could argue even more than 3 but there are these 3 at least at a high level...
1. Don't test as it wouldn't change any action regardless of result.
2. Test so that you can terminate if certain results are found.
3. Test so that you if there are any results that would warrant research and/or extra preparations, not to terminate.
I've seen comments in this thread alone that have women fall in all 3... and that is ok ladies!! We are all doing our what we feel is best and have our own opinions on what is best and how best to parent our babies before they are even here. No one is wrong or right...
On a side note... I STILL don't have my results uploaded to the patient portal... I had my blood drawn the morning of Thursday 11/17... I'm so impatient!!