Autoimmune disease, high thyroid results

bkeasb

I'm 13 weeks pregnant and so far my raynauds phenomenon hasn't given me any complications. However because in the past I've tested a positive ANA and had sever symptoms of autoimmune otherwise not specified I'm classified as a high risk pregnancy and need to see the head doctor in my ob practice. I wasn't concerned until my labs came back with elevated thyroid levels and doctor's office called asking me to come an hour earlier today so I'll have a 2 hour appointment to run extra labs and so they can better learn what's going on with me.
Has anyone had similar experiences? Noone in my life understands autoimmune issues and I feel so alone. I'm very concerned as the first time the disease attacked it came on fast and strong and crippled me for a year.
I've been mostly symptom free for 2 years and this is the worst possible time I can imagine the disease starting up again. I'm scared for my babys safety inside my own self destructive body

pegs6216

I'm 15 weeks pregnant and recently discovered that I have some type of autoimmune disease. I'm seeing a rheumatologist but he hasn't been able to name it. The best he can do for me until June is give me a topical nsaid and hope that it keeps the most extreme pain at bay. It is awful. Every 2 days, my pain moves to another joint. Sometimes it's bearable, sometimes it's not. I completely understand how you feel alone. Nobody understands how the constant excrutiating pain affects me long term. I'm so exhausted because i can't sleep through the pain, not to mention that i believe the disease itself wears me out. Some days, I can't even so much as brush my hair because I can't lift my arm. 2 days later, I can't walk. I try to explain it to people close to me and I feel like I must sound like a nutcase. I'm pretty sure my husband thinks I'm exaggerating and that I'm just being a baby. I'm finally pregnant after ttc for 2 years following a mc and I just want to enjoy it. But I can't.

I know that you are much further along now and I really hope that your disease has stayed symptom free. Please let me know how you're doing. I feel better knowing I'm not the only one.

rosieschmozie

Hiya, multiple auto-imune diseases here: RA, Sjögrens Syndrome, Hypothiroidism and Psoriasis. Also positive ANA. Fun! I am now 29 weeks pregnant and Baby has to be checked every two weeks for growth. She measured up small on my first growth scan, so I hope my diseases aren't affecting my placenta like they possibly could. Unfortunately my immune system hasn't gone down like they tell you it would. I am on several types of medication, including 10mg of prednisone. I hope you can find someone to talk to, maybe discuss this with your doctor? Your mental health is just as important. You are not alone and you can do this!

With your thyroid, did they mention a high activity level or a high TSH? Because if your TSH is elevated, it actually means that your thyroid is under active and that is easily treated with no harm for the baby.

stacylanette

I was diagnosed with hypothyroidism in August 2013. The next month they determined that I had ANTI-NMDA receptor encephalitis and I ended up in the hospital for treatment. After finally recovering and returning to work, I found out this October that not only was I pregnant, but it was coming back. I did a high dose of prednisone in the beginning and another lower dose recently.
So far, so good with the pregnancy and keeping symptoms at bay. Hopeful for positive outcomes after the birth (obviously ). Long story, but you're by no means alone in this crazy trip.
Best of luck to you and your babe!

pegs6216

I'm so frustrated tonight. I have been in so much pain lately that I'm just feeling overwhelmed and completely run down. I can't sleep through the pain and its stressing me out so bad. My pain has been affecting my left knee/hip/pelvis for days now and it makes it impossible to lay down. I'm so depressed that I'm up every night in tears because I just want a decent night of sleep. I can't go to work, clean my house, or anything else that includes moving. Sometimes not moving is unbearable too. I'm out of my topical and have been trying to get a refill since last week but I'm being jacked around between the doctors, the pharmacy, and my insurance. I wanted this pregnancy so bad but I'm miserable and depressed and I can't wait for it to be over. I just want to be myself again. And now I'm afraid that this is my life, forever. Will I ever feel better?