I'm hoping parents who brought their LO home on the NG tube will see this. My daughter hit her due date never learning to eat properly so we brought her home on the NG tube. Now she is 2 weeks past her due date.
She passed her swallow study and a couple days ago they scoped her throat to check for things like floppy larynx. Everything has come back normal but one thing we saw on the camera they put down her throat is she is still not swallowing. There was a boogie just hanging out right on the edge of her esophagus and despite having a tube AND camera down there she never swallowed or gagged.
My husband and I have tried everything we can think of as far as changing positions, checking nipple flow, and we even tried feeding her w/o the tube down her nose. Sometimes she will get a rhythm going but after 10 MLs she starts losing that and goes back to not swallowing. Instead she sucks, breathes, sucks and then spits the milk out.
I have no idea what to do anymore and the therapist/pathologist that we're supposed to see is dragging their feet. Please has anyone gone through something similar, I'm terrified she start growing an aversion/dependance.