May 2017 Moms

I Basically Got Kicked Out of My Ob/GYN practice

Hi All. Just wanted to vent here. I've been enjoying reading this board for the past few weeks but this is my first post. I'm due May 5 with my third baby. I was very excited about getting an NIPT test. It screens for Downs Syndrome in addition to a few other things, is more accurate than the first trimester screen, can be done as early as ten weeks, and can also tell the sex of the baby.

I called/emailed my ob/gyn office numerous times in the weeks before my first visit to see if they offer the test, which "brands" they use (as cost can be different) and basically get my ducks in a row so I could have the test done at 10 weeks. No one ever helped me and mostly my calls and emails went unanswered. So when I was finally able to ask the doc about it at my first visit (8 weeks, dating appt), I was upset to learn the practice had decided to stop offering/ordering the test. She said too many patients were terminating their pregnancies after learning the sex, which is something I would never do. The doc referred me to some other places but also said she would order the test if need be.

I called the places she referred me to in addition to a handful of others. No one would give me the test at 10 weeks unless I came in for another dating appointment, which I know my insurance would not cover since I just had one. They said I should have my regular ob/gyn order the test for me, or I could wait until 12-13 weeks and have the NIPT done at same time as first trimester screen. Now I know 2-3 weeks longer isn't too long to wait for some people, but I am an anxious type of person and would rather find out sooner rather than later if the baby is healthy. 

So, after several more days of phone calls and getting the run around from my doctor's office, the doc finally called me this morning. She pretty reluctantly agreed to order the NIPT test for me, but said she would not allow me to find out the sex of the baby. I was just so upset because I don't understand why I cannot have access to a safe, reliable test and also take advantage of being able to learn the sex of the baby, a bonus. Thousands of women are able to do this (I've researched the topic a lot, including boards on the Bump) and their doctors are fine with it. I explained to my doc that I had tried calling and emailing her office for weeks in advance and if someone had told me this practice does not do NIPT testing, and certainly doesn't do it for gender, I would have been able to find a different practice, but now I am stuck. 

The doctor finally said fine, she would order the test and allow me to find out the sex but that I would have to find a new practice. So now I am waiting to hear back from her nurse regarding scheduling the test. Given my experience with this practice, I'm not holding my breath I will even get the call. And now I need to find a new ob/gyn practice. Thanks for "listening" to this long vent. Hopefully it can help others who are considering NIPT - make sure you find a practice that "condones" this test. 
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Re: I Basically Got Kicked Out of My Ob/GYN practice

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  • Who are they to make that decision for you? I'd be pissed. 
  • I think there's something (read: a lot) missing to this story.  Regardless, it doesn't sound like this practice is a good fit for you.  I'd find yourself a new one.
    dx: Unexplained IF (mild MFI) TTC since May 2011, 1 year trying, and then 3 TI, 2 IUI = BFN
    IVF #1 (May 2013): Antagonist Protocol:
    24R, 18M, 15F w/ICSI; 5dt of 2 early blasts, no frosties = BFN
    IVF #2 (August 2013): Lupron Stop Protocol:
    28R, 23M, 15F w/ICSI; 5dt of 1 partially hatched blast, 7 frosties = BFP
    EDD 5/23/14, blighted ovum (6w6d), D&C (8w6d)
    FET #1 (April 2014): transferred 2 5d blasts = BFP
    C.J. born 01/09/15

    FET #2 (September 2016): transferred 1 5d blast = BFP
    EDD 05/26/17
  • This seems...fishy. Just out of curiosity, are you in the US? I've heard of some countries being hesitant to allow women to find out the sex of their babies early, but never heard of it being an issue here. Better to switch providers now than when you're further along.

    I had testing done at 9 weeks with my last pregnancy (due to family history), but we opted to not find out the baby's sex until delivery. We had to fill out an additional paper opting out of that portion of the test, so it seemed like finding out was the norm. 
    Fur daughter: 02/2011
    Human sons: 11/2015 & 05/2017
    *formerly kayemjay*


  • Thanks for your replies. I wasn't asking for sympathy, per se; I just wanted to get this experience off my chest and perhaps provide some info that could be useful to others; I didn't realize I was required to post an intro before I could post in another thread. I will be 36 when I deliver so I am high-risk in that regard. I tried to keep my post as brief as possible and don't think I left out anything particularly critical to the jist of the experience.

    At my first appt I saw a midwife first and she didn't seem to know much about NIPT testing, even though that is a test that is listed in the materials she had just handed to me. She said it is not a test they do, even though I had already been told by two of the testing companies I called earlier that this practice has indeed ordered the test for other patients before. The midwife then told me "well, we don't order the test often and I would suggest you have the first trimester screen instead, but I will get you the info on the NIPT test." I found it odd that she seemed against the test that was listed as an option in the testing materials her office distributes. 

    When I spoke to the doctor later that visit, she also seemed very opposed to the test and was very dismissive of my questions. That's when she told me their practice no longer offers the test b/c too many people were terminating based on gender, and that there has been some debate about the test. I tried asking some questions about the accuracy of the test, and what the downfalls are that she is referring to and she basically told me her practice has nothing to do with this test anymore and to contact the centers on the referral sheet she gave me.

    I can understand a doctor or practice having a moral/ethical objection to something, but it seems to me they should still be able to objectively answer questions and provide information. OR, at least tell patients who call ahead of time specifically asking about this test that the practice does not offer it.

