Hi All. Just wanted to vent here. I've been enjoying reading this board for the past few weeks but this is my first post. I'm due May 5 with my third baby. I was very excited about getting an NIPT test. It screens for Downs Syndrome in addition to a few other things, is more accurate than the first trimester screen, can be done as early as ten weeks, and can also tell the sex of the baby.
I called/emailed my ob/gyn office numerous times in the weeks before my first visit to see if they offer the test, which "brands" they use (as cost can be different) and basically get my ducks in a row so I could have the test done at 10 weeks. No one ever helped me and mostly my calls and emails went unanswered. So when I was finally able to ask the doc about it at my first visit (8 weeks, dating appt), I was upset to learn the practice had decided to stop offering/ordering the test. She said too many patients were terminating their pregnancies after learning the sex, which is something I would never do. The doc referred me to some other places but also said she would order the test if need be.
I called the places she referred me to in addition to a handful of others. No one would give me the test at 10 weeks unless I came in for another dating appointment, which I know my insurance would not cover since I just had one. They said I should have my regular ob/gyn order the test for me, or I could wait until 12-13 weeks and have the NIPT done at same time as first trimester screen. Now I know 2-3 weeks longer isn't too long to wait for some people, but I am an anxious type of person and would rather find out sooner rather than later if the baby is healthy.
So, after several more days of phone calls and getting the run around from my doctor's office, the doc finally called me this morning. She pretty reluctantly agreed to order the NIPT test for me, but said she would not allow me to find out the sex of the baby. I was just so upset because I don't understand why I cannot have access to a safe, reliable test and also take advantage of being able to learn the sex of the baby, a bonus. Thousands of women are able to do this (I've researched the topic a lot, including boards on the Bump) and their doctors are fine with it. I explained to my doc that I had tried calling and emailing her office for weeks in advance and if someone had told me this practice does not do NIPT testing, and certainly doesn't do it for gender, I would have been able to find a different practice, but now I am stuck.
The doctor finally said fine, she would order the test and allow me to find out the sex but that I would have to find a new practice. So now I am waiting to hear back from her nurse regarding scheduling the test. Given my experience with this practice, I'm not holding my breath I will even get the call. And now I need to find a new ob/gyn practice. Thanks for "listening" to this long vent. Hopefully it can help others who are considering NIPT - make sure you find a practice that "condones" this test.
Re: I Basically Got Kicked Out of My Ob/GYN practice
11.2011 - DS1
02.2013 - loss at 6 wks
06.2014 - DS2
10.2015 - loss at 12 wks
03.2017 - DD
ETA: Please intro on the intro thread.
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IVF #1 (May 2013): Antagonist Protocol:
24R, 18M, 15F w/ICSI; 5dt of 2 early blasts, no frosties = BFN
IVF #2 (August 2013): Lupron Stop Protocol:
28R, 23M, 15F w/ICSI; 5dt of 1 partially hatched blast, 7 frosties = BFP
EDD 5/23/14, blighted ovum (6w6d), D&C (8w6d)
FET #1 (April 2014): transferred 2 5d blasts = BFP
C.J. born 01/09/15
FET #2 (September 2016): transferred 1 5d blast = BFP
EDD 05/26/17
I had testing done at 9 weeks with my last pregnancy (due to family history), but we opted to not find out the baby's sex until delivery. We had to fill out an additional paper opting out of that portion of the test, so it seemed like finding out was the norm.
Human sons: 11/2015 & 05/2017
*formerly kayemjay*
At my first appt I saw a midwife first and she didn't seem to know much about NIPT testing, even though that is a test that is listed in the materials she had just handed to me. She said it is not a test they do, even though I had already been told by two of the testing companies I called earlier that this practice has indeed ordered the test for other patients before. The midwife then told me "well, we don't order the test often and I would suggest you have the first trimester screen instead, but I will get you the info on the NIPT test." I found it odd that she seemed against the test that was listed as an option in the testing materials her office distributes.
When I spoke to the doctor later that visit, she also seemed very opposed to the test and was very dismissive of my questions. That's when she told me their practice no longer offers the test b/c too many people were terminating based on gender, and that there has been some debate about the test. I tried asking some questions about the accuracy of the test, and what the downfalls are that she is referring to and she basically told me her practice has nothing to do with this test anymore and to contact the centers on the referral sheet she gave me.
I can understand a doctor or practice having a moral/ethical objection to something, but it seems to me they should still be able to objectively answer questions and provide information. OR, at least tell patients who call ahead of time specifically asking about this test that the practice does not offer it.
