I just wanted to get this off my chest and share about what I am dealing with and anyone who relates please speak up! My baby has quite a few defects throughout his body starting with his heart. He has a vsd which is a hole in the bottom of the heart. Also accompanied by that his aorta is bigger than his ventricles. Following that one of his kidneys refuses to drain. I also found out he is missing the cavum septum pallucidum in his brain which can cause vision and behavior problems growing up. A couple of his toes r also connected. Along with that he has a short nasal bone and jaw bone which could interrupt his breathing and feeding. All of this combined lead to a defect. He doesn't have enough of chromosome 8 and too much of 9 which leads to a learning disability.
He is being watched very carefully and many prayers prayed. Please share relatable expirences!