    Incidentally, I found out that 3 of the places she referred me to (the ones nearest to me) no longer have genetic counselors on site. I would have to travel an hour to see one. I don't think it should have to be this hard.
  • Forgot to add that yes, I am in the US.
  • kat81kat81 member
    edited September 2016
    Ugh, that sucks. That is so weird that they would dick you around so much with this test and that they would represent one thing but then do another. As you said, if you had known, you would have gone with a different practice. Also kind of weird and horrifying that women actually use this test to terminate the pregnancy based on sex.

    As others said, it sounds like a blessing in disguise because you'll get the test and the full result, and you'll get a new OB (because clearly this practice sucks.) Though definitely start looking for a new practice now, because as you said you can't even trust that they will call you back at this point.

    All of that said, my advice to you would be to practice patience as you'll need it in droves as a mom.*** It sounds like you were unhappy to wait until the anatomy scan (or even 12-13 weeks) to find out the sex of the baby, and that you were unhappy to wait until 12-13 weeks for the screening test. I understand doing screenings and given our age we will probably go ahead and get some of these early screening tests done. I also understand wanting one around 10-13 weeks instead of waiting until 20. But the difference between 10 and 12-13 is really small. You'll feel better if you can let it go and relax when it comes to these things.

    ETA: Sorry for sounding preachy. I just re-read and you're also due with your 3rd baby! You probably practice patience all of the time. But I still think you'd feel better if you were more patient on this one thing. :)

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  • edited September 2016
    And yet you still didn't intro.
     

    If you don't like your doctor, get a new one. I typically think medical professional generally understand the medical things.  That said, it never hurts to get a second opinion.
    200.gif 1005.9K

    May17 Siggy Challenge
    Labor
  • Personally, I have never heard of people terminating pregnancies due to gender. This seems like something that would be in the news if it's really that high of a volume of people doing it. A few weeks isn't going to change anything except ease your mind a bit sooner. Question, since you are so adamant about getting the results so early, would they change anything for you? 
  • I would be out of my mind PISSED if I were you!!!!  You have every right to want to know the health of your unborn child as soon as humanly possible.  Particularly if you have to make some difficult decisions going forward. And you certainly don't have to explain yourself to your OB nor anyone else on this board for that matter. 

    I say say force them to order you the test (as it sounds like you already did) and be a thorn in their side until they do.  This is your only option to get the test done early. In the mean time find a new practice. 

    I went through something similar with my previous OB and after numerous phone calls I had to sign a waiver saying I would pay for the test because they told me most insurances don't cover it. Mine did but only half so it cost me $300. Money well spent for piece of mind. 
  • I think 100% that you should be able to get all of the information you want about your own body and for whomever is growing inside of it! I'm sorry for your serious inconvenience and for the frustrating situation! I wish you all the luck
  • I'm not sure why you were so adamant about having a test done several weeks before most offices offer it. It sounds like you were calling a lot and they probably no longer wanted to work with you. 

    Your relationship with your doctor is not like any other service like a barista or hairstylist. You don't get to make demands and have it your way. Sometimes there are opportunities for you to make choices but your doctor is there to guide you and keep you both safe, not to please you. If multiple offices were saying 10 weeks is early maybe you need to relax and trust a medical professional. 

    May '17 labor memes
  • Unfortunately where I live (Western Canada), we cannot find out babies sex until 20+ weeks- many cultures here favor boys over girls and used to terminate the pregnancy based on baby's sex. It might just be the health authority that I live in, but it's sad that here it was so common that they've changed the rules of when you can find out the gender! :neutral: I hope you can find a practice that meets your needs and responds to you in a timely manner
  • Thanks for the supportive comments - I truly appreciate it! I didn't expect everyone would agree with my point of view but I certainly didn't expect the abrasiveness of some of the other comments. Hopefully this thread will help some mom in the future who is considering NIPT testing, so she is aware of some of the challenges that may arise. This is a test that is safe, highly accurate, and widely available starting at 10 weeks, if your provider orders it, but it seems some practices will not order it until later (or at all) for whatever their reason may be. Best of luck to you all with your pregnancies.
  • Hi! My husband was adamant about getting this test with ds in 2015. For him yes the results would have mattered so getting them early mattered. Our ob said even though they let you take the test at 9 weeks we had to wait because they had found not enough dna would have built up in my blood so we had it at 11. MY OFFICE REFUSES TO GIVE SEX RESULTS BECAUSE TOO MANY PEOPLE HAVE TERMINATED DUE TO SEX. Yes it's disgusting yes my husband and I mouths dropped open when they said this last year. We were severely disappointed because we were paying for the test and wanted everything it could offer. Had they told us when they shoved that pamphlet in our hands about the sex thing I would have taken it better. We did not push the nurse to check the sex box as we didn't want to get them upset. I completely understand where your coming from. I'm sorry some people jumped on your post negatively. You should see an ob that agrees with your mentality though so maybe this is a blessing in disguise good luck
  • @NotAPlaya-JustCrushAlot this may be UO but I completely agree with you.
    Ditto
  • @NotAPlaya-JustCrushAlot this may be UO but I completely agree with you.
    Ditto
    I ditto the dittos
  • Made Up Drama. Basically posts that are fake scenarios posted for attention/to stir sh*t up.
  • @Luckyu317 we had lurkers who came to Sept 15 and did that. There was a very bad situation that came from it
  • pshaortao said:

    ETA: I don't even know if I personally did a formal intro or not but I jumped right into the daily threads and I think thats okay for anybody.
    Exactly. Participating in the daily threads and ticker change boards is more important than am intro imho
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