I know it's a very personal decision, but I'm interested in feedback on why you would or wouldn't share this information with CLOSE family and CLOSE friends. I initially thought I didn't want to tell anyone because of 2 reasons: (1) Infertility takes the fun out of everything for me and the hubby, so why ruin it for them too? If I tell them about the miscarriage, then they might be reserved about their excitement with a healthy pregnancy; I'm afraid they will worry that I will lose that baby too. (2) I don't want them to worry about me because they know I'm sad about it.
I've love to hear your thoughts.
Re: Miscarriage - Tell close family and friends?
But on the flip side, I totally understand not wanting to share. I have never conceived, but I have kept our infertility pretty quiet. Recently I have shared more but yes, it is very difficult and I don't want to draw attention to myself, etc.
So... No good answer. But I hope if you decide to tell people you will receive lots of love. I'm so sorry for your loss.
DH: 36, No known issues
TTC since 11/2014
1000mg Metformin daily
Oct-Dec 2015: Letrozole 5mg, Ovidrel, TI = BFN x 2
Feb-May 2016: Letrozole 5mg, Ovidrel, TI, Prometrium = BFN x 3
August 2016: Clomid 100mg no response, Letrozole 5mg, Ovidrel, TI, Prometrium = BFN
We chose to only tell my mother and one very close friend when we had our first m/c. I was embarrassed, ashamed and blamed myself. It was a very lonely experience. I hated myself for months.
We eventually needed fertility treatments and at first, we were hush hush about that also. When we got to the ivf stage, we became more open with family and close friends. The support was overwhelming. Our first cycle, we got pregnant and we were cautiously optimistic, even after seeing two heartbeats for identical twins. A week or so later, we found out that the embryo split wrong and we lost both twins. It was hard to tell everyone, but they were supportive and heartbroken with us. It made it a lot easier on us. They did worry about us, but that's what family does!
Then we did another transfer, got pregnant with fraternal twins and collectively held our breath. Our family was still excited for us and once we got to the 2nd trimester, they understood how big of a triumph it really was.
Now that our twins are here and a heathy 6 months, I've become extremely open about our losses and struggles. I've made it complete public knowledge (Facebook official) and when asked by strangers if twins run in the family, I always say "nope, we were blessed through ivf". Doing this has made me realize how common it all is- the losses and the struggles. I've had women message me saying they were struggling, asking for advice or support. I've reconnected with past friends who also had losses. It was nice to know we aren't alone.
Infertility is an awful struggle and most of us go at it alone, and we shouldn't. It's hard. It's painful. It's emotional. It's exhausting. We should get the support from those around us.
It seems to be such a taboo subject and I'd love for it not to be.
Sorry to ramble, but I wish we had opened up earlier. It would have mad for a lot less lonely nights.
Me - 28, Lean PCOS
DH - 31
Married June 2010, TTC since March 2014
Blog: ourbinarystar.com
FET cycle #3 Transfer July 28th 2016, Triplets born healthy on February 26th 2017 at 33w1d!
Me - 28, Lean PCOS
DH - 31
Married June 2010, TTC since March 2014
Blog: ourbinarystar.com
FET cycle #3 Transfer July 28th 2016, Triplets born healthy on February 26th 2017 at 33w1d!
My SIL is on her third pregnancy, the first two ending in miscarriages. They pretty much told everyone the moment they found out they were pregnant bc they would want the support in case of m/c.
Its not a decision I would make (telling everyone early), but I would probably share about a miscarriage. It's an intensely personal decision
I was glad to have the support with the first loss, and it also took a really big physical toll on me, so having the support was all the more helpful. I did get some comments that I could have done without, and I think some of the typical (bad) responses, like "at least you know you can get pregnant," have a particular sting when you're also struggling with IF. I like @AandDM2014's advice about telling people how you want them to respond. I found articles that I identified with (many on the website verily mag) and sent them to a good friend who was not giving me what I needed to help explain how I was feeling, and that helped our interactions.
I didn't tell about the CP because I didn't want to have to manage other people's reactions to it, and I also didn't want people to compare it to my first loss or make assumptions about how I must be feeling now. I may be more open about it at some other time, just not right now.
/loss mentioned/
TTC#1 July 2014
dx: MFI (morphology)
IUI #1 w/Clomid + Ovidrel Sept. 2015 ~ BFN
IUI #2 w/Clomid + Ovidrel Halloween 2015 ~ BFN
IUI #3 w/Clomid + Ovidrel Thanksgiving 2015 ~ BFP!!
hb 146 bpm at 7w5d
1/28/16 ~ began to say goodbye to our beautiful baby at 11w
d&c, followed by cytotec
TTCAL April 2016
IUI #4 w/Clomid + Ovidrel Apr. 2016 ~ BFN
IUI #5 w/Clomid + Ovidrel ~ CP
IUI#6 w/Clomid + Ovidrel ~ BFN
But that is a decision you need to make for yourself!! Sorry for your loss, I was praying for you!
Unexplained Infertility- Postive for MTHFR Gene Mutation
Natural cycles with 1 miscarriage
-3 IUI's w/ Clomid= BFN
-IVF #1-Follistim and Menopur= BFN
***11 Eggs, 10 mature, 8 fertilized, transferred 1 (day 5) 2 made it to freeze
-FET #1- Transferred 2, day 5 embryos =BFN
-IVF #2- Follistim and Menopur = BFN
***11 retrieved, 8 mature, 6 fertilized, transferred 2 (day 3), 4 made it to freeze (Follistim and Menopur) = BFN
-FET #2- Transferred 2, day 3 embryos = BFN
**Changed doctor**
-IUI #4- natural cycle = BFN
-IUI #5- Follistim (5 eggs) BFP- lead to Miscarriage
-Laproscopic Surgery for Endometriosis, Polyp removal and Cyst removal.
