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PCOS/SMA

seaislegrl3seaislegrl3 member
in Trouble TTC
So after a couple months of irregular periods I found out that I have PCOS. Since we are TTC my husband & I went to a fertility doc. They offered genetic testing so I decided to do it. I then found out I am a carrier for SMA. My husband got tested and we found out so is he. My fertility doc wants us to do PGD/IVF. Of course our insurance doesn't cover it. I'm super grateful for having to avoid the heartache of having a child with SMA...but I never thought in a million years that I'd be avoiding pregnancy for 15 yrs to spending 20k+ to have a child! What an emotional roller coaster
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Re: PCOS/SMA

  • riveridgionalriveridgional member
    I am sorry you are going through this. The good news is that you have not "wasted" any money on prior treatments, making it harder to afford or save up for IVF. Depending on your finances, you may qualify for a grant. Check out the RESOLVE website for more info on that. There are also a few discount programs for medication for us out-of-pocketers that your pharmacy will likely tell you about our you can search for them on your own. I believe these are also on the RESOLVE website.

    Good luck to you! Any idea if you'll be able to start IVF soon? Or, will you need to wait a few months?
    Married to DH 10/6/12
    TTC since 5/14
    Unexplained with (controlled) hypothyroidism and suspected ovulatory dysfunction (but, I do ovulate on my own)
    Clomid 50 mg 3/15 (unmonitored) - BFN
    Clomid 50 mg + metformin 4/15 (unmonitored) - BFN 
    First RE appt. 5/15; Natural cycle 5/15 monitored with 2 mature follicles and Pregnyl Trigger (full dose) + prometrium - BFN
    6/15 HSG - clear tubes & normal uterus; great PCT test results
    TI - 100 mg Clomid + prometrium (AM & PM) + vaginal estrace (AM & PM) 6-7/15 (monitored) --> no additional response and thinned lining - BFN
    TI - Injectables (follistim + Gonal-F, Ganirelix, & 1/2 dose Pregnyl) + prometrium (AM & PM) 9/15 --> 3-7 mature follicles (3 definites and 4+ that could have matured due to trigger) @ O -->BFN + 5 large cysts
    BC for 2 weeks due to cysts
    TI - Injectables (Gonal-F, Ganirelix & full dose Pregnyl) + prometrium (AM & PM) 10/15 --> 1 mature follicle --> BFN 
    TI - Last attempt at injectables (Gonal-F, Ganirelix & 1/2 dose Pregnyl) + crinone (AM only) + vaginal estrace (AM & PM) 11/15 --> 3-4 mature follicles --> BFP!! 11/27/15 @ 13dpo (shockingly, actually waited until then to test)

    Beta #1 @ 16dpo (11/30/15) = 1,075
    Beta #2 @ 19dpo (12/3/15) = 3,150
    One baby: Saw heartbeat @ 5w5d (114 bpm; baby measuring 2.3mm)

    "Great Things are Happening"
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  • BiancaVazquez14BiancaVazquez14 member
    I also have pcos and when ttc I was prescribed clomid and after a few months my period was regular then I became pregnant with my now one year old Bby girl I know it's hard but keep a positive outcome is all worth it in the end.
    Report Reply
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