Incidentally, I found out that 3 of the places she referred me to (the ones nearest to me) no longer have genetic counselors on site. I would have to travel an hour to see one. I don't think it should have to be this hard.
As others said, it sounds like a blessing in disguise because you'll get the test and the full result, and you'll get a new OB (because clearly this practice sucks.) Though definitely start looking for a new practice now, because as you said you can't even trust that they will call you back at this point.
All of that said, my advice to you would be to practice patience as you'll need it in droves as a mom.*** It sounds like you were unhappy to wait until the anatomy scan (or even 12-13 weeks) to find out the sex of the baby, and that you were unhappy to wait until 12-13 weeks for the screening test. I understand doing screenings and given our age we will probably go ahead and get some of these early screening tests done. I also understand wanting one around 10-13 weeks instead of waiting until 20. But the difference between 10 and 12-13 is really small. You'll feel better if you can let it go and relax when it comes to these things.
ETA: Sorry for sounding preachy. I just re-read and you're also due with your 3rd baby! You probably practice patience all of the time. But I still think you'd feel better if you were more patient on this one thing.
If you don't like your doctor, get a new one. I typically think medical professional generally understand the medical things. That said, it never hurts to get a second opinion.
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Also if your main purpose was wanting to know for the health of you me baby why is knowing the sex so important to you. Your OB was going an extra step already for you and that wasn't good enough. At the end of the day they have the right to refuse services.
1/7/2015 Twins born @ 34 weeks
I say say force them to order you the test (as it sounds like you already did) and be a thorn in their side until they do. This is your only option to get the test done early. In the mean time find a new practice.
I went through something similar with my previous OB and after numerous phone calls I had to sign a waiver saying I would pay for the test because they told me most insurances don't cover it. Mine did but only half so it cost me $300. Money well spent for piece of mind.
Just as an observation, you gave me the impression of coming on way too strong and pushy so it doesn't surprise me that your doctor would ask you to move to a different practice. It's a little bit like those women who don't want to vaccinate their kids... if the doctor doesn't follow the same ideology then that woman should find a new doctor, not push the doctor to do something that doctor doesn't feel comfortable with. And why does the test have to be exactly at 10 weeks... really, you can't wait an additional couple of weeks?
I actually just read an article on genetic testing and it stated that yes, some women are choosing to end pregnancies prematurely but it's not because of the sex, it's because of there being a red flag from the test and instead of getting additional testing, they go ahead and terminate the pregnancy without verifying anything, even if those results could be wrong.
Married 8/27/2011
BFP #1 9/28/2011 DS born 5/22/2012
BFP #2 4/24/2013 m/c 4/25/2013 at 4w
BFP #3 1/31/2014 DD born 10/14/2014
BFP #4 1/20/2016 m/c 2/12/2014 at 7w2d
BFP #5 8/19/2016 DS2 born 4/29/2017
BFP #6 3/7/2018 EDD 11/18/2018
Your relationship with your doctor is not like any other service like a barista or hairstylist. You don't get to make demands and have it your way. Sometimes there are opportunities for you to make choices but your doctor is there to guide you and keep you both safe, not to please you. If multiple offices were saying 10 weeks is early maybe you need to relax and trust a medical professional.
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Married 8/27/2011
BFP #1 9/28/2011 DS born 5/22/2012
BFP #2 4/24/2013 m/c 4/25/2013 at 4w
BFP #3 1/31/2014 DD born 10/14/2014
BFP #4 1/20/2016 m/c 2/12/2014 at 7w2d
BFP #5 8/19/2016 DS2 born 4/29/2017
BFP #6 3/7/2018 EDD 11/18/2018
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(P.S. Checked an acronym dictionary online and GBCB stands for a lot of things but the funniest was Gay Bars and Clubs in Boston, which I'm positive doesn't fit this situation...)
(And then looked it up on Google and the 4th result is a post from The Bump from 2011 entitled "What Is GBCB????" and a whole discussion on it... fascinating...)
@specialk1181 I agree with @vrj0522 . I am in the medical field and I would be pretty annoyed if I was on the receiving end of all your phone calls. Someone at the office obviously gave you some wrong information and once that was discovered you probably should have moved on since you were unhappy. I don't see anything wrong with wanting this test at 10 weeks, finding out the gender is exciting and being preganant your always a little worried about babies health. A similar test was offererd to me my last pregnancy and I got it at 12 weeks, could have got it sooner but I had scheduling issues. Its your body and your baby, don't be unhappy and pushy at the doctors office, just move on.
Yes, we have board rules, but ultimately we're here for each other.
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ETA: I don't even know if I personally did a formal intro or not but I jumped right into the daily threads and I think thats okay for anybody.
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