-IVF #3- Menopur, Follistim, Lupron, Ganirellex- BFP lead to Eptopic Pregnancy
***11 Eggs retrieved, 10 Mature, 8 fertilized, transferred 3 embryos (day 3), 0 made it to freeze
-Lapropscopic surgery- Removal of Fallopian Tube
-IVF #4- Estrogen Priming with Vivelle dot, Menopur, Follistim, Ganirellex- BFP
***15 Eggs retreived, 11 mature, 11 fertilized, 2 embryos transferred (day 3), 2 made it to freeze
Found out I was positive for MTHFR Gene Mutation during TWW of IVF #4
I personally told a lot of people about my loss . First family and close friends and then after my initial shock I started opening up to other friends about it . For me , it helped . I know everyone is different . Keeping it in made me feel like it was something I was ashamed of- and obviously there is no shame in this . Sharing with some people about my loss and my IF I feel like has made them more sensitive with their comments and questions in general . There used to be a lot of "when are you guys getting pregnant " and "why aren't you not drinking tonight .. Are you pregnant ?" Type of questions in my social circle . I hope that sharing my experience has made people more respectful of other's privacy . I also like to educate people on how common miscarriages are . SO many women have experienced this before and I think it sucks that so many grieve in silence . If that's what's most comfortable for them then by all means there is nothing wrong with that . But I think support and talking about it can help a lot .
my thoughts and prayers are with you.
**BFP and loss warning**
I have not experienced loss, so I may have limited ability to contribute, but I'm also someone who has never managed to get pregnant, and I've been trying for a while.
I made the decision to talk to a lot of people about my journey, and my struggles. For me, it makes my burden a little lighter, to know that so many people who care about me are trying to lift me up.
Being really open has also been an amazing way to connect with women who have had their own struggles. I've connected with women who struggled with fertility themselves, who might never have told me about their journeys if I hadn't started the conversation. It's even put me in touch with some adoption resources, if I find that my path leads me in that direction (with the help of women who adopted after confronting their own infertility).
Often, these connections happen with women who weren't actually super close to start with, but we share a community together (shared activities, church, etc.).
So I'm definitely an advocate for being out of the closet, and building a community of support. Of course, I'm already a person who's dealt with closets, because I come out as gay all the time, so that gives me practice.
It also gives me a space where I think I have a little pressure than some of my straight friends. Fewer people expect me to live a conventional life, so I have less pressure to conform, and that might lead to less shame for failing to live up to what people expect. I think it's awful that some women struggle with shame and embarrassment around their fertility challenges and losses.
So that's my perspective, at least. I will say that if you don't feel comfortable leaning on your friends for support, find support in other spaces-- like here! And again, I realize that my experience is all about struggling to get pregnant, and I'm not speaking with experience about loss, so I definitely respect any choices you make.
7 IUIs, 7 BFNs.
2 IVF attempts, both cancelled and converted to IUI, both BFNs.
Decided that my tired old ovaries are ready to retire.
Next step- reciprocal IVF, using my wife's eggs, my uterus!
fresh 5 day transfer (2 embryos) 4/17/17- BFP!
Identical twins "due" 1/2/17 (but anticipated arrival sometime December)
@AandDM2014 I really like your advice about telling people what you don't want to hear! So simple, yet so smart
@Colleen0516 I'm SUCH an open book and a talker (like you) that I feel like I'm hiding something by not telling certain people. I still struggle with "infertility shame" but I'm working on it.
@mskeenan You make a really good point about how common miscarriages are and how we don't have to suffer in silence...alone.
@BrightenMySky I'm so sorry for both your losses. How awful. I completely understand what you mean about managing other people's reactions.
@KLake42 Thank you for sharing. Infertility is lonely and difficult at times and the pain is real. Connecting with other women experiencing the same thing (like you fine gals) really helps...to feel like you are a member of a community instead of an outsider in a world full of mommies.
/loss mentioned/
TTC#1 July 2014
dx: MFI (morphology)
IUI #1 w/Clomid + Ovidrel Sept. 2015 ~ BFN
IUI #2 w/Clomid + Ovidrel Halloween 2015 ~ BFN
IUI #3 w/Clomid + Ovidrel Thanksgiving 2015 ~ BFP!!
hb 146 bpm at 7w5d
1/28/16 ~ began to say goodbye to our beautiful baby at 11w
d&c, followed by cytotec
TTCAL April 2016
IUI #4 w/Clomid + Ovidrel Apr. 2016 ~ BFN
IUI #5 w/Clomid + Ovidrel ~ CP
IUI#6 w/Clomid + Ovidrel ~ BFN
--------
Me: 42 | DH: 39 | Us: Married since April 2014 | TCC 20 months before IVF
Me: unexplained infertility (AMA?) | DH: No issues
1st IVF cycle with ICSI & PGS | ER 1/21/16 | FET 4/26/16, ectopic
2nd FET 09/20/16 | DS born May 2017
3rd FET 09/14/20
@MelD17011 I'm so sorry for your loss. I would have been mad too. I'm very private about all this stuff. I'm glad it worked out and you got the support you needed. Hang in there!