Fragile X syndrome

EmmaKate3

About 3 weeks ago our OB informed us that I am an carrier of the fragile x premutation. We were referred to a genetic counselor, who told us that I had 105 repeats. He suggested an amniocentesis, if we wanted to know whether or not the premutation or full mutation had been passed. We were told 3 days ago that our child has the full mutation, but the amount of repeats hasn't been determined at this point.

Does anyone have experience with this syndrome? I've done some online research, but would like some firsthand advice. I'm scared beyond my wits. My world feels like it's crashing down and I don't know what to do. I would greatly appreciate any information/advice you could pass along.